Shared Experiences: The Experience of Having and Parenting Children with Upper Limb Deficiencies Paperback – 1 Oct 2009
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A collection of experiences that take you on a journey of discovery, spanning decades, cultures and attitudes, in society and the medical profession. These stories are shocking, saddening, funny, inspiring and captivating. A brilliant realisation of life with one hand. --Cerrie Burnell - TV Presenter CBeebies
This book originally was born from a session held at a Reach AGM. However, the finished book will be an inspiring read for a parent or health care professional of a child with any disability. --Gary Phillips - Chairman of Reach
To recognise that they are not simply treating an anatomical abnormality but a large intertwined group of people is difficult for some surgeons, and so this book should be compulsory reading. In fact it should be compulsory for all health care professionals interacting with children with congenital differences, and their families, because it will enable them to hear, and what they hear from the experiences in this book will remind them that the surgery is not the most important part of what they do. It should also teach lessons in courage and duty that will humble many.
--Professor Simon Kay - Consultant Plastic and Hand Surgeon, St James University Hospital, Leeds
From the Publisher
Irwin Mitchell is proud to support Reach in the production of this inspiring book prepared by Charlotte Fielder.See all Product Description
Top Customer Reviews
This book would also provide an excellent resource for any health care professional or teacher.
The result is a compassionate, powerful yet balanced synthesis of the experiences of around 30 parents of children with upper limb deficiencies, including her own parents. For Charlotte has a missing hand herself and brings her personal experience of a life lived with visible difference in such a way as to brilliantly illuminate the words of the parents.
The book covers a wide range of subjects that may be a concern for parents including difficult decisions about termination and surgery, the impact on parental relationships, self-awareness of the child and unwanted attention from others, health and educational issues, coping strategies and more.
But just as important is the insight that educationalists, health professionals and policy makers will gain by better understanding the experiences of those same parents.
This book is not just for those interested in upper limb deficiency. It speaks to anyone bringing up a child with any type of visible physical difference and also to anyone interested in our human capacity to face adversity.
Yes, I am proud of Charlotte's achievement in driving this through to publication, but more so I am proud of the difference this book has the potential to make to the lives of so many families.
Lastly, please note that all proceeds go to Reach, the Association for Children with Hand or Arm Deficiency and you can also purchase the book from their website.
This theme of frankness is carried throughout "Shared Experiences" as it covers a myriad of topics which concern families learning to live with upper limb deficiencies.
It is the sort of book which can easily be picked off the shelf and read from cover to cover and it serves equally well as a reference to be dipped into at times of need or when questions arise.
It offers not only practical advice but also reassurance that help and support are available and the fact that families do not need to "manage" in isolation.
Reading from the perspective of a person with 2 upper limbs I still found there were uplifting statements and encouragement to know that although life throws at us much that is either unwanted and/or unexpected, there are routes open for helping deal with whatever we find particularly challenging.
I imagine and strongly believe that "Shared Experiences" offers a real lifeline to families dealing with many of the issues of living with a child with missing upper limbs. It opens doors which for many probably felt firmly bolted.
I would also highly recommend "Shared Experiences" for any, if not all health professionals. There are many grounded, common sense pieces of advice which, if half the health professionals heeded, would make a huge difference to how parents of children with missing limbs feel. I write here as a parent who spent many, many months dealing with health professionals whilst looking after my young son who was terminally ill with cancer.Read more ›
I think the book should be standard issue to all new parents of children with upper limb differences, as it would undoubtedly have provided a lot of support to me during those first few bewildering months, and it is a book which they will keep going back to. I particularly liked the use of quotes to introduce each chapter, and which added a nice philosophical counter to the more pragmatic issues raised. I'm pretty sure that 80% of parents who open the book won't 'dip into it', but will devour it cover to cover! For all Fielder's humility about what she has been able to do, it is an extraordinary book.
Most Recent Customer Reviews
I am a friend of Charlotte Fielder and a journalist who has written extensively on the NHS. This book is a must for anyone working in the NHS. Read morePublished on 14 Mar. 2010 by Harriet Sergent
Firstly I must admit being an ex work partner of Charlotte..
A wonderful book to read, I know that Charlotte would have given 110% in compiling such a marvellous... Read more
Firstly I must admit to knowing Charlotte as a friend. However, other than on a basis of charitable support I have no direct contact with any person who has an upper limb... Read morePublished on 20 Dec. 2009 by P. Sinclair
There could be no more apt title for this book. The 'Shared Experiences' revealed are at once touching, funny, candid, shocking and enormously uplifting. Read morePublished on 30 Nov. 2009 by A. Tewkesbury
I initially bought this book because Charlotte is a friend and colleague, and I wanted to show my support for the huge effort she has made in writing this book. Read morePublished on 23 Nov. 2009 by A. West
This delightful book draws together many and varied experiences from a wide range of sources in a candid but gentle way. Read morePublished on 21 Nov. 2009 by Richard Hall
Being a mother to a five month old baby born with an upper limb deficiency and recently becoming a member of REACH, I was eagerly awaiting the release of this book to understand... Read morePublished on 20 Nov. 2009 by H. Nash
My whole life a book worm but I haven't read a book since having children....so over 3 years now...until this one. Read morePublished on 18 Nov. 2009 by M. Rowley
I have been waiting for this book for a while and I am not disappointed. The content is sometimes shocking, sometimes tear jerking but totally, totally relevant. Read morePublished on 11 Nov. 2009 by A. T. Dodds