A New ME: Looking to the future Paperback – 11 Jun 2014
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I found it to be very well written and laid out, not straining on the eyes as some are, a huge consideration for anyone with M.E as it effects even your eye muscles. It was easy to follow and understand. I have always liked non celebrity memoirs and this was on a topic close to my heart. He explains well the limitations put on his and any M.E. sufferers life, the struggles we face when simply trying to survive; the difficulties in getting both the medical profession and the benefits system to believe us.
M.E. is an invisible illness. Sufferers don't look ill and if we have paced ourselves and managed to get out for a couple of hours occasionally we don't look any different to a healthy person, but unlike a healthy person we will suffer for it the following day, days, weeks or even months. Barry's book puts all of this across in a concise, sympathetic manner. Any illness is hard to empathise with unless you or someone close to you has suffered from it but this book goes a long way towards explaining this very complex and extremely debilitating illness.
Barry is such an inspiration sharing his life history with living with Aspergers and ME explaining what they are, an emotional read all the struggles of living with such debilitating hidden disabilities/illness that unless you are that person or their loved one, can only truly know just how terribly devastating the impact has on ones life and that of Barry's family. To deal with the very services that should be there to support and help that just make matters a whole lot worse.
Good for you writing this Barry and for remaining as positive as you can. A son to be extremely proud of.
Sophie & Roger Sleep mum and dad of two sons with ME xx