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M.E. and me: Chronic Fatigue: My Recovery After 10 Years Paperback – 11 Jun 2015
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It has helped give me hope that one day I will too be able to walk over hill and down dale again.
I think it’s good to give to family members to help them understand what we go through and I have to say that his family were amazing.
In easily digestible sections, the reader is taken on the author’s journey, which at the time constituted mostly of trial and error, but also includes his own hindsight and updates on medical advances, which gives the text a contemporary feel. Family members who cared for him during the extended period of his illness have their say, which will doubtless echo the experience of other carers: mostly, those affected are left to get on with it, hence the need for a sharing of knowledge as a form of support. Welfare, the workplace, what to ask and who to ask, are all covered, and there is a comprehensive listing of live hyperlinks in the appendix to gain both insight and alternative routes to navigate this illness.
In keeping with the illness, the author’s recovery was slow, but it has been made, and it is this he emphasises throughout. Normal life can be resumed. That he believes ‘Action for ME’ was particularly instrumental in his rehabilitation can be seen not only by dedicating part of the profits of the book to the charity, but also in him undertaking a half marathon on its behalf later in 2015. I wish him well.
I related to this book straight away, the struggle to continue to work to provide for family, the determination to be well when the illness and your body have other ideas, the financial problems, everything. I suffer from frequent, debilitating headaches so reading is a problem and it takes a long time to read a book but this was short and to the point with sufficient breaks to easily put it down and pick it up again.
It was well written and the author's experience clearly explained and it would be encouraging to both sufferers and carers alike as his wife and daughter add their feelings during his illness.
All memoirs on this illness are helpful in raising awareness of it. I only wish they'd be read by the medical profession so that they could actually get a picture of the every day lives of sufferers and how devastating it is to lose your life as you'd previously known it. Maybe then they'd treat it as a real illness.
Some of the proceeds from this book are going to the M.E charity Action for M.E.