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One Last Goodbye: Sometimes only a mother's love can help end the pain Paperback – 14 Apr 2011
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About the Author
Kay was born in Dublin in 1954. The youngest of ten, all she'd ever wanted was a family of her own. After leaving school, she trained as a nurse and went on to have two much-longed-for children, Stephen and Lynn, with her then husband Richard.
Kay now lives alone in East Sussex and is a proud grandmother of two. Kay is a dedicated supporter of The 25% ME Group. The charity exists to support those who have the most severe forms of ME and the people who care for them.
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M.E. has been classified as a neurological illness by the World Health Organisation since 1969, yet in the UK it is treated as a form of malingering. No-one in the medical profession seems to have asked what contaminant was in the vaccine that caused so much damage to a healthy, lively, intelligent 14 year old's body.
"When her body was examined by the pathologist who specialised in M.E., he discovered 'dorsal root ganglionitis' - infected nerve roots - and nodules of Nageotte, which are liitle tombs of dead cells, in her spinal cord. These would have caused her terrible pain and sensory nerve damage. They found similar cells in the body of Sophia Mirza, an M.E. sufferer who died in 2005 at the age of 32,and I believe also in other sufferers."
Yet still the UK psychiatric profession take all the research and treatment funding. The situation is a national scandal.
may Lynn rest in peace after so many years of incredible suffering.
However, I am so glad I did. The story is heartbreaking. So much so that several times I continued reading whilst tears were running down my face. But both Lynn and her mother were so strong, so remarkable. Lynn struggled through years of pure torture, made much worse by the medical profession who consistently mistreated her, thinking that her illness was psychological. However despite all her pain, Kay shows in this book the bravery of her daughter, as well as her kind heart and loving nature.
Not to mention the bravery of Kay - who dedicated every moment of her life to trying to help her daughter, before having to face the unimaginable...
This book left me heartbroken. But it also moved me to read of their strength, their love. And it humbled me too - because no matter how much I have suffered over the last 7 years with ME, I have not faced anything close to what Lynn did.
I hope many people read this book. By writing the book, Kay has drawn attention to how severe ME can be, she has drawn attention to the ill treatment ME sufferers face at the hands of medical professions, and she has drawn attention to the lack of understanding, and the lack of research into this illness. Her message needs to be heard, for all of the thousands of sufferers of ME, but especially for the most severe sufferers, like Lynn, who still face mistreatment, and little or no understanding.
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