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Posted on 22 Jan 2014 16:27:24 GMT
H doesn't have COPD. He's got CIDP, can't ever remember what it all stands for, something like Chronic Imuno Demyeliting Poli something or other. It causes a slow paralysis starting from the feet and working upwards. It's caused by the body attacking it's own immune system, it breaks down the neural connections in the muscles. He's been treated for it with imunoglobulin (anti-bodies). There is no cure but the treatment is keeping it under control.He was totally dependent on me for two year and in a wheelchair, but since he started the treatment a year ago he's made good progress. He can now walk around the house without sticks, through he uses two when he's out, can feed himself. wash and dress unaided. He still has limited use of his hands and has no feeling in them.
They check his lungs out,to make sure the breathing muscles are still working. On this visit they said they are completely back to normal. It seems that when you are asleep only your diaphragm is used for breathing, not the chest muscles, so they were worried his diaphragm might not work, but it does.

Posted on 22 Jan 2014 19:41:28 GMT
HC, please tell me his first name and I will take him to prayer service with me.

Posted on 23 Jan 2014 17:14:29 GMT
His name is Allan, thank you for offering to take his name with you.

Posted on 29 Jan 2014 15:08:56 GMT
People who make empty promises.
Those currants never did show up. And now I know for sure they never will. I contacted the person who made the offer (of their own free will, with no hints or request from me) and...the rest was silence.

Why do people do that?

In reply to an earlier post on 29 Jan 2014 16:40:31 GMT
pixie says:
currants Ori? What currants......? Was it an online shop?

Posted on 29 Jan 2014 17:48:46 GMT was a person who used to post on here and disappeared right after they swore black's blue the currants (and other things that they encouraged me to ask for) were "on the way in a day or two."

Now I have a griddle, and no currants. Ergo no Welsh cakes.

In reply to an earlier post on 29 Jan 2014 21:35:19 GMT
She just disappeared off the face of the earth, perhaps someone thought she was getting too involved and warned her off maybe. As long a she,s

Posted on 30 Jan 2014 09:24:24 GMT
Yeah, I know. She had my stats tho, she knew how to reach me. Maybe her OH objected, but hey, she could have told me "I changed my mind" or "I can't afford the postage" or whatever.
Ah, well.

In reply to an earlier post on 30 Jan 2014 09:28:06 GMT
pixie says:
She hadn't been too well Ori....maybe she wasn't able to do it and will contact you later?

Posted on 30 Jan 2014 09:41:36 GMT
Who knows, maybe she crossed the river.
That would make me look a fool, wouldn't it.

In reply to an earlier post on 30 Jan 2014 09:53:29 GMT
Bearman says:
She always seemed very genuine on this forum - I would make the assumption that something significant has happened, and hope that it is not tragic for her. Maybe she has moved house and is in complete upheaval.....

Posted on 5 Feb 2014 08:34:32 GMT
Last edited by the author on 5 Feb 2014 08:35:06 GMT
Amazon Marketplace!!
I ordered a couple of books...was given a delivery estimate of 30 Jan for both. Standard delivery, so OK, yeah.
4 Feb, I write to enquire what happened as the books aren't here.
I get a very snotty email back from one seller saying that as the book comes from the US it will take four weeks, "Please give it time to arrive."
So WHY did they give a false delivery estimate??? If they had said that originally I'd have known what was up.

In reply to an earlier post on 5 Feb 2014 10:08:04 GMT
Bearman says:
I know how you feel. I ordered a personalised valentines gift 10 days ago. The product description states that on receipt of order, the manufacturer will contact you by email for details of required personalisation and orders usually delivered in 6 to 10 days. Since Monday I have been contacting them pointing out what I wanted and asking them to confirm that they have the details and will get the gift to me in times for valentines day. Today I finally received my first response from them confirming that they have the details, but no mention of whether I will get the gift in time. So I now have to go out and buy something else in case the original gift doesn't turn up in time. Why does communication have to be so difficult for some people/companies?

