Product Description
This is a call to action on behalf of children with disabilities and their families. Voices of mothers and fathers speak to the joys and challenges they confront in raising their children in a climate of scarce resources. In "Battle Cries", Miriam Edelson operates on several different levels simultaneously. She lays out a clear and thorough map of the current services and supports available to disabled children and their families in Canada, followed by a discussion of the various impediments these families face in the effort to achieve true inclusion in society. She explores the challenging lives of families with disabled children in various Canadian locations. Through interviews and insightful commentary based on Edelson's research and her own personal experience, a picture emerges of the woefully inadequate resources devoted to these families. And yet, this is a hopeful book. It provides a passionate call to action and, drawing on the current Swedish model of care, offers a strategy for achieving improved respite care, a crucial service that is at present largely unavailable. Edelson provides an intimate insightful portrait of the experience of raising a severely disabled child, while at the same time offering signposts for a course of action that seeks to improve the lives of these children and their families.