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This review is from: Intensive Care (Hardcover)
This beautifully written book is about a special kind of love, an unconditional love, which Mary-Lou and her family learn to bestow on Peter, their second son, diagnised aged two years with muscular dystrophy. He was doomed to experience progressive muscle wasting and a short life span. However this is not just the story of a family's grief.
It is about two very human, distraught parents who rage, row then reconcile and unite in love. It is about a would-be-normal child who constantly struggles against a handicapped identity. He is fun-loving, perceptive and lovable but also very demanding and profoundly needy.
With sensitivity and humour Mary-Lou tells of her feelings of guilt, her dilemmas and her constant battles to protect Peter from hurt and to give him the quality of life he deserves. With tremendous energy and creativity the family unite to make this short life special and as normal and as full of fun as possible.
This is a powerful and inspiring book.