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Down Syndrome: Visions for the 21st Century
 
 

Down Syndrome: Visions for the 21st Century (Paperback)

by William I. Cohen (Editor), Lynn Nadel (Editor), Myra E. Madnick (Editor)
5.0 out of 5 stars  See all reviews (1 customer review)
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Review

"This volume is a comprehensive collection of articles representing a wide range of disciplines…it will be a valuable addition to the bookshelves of families, medical staff, educators, and researchers." (American Journal of Medical Genetics, August 15, 2004)

“...a comprehensive compilation of the myriad issues facing individuals with Down syndrome and their families across the lifespan...this book, compared to other tomes of highlights from various conferences, seems to contain more bang for the buck as the issues it covers are extremely pertinent and could stand alone apart from the conferences...this book will stay on my shelf.” (Journal of Genetic Counseling, Vol. 13, No. 1, February 2004)

"This book will be of great interest to anyone wanting to have the latest information about this genetic disorder..." (family2000.org.uk, 9 September 2002)

"...puts foward some of the visions and thoughts in an optimistic way and is therefore recommended..." (Int Jnl of Adolescent Medical Health)

"...puts forward some of the visions and thoughts in an optimistic way and is therefore recommended..." (Int Jnl of Adolescent Medical Health, Vol.15, No.1, 2003)

"I...consider a copy of this book a must for every institutional and personal library." (Journal of the National Medical Association, March 2003)

"...exceedingly valuable for a wide spectrum of individuals: parents, professionals, caregivers, and researchers..." (American Journal of Human Genetics, Vol. 72, 2003)

"...exceedingly valuable for a wide spectrum of individuals: parents, professionals, caregivers, and researchers..." (American Journal of Human Genetics, Vol. 72, 2003)

"...a terrific compendium of the wide array of topics...whatever the challenges that lie ahead...we are much better prepared by the information and vision provided by this excellent book." (Archives of Pediatrics and Adolescent Medicine, May 2003)

"...a useful reference tool for families and service providers." (Human Genetics, No.113, 2003)



Review

"This volume is a comprehensive collection of articles representing a wide range of disciplines…it will be a valuable addition to the bookshelves of families, medical staff, educators, and researchers." (American Journal of Medical Genetics, August 15, 2004)

"This book will be of great interest to anyone wanting to have the latest information about this genetic disorder..." (www.family2000.org.uk, 9 September 2002)

"...puts foward some of the visions and thoughts in an optimistic way and is therefore recommended..." (Int Jnl of Adolescent Medical Health)

"...puts forward some of the visions and thoughts in an optimistic way and is therefore recommended..." (Int Jnl of Adolescent Medical Health, Vol.15, No.1, 2003)

"I...consider a copy of this book a must for every institutional and personal library." (Journal of the National Medical Association, March 2003)

"...exceedingly valuable for a wide spectrum of individuals: parents, professionals, caregivers, and researchers..." (American Journal of Human Genetics, Vol. 72, 2003)

"...exceedingly valuable for a wide spectrum of individuals: parents, professionals, caregivers, and researchers..." (American Journal of Human Genetics, Vol. 72, 2003)

"...a terrific compendium of the wide array of topics...whatever the challenges that lie ahead...we are much better prepared by the information and vision provided by this excellent book." (Archives of Pediatrics and Adolescent Medicine, May 2003)

"...a useful reference tool for families and service providers." (Human Genetics, No.113, 2003)


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12 of 12 people found the following review helpful:
5.0 out of 5 stars A collection of very interesting articles, 22 Nov 2002
By Thomas Paul (Plainview, NY USA) - See all my reviews
(TOP 500 REVIEWER)    (REAL NAME)   
At the NDSS annual conference in Washington, DC in 2000, the sponsors asked the participants to share their ideas. This book is a result of that request. Many of the names will be familiar to those who live in the world of Down syndrome. There are articles by Martha Beck Ph.D. and Siegfried Pueschel M.D. on the role of the family; Len Leshin M.D., Pat Winders P.T., and William Cohen M.D. on health issues; George Capone M.D. and Joan Medlen R.D. on psycho-social issues; and Chris Burke on living with Down syndrome; as well as a host of others. The book also features articles on communication, inclusion, advocacy, research, and self-determination. There is a wealth of very useful information in this book. David Patterson Ph.D. writes about the human genome project and what impact it may have on understanding Down syndrome. Libby Kumin, Ph.D. writes about maximizing communication and language skills in infants, toddlers, children, and adolescents. Patricia Logan Oelwein, M.Ed. writes about math and reading skills in children with Down syndrome. There are also a few lesser known names in here such as John Peter Illarramendi, Jeffrey Mattson, Mia Peterson, and Joshua G. O'Neill, all people with Down syndrome who write about their lives, hopes, and dreams. They remind us that people with Down syndrome can achieve a great deal and can live wonderfully fulfilling lives. This isn't a book for a new parent and it certainly shouldn't be your first book on Down syndrome. There are other books such as "Babies with Down Syndrome," that would be a better choice as a first book. But this book does provide a lot of very useful and interesting information. Anyone interested in finding out what is going on in the world of Down syndrome will want to get a copy.
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