PSP , the disease that my father fought with every fibre of his being . I have read everything that I could “get my hands on” regarding PSP and in reality that’s not a lot . It is a disease so rare , that unless you know someone suffering from and correctly diagnosed with it , you’ve probably not heard of it . The previous books I’ve read about this condition are either from the carer or clinician’s perspective . Not this one , this is Tim’s life, his struggles, his losses , his wins , his day to day reality of living with a disease that relentlessly strips you of mind and mobility .
Tim’s determination to raise awareness of “ the disease with no treatment , no cure “ whilst living with its devastating effects is utterly inspirational . If I’m honest , I struggled for words that encapsulate just how Tim’s story and his sheer strength and humour in dealing with this cruel disease , whilst trying and succeeding to provide a legacy of research , awareness and hopefully one day a cure for PSP has touched me .
I highly recommend this book not just to those of us in the “PSP” family but to all . Tim’s book is a lesson , live your life with grace , humour , bravery and fortitude and the world will be a better place .
Much love to Tim and all PSP warriors like my Dad who I love and miss every day .
Having a terminal illness, which takes away the power of speech, sight and movement, and writing down a journal so eloquently takes guts! This is a must read... not just for those with PSP, but also for those who are interested in human endurance. Well done Tim for delivering a first class read!