From the Publisher
This is a moving and very lovely little book. The author knows
all about ME at first hand and her voice is the authentic voice of a
sufferer. She is also an ME expert with many publications to her name. A
former head teacher, she runs a charity to support children with ME that
has political support at the highest level. But that's not why you should
read Zoe's Win. If your child has ME, or if you teach children with ME, you
will be glad you did.
From the Author
People ask me how I got into the mind of a child with ME.
It's because I had been in that dark place myself. I knew how it was, what
it felt like, how the body won't work properly, the pain and the other
stuff that 'outsiders' - including most doctors - just don't know. They
haven't been there. I've got the T shirt.
It's funny how characters will get into your head. Zoe got into my head and
started talking. She would tell me things. One day, when she was trying to
eat something, she told me: 'The toast tastes like sawdust, it's so hard to
chew. it's making my jaw ache. I never knew it took so much energy to chew.
I'm getting breathless too... I can see myself in the kitchen mirror. My
face is a horrible colour, like dough that hasn't been cooked. And down one
side it feels like a lump of dough, not like skin at all. And now my left
eyelid's twitching too, just like my legs - Oh what? I've knocked the soup
bowl onto the floor. Oh, yuk. What a mess.' In between all this, her mum
was trying to sort things out, get the doctor - and clear up the sloppy
mess on the floor! Never fear. Things look up for Zoe - and her swimming
teacher - the one who didn't understand at first - ends up a real-life
hero. I can't say any more or I'll give the drama