Special Brothers and Sisters: Stories and Tips for Siblings of Children with a Disability or Serious Illness: Stories and Tips for Siblings of Children with a Disability or SeriousiIllness Paperback – 15 Aug 2005
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This book tells the siblings' stories, highlighting not only the problems they encounter, but also the good times they have with their siblings... the aim of the book is to help siblings feel less alone. To know that there are others out there who experience embarrassment, jealousy, worries, fear, anger, guilt, helplessness, frustration, sadness etc can come as a tremendous relief. The children and young people who tell their stories have been very honest about their feelings and experiences but what comes clear from this book is that many wouldn't want to change their sibling with a disability. They love them as they are. -- Communication This is a lovely book, where young people talk about their siblings who have a disability or serious illness. The children's descriptions are very honest and cover a range of emotions (positive and negative) that their family situation raises for them. The featured stories cover a range of disabilities and illnesses, a broad spectrum of ages of siblings and varied reactions to the difficulties. The honest reflections of the young people in the book may help to raise the awareness of parents, and other adults, about the impact on siblings, as well as being helpful for the siblings themselves. -- Youthinmind.co.uk A powerful collection of personal accounts of joy, love and frustration as well as acceptance and optimism. The editors have combined the words of the children with clear and practical advice and excellent and easy to understand explanations of different illnesses, disabilities and medical phrases. -- Writing in Education This book allows that to become an ongoing practice. Written in such a way that it can be used with even very young children, it gives some powerful messages, including the message to children that they are not alone. It illustrates the variety of responses a sibling can gave and offers tips on how to deal with some of the daily challenges of living with a special brother or sister. It provides useful contact details and an easy-to-understand glossary of various medical terms...It is very reasonably priced and an invaluable resource for working with families with other children. -- Learning Disability Practice By telling their stories, the children cover a wide range of topics and reading the book would help children to realise that they are not alone and that other children have had similar experiences and feelings. The wide age range acknowledges that even very young children can feel responsible for and protective of their siblings. -- Rostrum This is a very positive book that could be read to a younger child or given to older children to look at in their own time. You can look for a specific problem or just read through it to find out how different children cope in different ways. -- Learning Support This book is a collection of 40 real-life accounts from the brothers and sisters of children with special needs, disabilities or serious illness. Aged between 3 and 18, they explain what it is like to live with them, expressing their feelings of love, frustration, joy and sadness and talking about their experiences honestly. Each story is accompanied by many relevant tips and advice to help siblings cope with their feelings and with common issues including jealousy, embarrassment, being stared at, long hospital visits, guilt, fear, helplessness and worry. -- Home Education Advisory Service In this useful book, children aged from 3 to 16 describe in their own words how their lives are affected by having a sick or disabled brother or sister... The book covers a wide range of disabilities and illnesses including ADHD, leaukaemia, cystic fibrosis and cerebral palsy and the issues it covers are equally wide ranging... This book deserves a place on the bookshelves of teachers, doctors and other professionals who may come into contact with children in this situation. It is also useful for parents and for children themselves, who may like to read it alone or with a supportive adult. -- WordPool Website It can be hard being the brother or sister of a child with a serious illness and disability, especially if your feelings get overlooked. This publication is a collection of stories from young people aged four to 18 highlighting their fears and concerns as well as their own jealously and anger. Each story comes with tips to help young people think through issues. There are also explanations about key terms relating to disability. -- Young People Now Special Brothers and Sisters is a collection of accounts from 40 families with children ranging in age from 3 to 18 speaking openly and honestly about their experiences. It has been compiled for siblings, their parents and professionals working with the family... The resource has been very well thought out... From embarrassment, staring, sleep disturbances, challenging behaviour, hospital stays, surgery, friendships and needing more attention, the book offers user-friendly ideas to work through these challenges...I think it's certainly a book to read together with your child...I would urge every parent to read it for themselves as it provides a very grounding insight into how siblings feel... eye-opening... The book also contains a comprehensive list of where to get additional support and help, including UK based sibling support organisation Sibs. There's a glossary of medical terms, a note to siblings and a separate one for parents.This is an honest, compassionate book with a positive tone. It sends out a clear message that siblings of disabled children are not alone and are not being overlooked or forgotten. -- Hayley Goleinowska Special Needs Jungles blog
About the Author
Annette Hames is a Consultant Clinical Psychologist who has worked with children with learning disabilities for over 20 years. She currently works with families with children with learning disabilities for Northgate and Prudhoe NHS Trust, in Newcastle-upon-Tyne. Monica McCaffrey is the director of Sibs, the UK organisation for siblings. One of her brothers has learning difficulties and another brother died in childhood from a life-limiting condition. Monica lives in Yorkshire.
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Top Customer Reviews
Most striking in all the stories are the positive attitudes with which these young authors, ranging from aged 3½ to 18, view the disabilities or illnesses of their siblings, despite the impact it has on their daily lives. Love, despair, frustration, joy and sometimes also sadness is clear in their individual shared experiences.
It is truly inspirational to read about their difficulties, frustrations and anxieties alongside their love and compassion for their ill or disabled sibling, especially as the majority of the shared experiences focus on the positive aspects of disabilities i.e. learning to have a greater understanding of other people; being made to feel special. It is also easy to read between the lines and see how it take some very special parents to ensure that the healthy and well siblings does not become resentful of their disabled or ill brother and sister getting all the attention.
The book is further suitable for all age groups and can be used as a therapeutic tool for those who are just coming to terms with the disabilities of a new sibling or a new disability or illness in a sibling who was previously healthy.Read more ›
Written in a clear and well-thought out way by authors you can trust it portrays a realistic picture of life with a child with a disability and offers practical ideas to support other children within the family.
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