Posted on 9 Feb 2014 00:06:54 GMT
Hello everybody. Feeling completely out of things haven't had time to look at posts for over week. H is in hospital, don't laugh, but he dropped one of the new kitchen work surfaces on his foot! He's got one broken toe and a squashed foot! Because he's got CIDP they are insisting he's stays in until they are happy with the healing, so I'm doing a sixty mile round trip every afternoon. Number one son has got asbestosis/siticosis so is on chemotherapy, his mother in law dropped dead two weeks ago and sadly his wife is a raging hypochondriac at the best of times, so is no support to him. Then to add insult to injury the BBC has changed to a new satellite, so we've lost all the BBC channels. You just do not realize how grounded the BBC is until it's not there. Plus it hasn't stopped raining for a week. Though in comparison to the UK the weather is fantastic, mild just a bit damp.

In reply to an earlier post on 9 Feb 2014 08:28:12 GMT
pixie says:
Oh darling! what a time you've certainly need some must exhausted! So sorry and hope things take a turn for the better really quickly Love and good vibes to son and hubby...take care. xx

In reply to an earlier post on 9 Feb 2014 08:37:36 GMT
Maggie says:
Oh Happy your life seems to be going through a very bad patch just now,I don't know how you are coping, but of course you will. We all have to don't we? There is no choice really you just have to get on with it. I'll be thinking of you and willing you to have strength to cope. Xxxx

In reply to an earlier post on 9 Feb 2014 08:55:35 GMT
Bearman says:
Happy, I'm sending you a big "virtual" bear hug. Try and take 20 minutes a day just for yourself. You will be no use for your family if you burn yourself out. Thinking of you......

Posted on 9 Feb 2014 08:57:30 GMT
I've been dealing with a terrible migraine. Started Friday night at Vespers, to the place I had to cut and run home. (Flourescent lighting!) Spent Saturday in bed. Just now starting to feel right.
DH says it's because we've lost the Beeb. I wouldn't mind paying for it if we could just keep it. Both the Beeb and Sky are stupid, they've been missing out on market-share for years and years. Think of all the money that expats and English speakers would gladly have paid to have it!!

In reply to an earlier post on 9 Feb 2014 09:03:15 GMT
Do not despair Ori! Go to and you have all the TV channels free. I've just been watching BBC 1 and it's great. I was up half the night and found this free site. You can also pay if you want but we are going to try the free service first. Haven't tried to connect the laptop to the TV yet but hopefully it will work.

In reply to an earlier post on 9 Feb 2014 09:17:47 GMT
Oh Happy, we all seem to be in the wars at the must be the time of year. I,m sorry to here of all your troubles and hope that your OH gets well quickly, for your sake if not his. Keep your chin up girl, we are all sending nice thoughts your way.xxxx

In reply to an earlier post on 9 Feb 2014 15:39:26 GMT
Keep me posted on that please Happy!! If the laptop-to-TV hookup works it'd be worth getting one.

Posted on 21 Mar 2014 17:19:39 GMT
AAaaaagggghhh. How I long for the old ways, the simpler life. Wanted to get some new light bulbs today. Life used to be simple, clear or opaque, 40, 60, 100 watts. Now it's large or small fitting, screw or bayonet, long or short, straight, curly or round, daylight, warm white, cool white. LED or otherwise. 7w, 9w, 11w, 15w, or 20w. Then the shops scatter them around, so just as I think I've made my choice I find more elsewhere.

Posted on 21 Mar 2014 17:32:39 GMT
Maggie says:
At least then if you couldn't remember what size bulb was already in the fitting you could just buy a 40watt bulb and make do .Now you have to dismantle the dratted things to find out which of the myriad sizes and styles are what you need. Not much room for guesswork is there. Hey ho I'm feeling my age(and then some)today

Posted on 21 Mar 2014 19:56:37 GMT
And then they tell you that if one breaks it's totally toxic and you have to leave the house and have it detoxed, and I'm not kidding.

Posted on 21 Mar 2014 20:04:34 GMT
Last edited by the author on 21 Mar 2014 20:09:13 GMT
Maggie says:
Yeah, can anyone explain to me how replacing our old light bulbs with toxic bulbs,is caring for the certainly doesn't seem to be caring for the humans.

Edit. Or don't we count
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Discussion in:  cooking discussion forum
Participants:  33
Total posts:  1325
Initial post:  21 Jan 2013
Latest post:  24 days ago

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