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Product Description
Synopsis
Examing the overlooked subject of non-disabled siblings in families where there is a disabled child, this book details the experiences of these children and explores what it means to them to havea disabled brother or sister. Through family interviews and one-to-one meetings, Peter Burke records siblings' views on issues raning from the everyday social restrictions of their lives and the discrimination they face at school; the difficulties of finding their own identiy in "disabled" families and competition for parental attention; through to their concerns about the future. Putting this within the context of the existing framework of professional practice for sibling and family support services, the author stresses the importance and proven success of sibling support groups as models of empowerment and inclusion, and makes clear recommendations for future practice.
From the Author
This book provides evidence that siblings become 'disability by association', because in being the relative of a disabled brother or sister they encounter social experiences of neglect and exclusion. This may becomes a way of life for the sibling who perceives themselves as disabled by the fact of living in a family with a disabled brother or sister. However, many overcome this negative effect, although some may never do so, so ingrained is the emotional impact of disability on the family, especially in their daily routines. This book tries to explain what happens to siblings and explores experiences that are sometime heart warming, like the child who verbally defends her disabled brother at school, and sometimes distressing, as in the case of one boy who can never invites friends home. The latter experience may be pertinent to those siblings who retreat into a kind of isolate existence, developing protective skills in avoiding social situation. Clearly, the experience of disability should be reflected by acceptance, yet, only by recognising that siblings and family members find such acceptance hard to achive, will we make the concept of 'disability by association' redundant.
Examing the overlooked subject of non-disabled siblings in families where there is a disabled child, this book details the experiences of these children and explores what it means to them to havea disabled brother or sister. Through family interviews and one-to-one meetings, Peter Burke records siblings' views on issues raning from the everyday social restrictions of their lives and the discrimination they face at school; the difficulties of finding their own identiy in "disabled" families and competition for parental attention; through to their concerns about the future. Putting this within the context of the existing framework of professional practice for sibling and family support services, the author stresses the importance and proven success of sibling support groups as models of empowerment and inclusion, and makes clear recommendations for future practice.
From the Author
This book provides evidence that siblings become 'disability by association', because in being the relative of a disabled brother or sister they encounter social experiences of neglect and exclusion. This may becomes a way of life for the sibling who perceives themselves as disabled by the fact of living in a family with a disabled brother or sister. However, many overcome this negative effect, although some may never do so, so ingrained is the emotional impact of disability on the family, especially in their daily routines. This book tries to explain what happens to siblings and explores experiences that are sometime heart warming, like the child who verbally defends her disabled brother at school, and sometimes distressing, as in the case of one boy who can never invites friends home. The latter experience may be pertinent to those siblings who retreat into a kind of isolate existence, developing protective skills in avoiding social situation. Clearly, the experience of disability should be reflected by acceptance, yet, only by recognising that siblings and family members find such acceptance hard to achive, will we make the concept of 'disability by association' redundant.
Inside This Book
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Front Cover | Copyright | Table of Contents | Excerpt | Index | Back Cover
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Concordance
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Front Cover | Copyright | Table of Contents | Excerpt | Index | Back Cover
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