Women Living with Fibromyalgia (I hope this isn't a dupe; I commented without signing in & don't think it posted). This is the 1st book I purchased after diagnosis with Fibromyalgia 10 years ago. I also checked out 2 others by Drs. from the library for more "clinical" data. I knew I would want this forever, to refer back to and make notes in. It's kind of like having a "support meeting" from my bed. I was really suffering with the idea of losing my Database Career, and the prospect of a life of pain.
I can only read a little at a time, because I was in early experimentals of Neurontin and especially Lyrica for Fibro. They have a side effect called Diplopia (listen to the sweet voice in the commercials mentioning blurred vision). I know I'm off track but I tell Everyone - my eyes point out now when I'm tired. Being an insomniac LOL, that means I haven't read a full chapter of a book in 9 years.
Sorry....anyway, finding out what these REAL patients had to say in their stories made me actually cry with joy just knowing I'm Not Crazy and not alone!! Later on, when I continued to refer back to it, I had been experiencing all kinds of other odd symptoms and wondered if I was just falling apart in my 40's. I learned from a high percent of the stories that other women with Fibro have the same symptoms (which I had never known about). This is one reason why it is good to keep referring Back to it.
Another wonderful point, as I mentioned is that when I read from it I don't feel so alone. Friends and family can just not really understand; it's not their fault. From what I remember, they conducted a large survey and used the results to compile the book, and decide on stories to use.
Tonight I decided to do a search for similarities/difference between Fibro. and Chronic Myofacial Pain Syndrome. Over the last few years or so, I have had additional symptoms that are more painful and "Different" than before. Since I'd heard so many times that Fibro. is not Progressive (should not get Worse), I wondered if I now had Another problem. I ran it passed Drs. and family - who blew me off. I couldn't believe my eyes when I did the search and started seeing all the symptoms I now have / never saw listed as Fibromyalgia / listed under Myofacial. I think that's what caused my pain to increase so much that I started living in my room 95% of the time, quit driving or wanting to go places, etc. I have never had "remissions" and bad a bad day here and there.
It's constant even with pain meds. they had to put me on when I turned out to be allergic to muscle relaxers and anti-depressants. The reason I began my curious quest though I really didn't know how, is because if there is another problem - that could mean there is different treatment and/or things I should or should not do. For example, I saw an "Urgent Notice" that said: If you HAVE Myofacial, the Physical Therapy is completely different. It specified to get a diagnosis before starting Therapy....I have an Rx from Pain Management to start therapy very soon. (It was supposed to start last year but I had to be cleared fit after a heart attack and car accident injuries). I've always gone to Aqua Fit classes, but this is for 1-on-1, in and out of the pool with a Therapist - intensive!!
You may wonder why I'm tying all this in to comments re: this book. A co-author of it (Devin Starlanyl), wrote 2 books comparing the 2 Syndromes. They are over 10 years old now so I'm waiting anxiously for the new Edition to be released later this year. Sorry I babble on so much but also BiPolar-Manic :) If you're feelng worse/different - maybe look into Chronic Myofacial Pain Syndrome or other mimic conditions. Myofacial is not treated as a "mystery/orphan" syndrome, rather now considered an actual Recognized sickness and many people have both. I haven't studied enough yet to know if the Drs. have additional treatment plans for it but would imagine so. My best to all fellow sufferers, Karen