Living Like Livvy: A Mother's Story About the Girl Who Refused to be Defined by Rett Syndrome Paperback – 26 Jan 2018
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About the Author
This is not my first book by a long stretch but is the one I care most about. My latest book tells the story of the amazing Livvy Meredith who would not be defined by Rett Syndrome. This is a cause very close to my heart. Huge thanks must go to top-selling author Maj Chris Hunter for his very kind words written in the foreword. All royalties are going to the charity, Reverse Rett. Please help these girls by purchasing this inspirational story and writing a review
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Written in the words of her mother Sara who watched her daughter regress from a young age, slowly losing the skills she had learnt, Livvy lived a short but loving life with her parents and 3 sisters before cruelly being snatched from life by this unforgiving condition.
As a parent of a Rett child this book was a must read, a difficult read yet one that I am glad to have read, it has reminded me that time spent with my own daughter is extremely precious and that should the unthinkable become a reality, that life can be lived positively once more as is Sara's approach to life with her loving family
A very well written book by Andre Govier
Like many people, I had never heard of Rett Syndrome. I went on line and found some information about it, but not a lot. Then I tried to find a book about it to read up on it so I knew how best to support this little girl at Nursery. All I could find were various scientific tombs, mostly quite out of date and not easy to get your head round.
Now, finally Andre Govier has written a book that really explains what Rett Syndrome is all about and how it affects girls. He does this by brilliantly putting into words the heart breaking story of a mother who very sadly loses her daughter to Rett Syndrome.
This book will make you cry (have plenty tissues to hand) but it will also make you laugh. As an early years childcare practitioner who now specialises in additional support needs one to one work, I truly believe that everyone training in early years education as well as everyone training in paediatric medicine should read this book as a matter of course.
I finished reading this book the morning of running the half marathon in Manchester as part of the Reverse Rett team - it totally inspired me and gave me even more determination to make it to the finish line.