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What They Don't Tell You About Alzheimer's [Kindle Edition]

Robert Bernstein
4.5 out of 5 stars  See all reviews (20 customer reviews)

Print List Price: £4.95
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Book Description

A son's experiences taking care of a mother with Alzheimer's Disease, supervising her care -- at an assisted living facility and a nursing home -- and being there at the end. The story is told in a manner that hopes to focus the reader's eye on the insidious nature of adult mental dysfunction, while at the same time offering useful insights and advice on the responsibilities of caregiving and the supervision of care.

Alzheimer's and its evil brain-robbing cousins are a scourge that rip our loved ones from us piece by piece. When the disease is firmly in control, there are no silver linings or wonderfully shared moments. At best, we can strive for an approach that will leave us free of missed opportunities and regret.

"I found this book so valuable that I emailed the author to commend him on this work.
It is recommended reading for all families of residents at our care home." [Resthill Elderly Care, Centurion, South Africa]


[174 pages in print.]

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Product details

  • Format: Kindle Edition
  • File Size: 13829 KB
  • Print Length: 175 pages
  • Simultaneous Device Usage: Unlimited
  • Sold by: Amazon Media EU S.à r.l.
  • Language: English
  • ASIN: B006SMHFTI
  • Text-to-Speech: Enabled
  • X-Ray:
  • Word Wise: Enabled
  • Enhanced Typesetting: Enabled
  • Average Customer Review: 4.5 out of 5 stars  See all reviews (20 customer reviews)
  • Amazon Bestsellers Rank: #223,104 Paid in Kindle Store (See Top 100 Paid in Kindle Store)
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More About the Author

Bob Bernstein is a former executive fundraiser turned professional boat captain. He has worked as a commercial fisherman, charter boat skipper, captain-for-hire, camera boat operator, and boat wrangler for Hollywood. His technical marine articles, columns, short stories and features have appeared in magazines and books since 1987. The novellas, Beneath Cold Seas and Mother Lode - first serialized in Offshore Magazine in 1992 - are available at Amazon's Kindle Store, as is Bernstein's memoir, What They Don't Tell You About Alzheimer's, an informative story about taking care of a mother with Alzheimer's Disease. What They Don't Tell You About Alzheimer's held the top two spots on Amazon's Top 100 Kindle Books on Aging for over seven weeks and rose to the top 25 on Amazon's Top Ten 100 Memoirs.

Stowaway, the sequel to Bernstein's debut mystery novel, Calamity, is due out in late 2014, as is his science fiction thriller, The Ring Shepherd.

Are We Sinking Or Are My Legs Getting Shorter is a "light read" collection of articles and anecdotes for new boat enthusiasts, while more experienced vessel owners will find a more thorough examination of boat systems, equipment, and gear in Boat Tech.

Bernstein continues to work on the waters of Penobscot Bay, Maine. He writes from his home in Tenants Harbor. For more information visit him at the following websites:

www.goodreads.com/captbgb
www.seabgb.com
www.alzheimersmemoir.com
www.captaingrandeangil.com

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Customer Reviews

Most Helpful Customer Reviews
19 of 19 people found the following review helpful
5.0 out of 5 stars Highly recommended 14 Jan. 2012
By Mike
Format:Kindle Edition|Verified Purchase
I found this frank account of a son's experience of caring for his mother with dementia a very moving and informative story. The author has an engaging style of writing and it didn't take long to read the book. Each chapter is quite short and leaves you wondering what is going to happen next.
The first half of the book describes the slow decline experienced by the author's mother and the great efforts made by her son to help. The tendency for most families to deny that some form of dementia could be an explanation for forgetfulness or odd behaviour is explained well. A very useful and honest insight into the quality of care provided by the care/nursing homes features in the last sections of the book.
Set in the areas of New York and Maine, it is a story of an american family having to deal with a debilitating disease and, for most of the time, coping well with the challenges. A must read for anyone wanting to gain a better understanding of the illness without getting bogged down with medical terms or a series of case studies. Photos of members of the family are provided at the end of the book.
Glad to see that the book is also available as a paperback which I have recently purchased and was very pleased with the presentation.
If you have read and liked a similar book, Dementia and Mum-Who Really Cares? by Michael Fassio, then you will definitely appreciate this very useful and easy to read account by Robert Bernstein.
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16 of 16 people found the following review helpful
5.0 out of 5 stars Sensitively written 29 Jan. 2012
By Pat
Format:Kindle Edition
I thought that this book was written very sensitively. Death can be a difficult subject and the author expresses his thoughts well both on the loss of his father and the decline in health and loss of his mother.

