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Can I tell you about Pathological Demand Avoidance syndrome? Paperback – Illustrated, 21 Feb 2015

4.5 out of 5 stars 44 customer reviews

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Frequently bought together

  • Can I tell you about Pathological Demand Avoidance syndrome?
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Product details

  • Paperback: 56 pages
  • Age Range: 7 years and up
  • Publisher: Jessica Kingsley Publishers (21 Feb. 2015)
  • Language: English
  • ISBN-10: 1849055130
  • ISBN-13: 978-1849055130
  • Product Dimensions: 15.2 x 0.3 x 22.9 cm
  • Average Customer Review: 4.5 out of 5 stars  See all reviews (44 customer reviews)
  • Amazon Bestsellers Rank: 8,068 in Books (See Top 100 in Books)
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Product description

Review

This is an invaluable resource for anyone working or living with a child with PDA as well as an ideal book for talking to children more about their diagnosis. Issy is a charismatic character and many parents of children with PDA will immediately recognise her style. It is a fantastic addition to the developing resources for this condition. --Margaret Duncan, GP, The PDA Society

Ruth Fidler and Phil Christie's significant experience and expertise in PDA is evident throughout this book. Through the character Issy, children, parents and professional alike can increase their understanding of the complexities experienced by children with this condition and the strategies required to assist these children to have a quality of life. I would highly recommend this book. --Dr Jacqui Ashton Smith, Executive Director of Education, National Autistic Society

This is a delightful book that provides both detailed and very useful information about PDA from the perspective of 11 year old Issy. Issy's insights are fascinating reading and will definitely help professionals, parents and children themselves in understanding this complex condition. Issy's feedback is very down to earth and very believable, for example, she says "Some days it's like I have sore feet and no shoes on. Moving forward on those days is really hard." She tells the reader a great deal about PDA and how to manage it within a basic narrative about her life at school and at home. The illustrations are clear and simple, assisting in providing a glimpse into Issy's emotional world and insights. In addition, two very experienced and knowledgeable professionals provide excellent insights and resources in areas such assessment and intervention in PDA. They manage to capture their many years of experience and insights into this complex condition in a focused chapter which will be invaluable to all involved in working in this area. Their focus on explaining the 'altered approach' is very helpful, providing insights into how PDA is part of the autistic spectrum and that this is important in managing the condition. This is a concise and authoritative overview into understanding PDA, a complex condition, which continues to challenge many families and professionals. --Dr Laura Cockburn, Specialist Psychologist and Manager, Lorna Wing Centre, National Autistic Society

Review

PDA is another part of the jigsaw within the autistic spectrum. This book offers us an
"insider perspective" which enriches our understanding and knowledge. It is full of helpful advice and practical approaches, and I would highly recommend it to teachers, parents and all professionals working with children with PDA, (or who, from reading this book, realise that they are!).

(Professor Barry Carpenter, OBE, Honorary Professor in the field of Learning Disabilities at Universities in the UK, Ireland, Germany and Australia)

This is an invaluable resource for anyone working or living with a child with PDA as well as an ideal book for talking to children more about their diagnosis. Issy is a charismatic character and many parents of children with PDA will immediately recognise her style. It is a fantastic addition to the developing resources for this condition. (Margaret Duncan, GP, The PDA Society)

A valuable resource and excellent value for money for any educational establishment. For such a little book it is incredibly informative and I would highly recommend it to teachers, parents/carers and professionals as an excellent introduction to the condition, (Good Autism Practice (GAP))

Ruth Fidler and Phil Christie's significant experience and expertise in PDA is evident throughout this book. Through the character Issy, children, parents and professional alike can increase their understanding of the complexities experienced by children with this condition and the strategies required to assist these children to have a quality of life. I would highly recommend this book. (Dr Jacqui Ashton Smith, Executive Director of Education, National Autistic Society)

This is a delightful book that provides both detailed and very useful information about PDA from the perspective of 11 year old Issy. Issy's insights are fascinating reading and will definitely help professionals, parents and children themselves in understanding this complex condition. Issy's feedback is very down to earth and very believable, for example, she says "Some days it's like I have sore feet and no shoes on. Moving forward on those days is really hard." She tells the reader a great deal about PDA and how to manage it within a basic narrative about her life at school and at home. The illustrations are clear and simple, assisting in providing a glimpse into Issy's emotional world and insights.
In addition, two very experienced and knowledgeable professionals provide excellent insights and resources in areas such assessment and intervention in PDA. They manage to capture their many years of experience and insights into this complex condition in a focused chapter which will be invaluable to all involved in working in this area. Their focus on explaining the 'altered approach' is very helpful, providing insights into how PDA is part of the autistic spectrum and that this is important in managing the condition.
This is a concise and authoritative overview into understanding PDA, a complex condition, which continues to challenge many families and professionals.

