- Paperback: 288 pages
- Publisher: OUP Oxford (2 Feb 2006)
- Language French
- ISBN-10: 0192753363
- ISBN-13: 978-0192753366
- Product Dimensions: 19.6 x 13 x 2.4 cm
- Average Customer Review: 3.0 out of 5 stars See all reviews (2 customer reviews)
- Amazon Bestsellers Rank: 1,002,005 in Books (See Top 100 in Books)
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Product Description
Book Description
A powerful and inspiring story about a family tackling the topical subject of chronic fatigue syndrome
Product Description
Johnnie's brothers have always been her heroes. Big, brave and brilliant, they are out making their way in the world while she is still stuck at home, the little girl of the family. So when they both crawl back, too ill to fend for themselves, everything changes. How will Johnnie cope with these frail, demanding brothers? What strange ventures are going on inside their heads? And what is Johnnie's place in this bizarre new family? From feet as cold as ice to the mysteries of tulips, and from angels with dreadlocks to maggots in the brain, this is a powerful, moving, and ultimately hopeful story about chronic fatigue syndrome, growing up, being a family, life, the universe - and everything.
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Customer Reviews
Most Helpful Customer Reviews
6 of 8 people found the following review helpful
Format:Paperback
I chose to read this as I suffer from ME/CFS myself. On the whole it is a good book and reflects how the illness affects the sufferers and their family.
On the down side the characters both had very severe ME and this at times made the story feel a bit unreal. The majority of people with ME do not have it as severely, but are badly affected and cannot lead normal lives, but because they are not totally bed ridden all the time they are dismissed as not ill.
When I first started reading it I kept thinking I would pass it on to everyone I know, so they could understand my illness, but I was soon left thinking, they will still not believe me as I am not as badly affected.
I liked how the book also mentioned peoples atitudes to the illness.
I did find the ending a bit unrealistic too.
On the whole though I felt it was a good book.
Format:Paperback|Amazon Verified Purchase
I bought this book because I have read some REALLY good books by Rachel Anderson and her skill at dealing with sensitive issues is creditworthy. On this occasion she has taken the issue of CFS/ME disorder and treated it like a kind of skeleton to hang a story on - in other words the story is secondary to being some kind of a medical encyclopaedia. The characters seem wooden: their conversations are unrealistic and stilted (Rachel Anderson suddenly seems to be uncomfortable with 'teenspeak'); and the plot is so contrived that the reader can tick off medical symptoms, and public prejudices to the conditions they relate to, on almost every page. The writing style was also 'stodgy' being too cluttered with direct speech and lacking a sense of pace.
I may be doing Rachel Anderson a disservice, (as I said before I have read some very good books of hers 'The Scavenger's Tale', for one), because the book may get much better towards the end - I'm afraid I didn't finish it!!
I may be doing Rachel Anderson a disservice, (as I said before I have read some very good books of hers 'The Scavenger's Tale', for one), because the book may get much better towards the end - I'm afraid I didn't finish it!!
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