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A Gift of Time: Continuing Your Pregnancy When Your Baby's Life Is Expected to Be Brief Paperback – 12 April 2011
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Amy Kuebelbeck
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Deborah L. Davis
(Author)
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ISBN-100801897629
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ISBN-13978-0801897627
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Edition1st
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PublisherJohns Hopkins University Press
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Publication date12 April 2011
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LanguageEnglish
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Dimensions15.24 x 2.44 x 22.86 cm
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Print length408 pages
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Product description
Review
"[A] beautifully written, touching book... It is a must-read not only for parents who find themselves facign such a heart-wrenching situation, but also for those who care for and support these families."
(Share Pregnancy & Infant Loss Support)"This informative and heartbreaking book provides information to parents and families in the critical are of continuation of pregnancy in light of a terminal diagnosis... Quotes from patients and families offer a view to help encourage, inspire, and help others feel they are not alone... The health care team can learn much from this text."
(Deborah Roberts Pediatric Nursing)"Amy Kuebelbeck and Dr. Deborah L. Davis have bravely published a wonderful book... For childbirth educators, this is an important read."
(Jeanine M. Estrada International Journal of Childbirth Education)"A compelling read... the book will, naturally, be most of use to families who are facing these heartbreaking situations right now and need guidance and fellowship. But for all of us who value the lives of children with special needs, especially those who society most devalues, it offers an incredibly hopeful message."
(About.com)"The authors have achieved their goals in writing this book; they bring comfort to the families going through this traumatic time, and make the health care providers who read it determined to 'do better.'"
(Advances in Neonatal Care)"These knowledgeable authors speak eloquently for families, parents, prospective parents, and health care professionals across many disciplines who share in the experiences of life with, and without, a hoped-for 'perfect baby.' A thread of continuity runs across the gestational journeys of real parents grappling with bad and sad news, complex interwoven lives, and the hard work of seeking to bring joy into brief, yet eternal, moments together with their babies. The book will mean so much to those who have already endured these trials as well as those who are met daily with such news."
(Brian S. Carter, M.D., Monroe Carell Jr. Children's Hospital at Vanderbilt)"My team frequently counsels families coping with the heartache of managing a fetus or child with severe malformations that result in a life-limiting condition. We offer Ms. Kuebelbeck’s book to them, as many have found it a comforting resource. Her personal story and compassionate insights can help some families face the practical and emotional challenges they find along their journey."
(Simon Manning, MD, Director of the Perinatal Palliative Care Program, Brigham and Women's Hospital)About the Author
Amy Kuebelbeck, a former reporter and editor for the Associated Press, wrote about her experience losing a child in Waiting with Gabriel: A Story of Cherishing a Baby’s Brief Life. Deborah L. Davis, Ph.D., is a developmental psychologist and expert in the emotional aspects of neonatal medical ethics and perinatal bereavement. She is the author of Empty Cradle, Broken Heart: Surviving the Death of Your Baby.
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Product details
- Publisher : Johns Hopkins University Press; 1st edition (12 April 2011)
- Language : English
- Paperback : 408 pages
- ISBN-10 : 0801897629
- ISBN-13 : 978-0801897627
- Dimensions : 15.24 x 2.44 x 22.86 cm
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Best Sellers Rank:
683,769 in Books (See Top 100 in Books)
- 118 in Patient Hospice Care
- 450 in Paediatrics
- 1,010 in Family & Lifestyle Paediatrics
- Customer reviews:
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Top reviews from United Kingdom
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Co-author, Amy Kuebelbeck, who lost her own son, Gabriel, in this way is an advocate of the perinatal hospice movement. Knowing of her, and that she is American, I had previously believed that this was something available only in the States. She explains, however, that this movement does not involve buildings or even dedicated teams, but an 'approach' or 'state of mind'. So, although some of the systems and services mentioned in the book aren't available outwith the USA, it remains thoroughly relevant for parents and medical/nursing staff in the UK.
It's not a book to read cover to cover. I have, in order to write this review, but that's not what the co-authors intend. Rather it is to be used as a resource for dipping into and a 'companion' on the journey. For this purpose, the 'Contents' are listed very helpfully, in great detail, over three pages. For anyone determined to read it cover to cover in a short time (e.g. a member of the caring professions) I'd recommend studiously avoiding all the personal quotations the first time round, and just reading the paragraphs written by the authors. You can go back and read the quotations later, and more slowly. In the Preface, the authors themselves suggest beginning with the sections on 'Birth Planning', 'Meeting Your Baby' or the chapter on 'Reflections', saying: "Some of the voices of anguish that you will meet in the early chapters will reappear as voices of joy and overwhelming love in describing the birth of their baby, and they appear again, near the end of the book, reflecting on their journeys with voices of gratitude and peace."
This book is long-awaited. We had the benefit of an open-minded, supportive consultant obsterician, and a hugely supportive network of church, friends and family, but not everyone does. This book will help those parents feel less alone, and give them confidence to ask for the help they need. For those not yet sure whether to continue with the pregnancy or not, this book will help them think through their decisions. Family, friends and pastors will gain insight and ideas as they reach out to provide support. Medical and nursing staff and others in the care professions will be encouraged as they see joy and treasure being found amongst grief and heartache, and will garner extra ideas of how they can play their part.
Thankyou to the authors Amy and Debbie, to all the mothers and fathers whose words are used and to all the precious babies whose lives this book celebrates. "Those who sow in tears will reap with songs of joy."





