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Pernicious Anaemia: the Forgotten Disease: The Causes and Consequences of Vitamin B12 Deficiency Paperback – 11 Jun 2012

4.8 out of 5 stars 67 customer reviews

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Product details

  • Paperback: 192 pages
  • Publisher: Hammersmith Health Books; First edition (11 Jun. 2012)
  • Language: English
  • ISBN-10: 1781610045
  • ISBN-13: 978-1781610046
  • Product Dimensions: 13.8 x 1.4 x 21.6 cm
  • Average Customer Review: 4.8 out of 5 stars  See all reviews (67 customer reviews)
  • Amazon Bestsellers Rank: 82,842 in Books (See Top 100 in Books)
  • See Complete Table of Contents

Product Description

Review

"'This book is to be warmly welcomed. It is a vivid and very well-written account of a 'hidden chapter' in medicine that ought to be widely known among the public at large, among policy-makers, and among medical professionals. A major reappraisal of how we define, diagnose and treat B12-deficiency is needed, and this book is a trail-blazer for this mission.' A. David Smith, Professor Emeritus of Pharmacology, University of Oxford, UK, and Helga Refsum, Professor of Nutrition, University of Oslo, Norway, and Visiting Professor of Human Nutrition, University of Oxford, UK"

About the Author

Martyn Hooper founded the Pernicious Anaemia Society after being forced to give up full time work as a lecturer in Further Education owing to the long term effects of undiagnosed pernicious anaemia and vitamin B12 deficiency. He now runs the Society full time, and campaigns for improvements in diagnosis and treatment of these conditions.


Customer Reviews

4.8 out of 5 stars
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Top Customer Reviews

Format: Paperback
Martyn Hooper's book is very readable and gives so much information on Pernicious Anaemia and Vitamin B12 Deficiency Anaemia. It gave me ample info to be able to go to my doctor and successfully request hydroxocobalamin (B12) injections every 8 weeks instead of 12 weeks - when I had asked for more previously, I had been dismissed and told it was NICE guidelines to wait 12 weeks between injections. Every patient should be treated as an individual, with individual needs.
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Very few user friendly books exist for people who suffer from Pernicious Anaemia or B12 deficiency.
This book for me hits a good understandable level for an explanation of the problems facing the ever increasing numbers of people now becoming aware of the problems with diagnosis and treatment of B12 deficiency with some technical content but kept on an understandable level throughout.
One gets the feeling that this book is scraping the tip of an iceburg on the verge of exposing a huge hole in the way in which the medical world in general (not just in the UK) has been itself "deficient" in the way in which it has treated people in such a blasé manner over many years.
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Format: Paperback
B12 deficiency occurs not only in pernicious anaemia but can also be caused by other diseases, disorders, diets and, yes, medicines.

Diseases/disorders such as thyroid disorders (any form of hypothyroidism but especially Hashimoto's) and, indeed, any autoimmune disorders - because they all too often have other associated antibodies such as those against gastric parietal cells and/or Intrinsic Factor.

Diets including any which have are likely to have low levels of B12-containing foods (e.g. vegan, vegetarian, many weight-loss diets) unless special care and attention are paid to B12.

Medicines include:
Proton pump inhibitors (Esomeprazole, Lansoprazole, Omeprazole, Pantoprazole, Rabeprazole sodium), Ant-acids (various aluminium, magnesium or combined products), Histamine H2-receptor antagonists (Cimetidine, Ranitidine, Famotidine, and Nizatidine).

The book includes a formidable symptom list, and much about diagnosis, testing and treatment.

Martyn Hooper has written in a very accessible, easily read way - but without patronising - I encourage all who have interest in B12, its deficiency or, of course, pernicious anaemia to get hold of a copy and read it right through. And that should include those identified by the categories above.
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Mr Hooper, thank you so much for writing your book.It essentially saved my life as I was fed up with suffering one thing or another and not understanding why, and really wanted to end it all. Despite been diagnosed a decade ago and suffering numerous symptoms associated with PA, no doctors I saw linked my medical complaints to PA, although I always declared that I had PA. However, they were always quick to be patronising and condescending, which only compounds the depression you feel - but I have now learnt that this is usually the medic's defensive reaction as they do not understand the illness. This is especially the case for GPs who as gatekeepers to medical attention in the UK tell you that your illnesses are 'in your head'.The book has empowered me to go back to my GP and request a review of my current treatment regime, as well as finding other ways that I can help myself.
If you suffer from B12 deficiency or have PA, pick up this book as it will allow you to give yourself a break, and not be harsh on yourself.
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An amazing book!! I bought this for my mother, who hasn't stopped talking about it.. and telling everyone about it on the phone. Here's why...

After years of doctors cutting down her B12, saying that she only needed it every 3 months and it doesn't do anything, this book has given her the evidence she needs to discuss B12 injections with the NHS from an informed perspective.

The B12 injection is critical. This book will discuss the range of effects you'll suffer and how often you may need the B12 injection.

If you have this condition then don't hesitate to do yourself a favour, and get this book.
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Format: Kindle Edition
The main author is a sufferer and works for the PA charity in the UK and boy does he know his stuff! You must read this book because the overwhelming odds are that your doctor has the scantest understanding of this illness and certainly not enough to dispense due therapy.

It is an autoimmune illness and has all the same challenges of diagnosis that they all seem to - antibodies may or may not show up so this test cannot be a certain marker, it is ppossible to throw a 'normal' b12 blood test but still have PA, the b12 threshold for being considerd is way way too low, the b12 test in current common is anyway poor and does not differentiate between the active and inactive b12 forms.

Should you actually get passed GP unfamiliarity you will be given b12 injections however, irrespective of your symptoms (hey, it's not like the patient matters is it) you will get them once every 3 months though for many - most? - this is simply not enough. What matters is hitting a b12 blood test and sticking to the NHS guidelines, what doesn't matter for too many negligent doctors is the patient. Should you have a doctor who listens and formulates a good treatment protocol then you are quite lucky. The author finally gets this but it's a long journey. It's depressing to KEEP reading people's struggles for responsible healthcare.

(NB mysteriously the injections don't help everyone).

Therefore you must be the one driving your treatment. Particularly as untreated PA leads to irreversible nerve damage (so bad is this that it can be mistaken for multiple sclerosis.

For an extremely - and I do mean extremely - well researched individual there are no hypothesis or even 'wild guesses' as to cause made. It remains an unknown as I think all autoimmune conditions are but I'd be interested in any thoughts this guy has on this matter.

Terrific book.
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