(Dr Laura Cockburn, Specialist Psychologist and Manager, Lorna Wing Centre, National Autistic Society)

The two authors of this book (Ruth Fidler and Phil Christie) are authorities in the field... The majority of the book is written from the perspective of an 11 year-old girl, Issy, who also has PDA... There are countless clear, simple explanations throughout this section about autism in general, the specifics of PDA, as well as lots of examples of how it impacts Issy's daily life... As someone who supports a child with this condition, I found it made me see things from a new, more compassionate perspective. The second part of the book contains information and strategies that, in the authors' experience, can help support children with PDA... If you have contact with someone with PDA, you really should get hold of it. (Mark Haworth, time Specialist Support/AuKids' reader panel AuKids Magazine)

This informative little handbook is narrated by Issy, an 11 year old girl with PDA (an autism spectrum condition). She shares with readers what it is like to have this condition... The last part of the book is written from an adult perspective and takes up this topic in the section 'How other people can help'... For me, what is particularly good about this useful resource is its positive approach to the topic. (Jill Bennett Red Reading Hub blog)

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Customer Reviews

4.5 out of 5 stars
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Top Customer Reviews

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This book will be crucial in furthering understanding of the challenges faced by children and young people with autism and the PDA pattern of behaviour. The main section of the book is told from the point of view of Issy, a friendly, creative and articulate 11-year-old girl with PDA. The book succeeds in taking a complex and difficult to explain condition and making it accessible and easily digestibleIt will surely be a great aid to teachers and teaching assistants in mainstream schools, as well as family and friends of those with PDA, as it gives an insight into the slightly different way that those with PDA experience the world, and why instructions concerning seemingly benign everyday tasks can cause them so much upset and distress.

There's also some useful practical advice for supporting those with PDA at the back of the book, especially for those new to the condition. As a parent of a young daughter with PDA, I wish someone had put this book into my hand several years ago, but I'm grateful to the authors and the publishers for providing this valuable resource.
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A well written, concise and informative introduction to PDA. This book will be an exceptional resource for parents and professionals who are at the beginning of their journey and looking to develop an understanding of the person that they are supporting with PDA. Also young people who are involved with the individual with PDA e.g. siblings or young friends would also greatly benefit from reading this book. It will also prove to be very useful as a refresher course for us old timers who have been travelling along this road for quite some time. I love the fact that this book delves into the way that Izzy sees the world and the difficulties that drive her behaviours rather than simply focusing on the PDA profile of behaviours which often serves to elicit little understanding or empathy for the child or their family. Izzy's story is then complemented by a handy section on strategies and how best to support and individual with PDA.
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It was a good read but not really what I expected. It rang true with some people I've come across but didn't really give me any clarification/ direction. Although saying that, the insights/ understanding are useful in trying to do the right thing for an individual with similar support needs.
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An excellent book, it could be my daughter writing it. Really helpful in explaining PDA to her, friends and family. Easy to read. There are more detailed books and articles around but we have been waiting for something like this for a while now. Have bought several copies to share around.
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This book seemed to be aimed at a young child, I bought it really for strategies when dealing with teenagers, I didn't feel like there were many helpful strategies in it and I don't think a teenager would enjoy reading it.
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Format: Paperback
This is ideal for anyone trying to explain Pathological Demand Avoidance to friends, family and dare i say professionals. Written from the perspective of Izzy an 11 year old girl who could be my daughter's twin!
Expkains the challenges of this condition, and also has strategies to try because, traditional asd parenting techniques don't always help with this challenging condition.
Buy it, and get a copy to everyone you know who will listen!
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Very useful tio for sharing information with siblings and family , easy read, straightforward , great
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Very insightful, helps me better understand not only myself but, also my children and grandchildren. Yes we are three generations all with differing autistic traits.
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