As the author says, no-one can really tell you what having Alzheimer's is like because no-one ever comes back from it. It's always difficult deciding the 'right' action when the person you are caring for cannot speak for themselves and Mr Bernstein certainly seems to have done the best he could for his mother with the information and resources available. I would imagine that this book would be informative for anyone in a similar situation caring for a close relative or friend.
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30 of 31 people found the following review helpful
5.0 out of 5 stars A moving and honest account 15 Feb. 2012
By Bookie TOP 100 REVIEWER
Format:Kindle Edition|Verified Purchase
Mr Bernstein has tackled a very difficult and emotive subject with compassion, strength and above all, love. He clearly cared deeply for his parents and gives a frank account of the effects of cruel and debilitating illness. The prose is very easy to read. He tells the story in such a way that his mother remains a strong and dignified character. She would be proud of his writing and her story deserves to be told. I'm pleased I read this book and although it's not always comfortable reading, we can all take something positive from it. Thank you Mr Bernstein.
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8 of 8 people found the following review helpful
5.0 out of 5 stars What They Dont Tell You About Alzheimers 15 Mar. 2012
By Lady B
Format:Kindle Edition
This book has really helped me, my mum was diagnosed with alzhiemers , the doctors and nurses are really surportive but no one can tell you what is or is not going to happen,even thought we know the out come in the end. this book has helped me a great deal in coming to terms with my mums illness ,whilst reading the book i could see alot of similarity with my mum and it has helped me to be a lot more understanding, inparts it was sad reading but real life does not always have happy endings.
I would recommend this book to any one in the same position as myself, it does help you understand what is or will happen,it has helped me and i am grateful to the author for writing his experiences down , this must have been exceptionally hard to do.
I thank him very much

Lady B
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5 of 5 people found the following review helpful
5.0 out of 5 stars Thank you 21 April 2012
Format:Kindle Edition|Verified Purchase
A frank, honest account of dealing with this terrible disease. It is only one family's journey however it helps to bring many things more clearly into focus. Nowhere else have I found such an honest, unaffected account which has remained unmarred by avoiding being overly sentimental although is still very touching. It is unbelievably refreshing. We are currently on our own journey but this book has been both informative and helpful. I hope that it was perhaps as cathartic for Mr Bernstein in writing this book as it was helpful in reading it. And it is definitely worth reading. Thank you.
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1 of 1 people found the following review helpful
5.0 out of 5 stars How to find the words... 7 Aug. 2012
Format:Kindle Edition
I know here i'm supposed to discuss the quality of writing and information given in this book but for me it just wasn't about that.

My grandfather suffered with dementia and died on my 9th birthday. trust me when i say its terrifying as a child seeing a man who cannot talk or communicate in anyway. At that age dementia is a word that makes no sense. The 1 memory i clearly have of him is his stare. even at 7 or 8 you can tell when someone is truly scared. he was.

What this book has provided for me is understanding and weirdly a little closure. i have read countless web pages on dementia and similar illnesses but it didnt really help me understand that stare full of fear my grandad had.

I am not ashamed to admit that i cried several times whilst reading this book but i also laughed. it reminded me of silly things my grandad did early in his illness.

If you have your own personal experiences with these types of illnesses, you will find true support and understanding in this book. its a crazy rollercoaster of emotions that is written in such an emotive and geniune way.

Thankyou.
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Most Recent Customer Reviews
2.0 out of 5 stars This book tells you less than most
It's ok that's as far as I'd go this book if you want an upside or to feel more informed its ok to start learning about Alzheimer's
He is a good son very good
Published 2 months ago by cheryl berridge
5.0 out of 5 stars Excellent
Very difficult to read . So glad I read the book .
My mother has Alzheimer's. Robert Bernstein has a great understanding of the condition.
Glad I live in the UK. Read more
Published 3 months ago by poppy k
5.0 out of 5 stars This made me think about Alzheimers and the effect it has on the...
I know about Alzheimer's and the effects it has on people, but I have never really stopped to think about the effects it will have on the friends and family. Read more
Published 9 months ago by Ian
5.0 out of 5 stars excellent
My kind of book very sad but true .I only read true stories and this was just that an excellent eread.
Published 22 months ago by Mrs Susan Tolley
4.0 out of 5 stars If only I'd read this sooner
This is great read and reference for anyone caring for a loved one with Alzheimer's or dementia.
From personal experience with my father, it explains a lot of things and is... Read more
Published on 26 May 2013 by Charlotte Fryer
5.0 out of 5 stars Alzheimers
Very good informative read. A good insight on what one goes through when dealing with someone that has this awful condition.
Published on 14 Mar. 2013 by Kim P
5.0 out of 5 stars Well written
A real eye opener , written with care , I downloaded this because a close relation has Alzheimer's . Read more
Published on 8 Nov. 2012 by Angela
5.0 out of 5 stars Honest and moving
I am currently studying to be a MH Nurse and bought this book as part of my research for an exam. I wanted to get a different perspective to the rather cold clinical ones... Read more
Published on 3 Oct. 2012 by Dragonfish
4.0 out of 5 stars A book about love
I have just finished this book on Kindle and found it very compelling reading. The most significant and moving thing about the book for me is the love and dedication shown by the... Read more
Published on 4 Aug. 2012 by Scribe
5.0 out of 5 stars A well written read!
I stumbled on this book as a free Kindle download and could not put it down. Having recent experience of having to place my dear aunt in a care home so many parts of this book are... Read more
Published on 30 July 2012 by lizzie2896
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