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Customer Review

11 October 2017
My expectations for this book were that it would be a story I have watched unfold on Twitter and in Sara Ryan’s blog, just all in one place. Oh my this book is so much more than that. Sara writes with searing honesty about the facts, and also about how it feels to experience the defensive and sometimes abusive reaction from NHS Trusts when a family asks questions about how someone died in their care, it’s about a quest for justice that should be a given but is turned into a fight, About how they do their best to turn a mother’s love into ‘mother blame’ in the name of defending their reputation. About how readily those who should take responsibility use every inch of the wriggle room the system allows them to wash their hands of negligence and poor care. All this is something I have experience of personally and is why I wanted to read the book. This book is also about an issue I have very little knowledge of, learning disability, In a non sensarionalist way this book tells it as it is about how people with learning disability are treated as second rate citizens from the moment they are diagnosed and how loved ones have to fight for their basic rights. It has challenged my thinking of being ‘normal’ through heartwarming snippets of dialogue, the funny yet heartbreaking real observations of a young person who sees life with none of life’s ‘learned’ filters, and the imagined dialogue of what he would think about the years since he died. It’s full of humour and warmth to melt even the coldest of hearts. Thank you for writing this book Sara it has changed my thinking of learning (dis)ability, and of difference (what is ‘normal anyway?) I am so pleased to have met Connor through this book. His story has touched my heart and soul.
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4.9 out of 5 stars