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Pathological Demand Avoidance Syndrome - My Daughter is Not Naughty Paperback – 21 Feb 2015

4.9 out of 5 stars 45 customer reviews

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  • Can I tell you about Pathological Demand Avoidance syndrome?
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Review

Knowledge and understanding of PDA is still at an early stage, but there are exciting developments happening in diagnostic understanding, greater awareness of successful educational approaches and the perspective that is now being gained from further research...Jane Sherwin's book, the account of the mother of Mollie, a ten-year-old girl with PDA, will add to that knowledge by highlighting the perspective of a parent, as well as giving fascinating glimpses into how the world seems from Mollie's point of view. --from the foreword and introduction by Phil Christie, Consultant Child Psychologist, The Elizabeth Newson Centre, UK

Review

Knowledge and understanding of PDA is still at an early stage, but there are exciting developments happening in diagnostic understanding, greater awareness of successful educational approaches and the perspective that is now being gained from further research...Jane Sherwin's book, the account of the mother of Mollie, a ten-year-old girl with PDA, will add to that knowledge by highlighting the perspective of a parent, as well as giving fascinating glimpses into how the world seems from Mollie's point of view. (from the foreword and introduction by Phil Christie, Consultant Child Psychologist, The Elizabeth Newson Centre, UK)

My Daughter is Not Naughty charts the up and down journey of Jane and her daughter Mollie as they discover, and then begin learning to live with, Pathological Demand Avoidance syndrome. It is a down-to-earth read that tackles difficult issues with refreshing honesty, but is delivered with the warmth and sensitivity of a mother's touch. This may be Jane and Mollie's story, but the degree to which it will resonate with other "PDA parents," means it could easily be their story too. (Neville Starnes, PDA parent and member of the PDA Society’s management committee, UK)

Sherwin comes to this subject as a parent as opposed to a professional and her knowledge is self-taught as she came to terms with her daughter's difficulties... (The author) outlines the strategies that she has developed to cope with Mollie's meltdowns and anxieties and her 'huge issues' with sleep... Sherwin writes frankly about how Mollie's PDA has affected her personally and her family and this book is a moving and informative guide. (Mary Mountstephen, author, editor SEN Magazine)

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Format: Paperback Verified Purchase
This book answered so many questions as to my own boys behaviour. They were eventually diagnosed with Asbergers in their late teens but aspects certainly did not fit. I am not battling to get both diagnosed with PDA. Have bought a number of copies to give away to others desperate for a diagnosis.
This neurodevelopmental illness must be recognised. It does exist, we live with it every day,. Shocking lack of understanding throughought NHS and Educational System.
All CAMHS , Adult Mental Health Services , NHS , Teachers, Educational Psychologists should read this.
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Format: Paperback
At last - A family like mine.

This is a wonderful, wonderful book. A true account of what it is like to live with a child with PDA (yeah). Tissues for tears and a pen and notepaper to take notes or underline various sections are a must. The book includes: The key features which help to point to this spectrum. The UPS as well as the downs as Mum and Mollie engage with various authorities. School life and the Mums ultimate decision to unschool. Impact on siblings. Family life. Mental health of Mum. How the wider family can help and understand. The endearing and quaint side of PDA. Hope for the future. The book ends with frequently asked questions and these are answered by Phil Christie and Ruth Fidler.
I heartily recommend this to any parents.
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Format: Paperback
Only PDA parents can totally appreciate how this book may change how professionals, teachers, relatives and friends and anyone else who may have contact with a PDA child.

Thank you Jane for putting your story out there for parents in despair who would love the world to know that "their child is not naughty".

A huge sigh of relief that we are not the only family out there xxxx
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If you have a child with PDA, read this book! It tells it like it is. It means so much to know that one's parenting experience is shared by others. Jane writes with clarity, balance, honesty and compassion. In this book you will find a fascinating story as well as useful information.
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A very helpful and instructive read. The author's daughter also contributes which was very illuminating. My own child's PDA is not as severe although he does have many traits. Recommended.
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A fantastic account of life for everyone in the family living with a PDA child. I could relate 100% to this story with my own son.
Well done Jane! Definately recommending this to family, professionals and friends.
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Format: Paperback
This is, quite simply, a wonderful book. Jane has a very clear and simple writing style that draws you in and a warmth and honesty that brings her story alive as you read it. The book is a must for parents and professionals alike. It sets out what Jane and her family went through whilst struggling to understand Mollie's strengths and weaknesses and the struggles they then had to get professionals to recognise the problems and give adequate support. However, the book is more than just one family's tale of woe. More than half of the book is devoted to explaining what Jane has learned about PDA and, specifically, about her daughter, and to giving real practical advice about which strategies worked and which didn't - with some genuine insight as to why this is the case.
Not all children with PDA are like Mollie; this is true. Indeed it could almost be said that no two children with PDA are the same. However, there is no doubt that this book contains strategies that work for many and is a leap forward in understanding why these strategies work. If you have even the slightest interest in PDA, whether as a professional, family member or lay person, this book should be top of your "must read" list
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'My Daughter Is Not Naughty' is a tremendously informative book. It's very real account of how it is to live with PDA and challenges the reader to think about the causes of behaviour. The book is packed with useful advice and strategies - real advice that actually works. Reading this book again recently has almost 'given me permission' to think differently and treat behaviours differently. I really do think this is a 'must read' for everyone (parents, grandparents and professionals alike) to help them understand this part of the autism spectrum,
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