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Los Angeles Times Book Prize for Current Interest
A Salon Book Award Winner
Boston Book Review 1997 Ann Rea Jewell Non-Fiction Prize
A New York Times Notable Book
A Best Book of the Year (People, Newsday, Glamour, and the Detroit Free Press)
Finalist Pen / Martha Albrand Award for First Nonfiction
"Ms. Fadiman tells her story with a novelist's grace, playing the role of cultural broker, comprehending those who do not comprehend each other and perceiving what might have been done or said to make the outcome different." --Richard Bernstein, The New York Times
"Fadiman describes with extraordinary skill the colliding worlds of Western medicine and Hmong culture." --The New Yorker
"This fine book recounts a poignant tragedy ... It has no heroes or villains, but it has an abundance of innocent suffering, and it most certainly does have a moral ... [A] sad, excellent book." --Melvin Konner, The New York Times Book Review
"An intriguing, spirit-lifting, extraordinary exploration of two cultures in uneasy coexistence ... A wonderful aspect of Fadiman's book is her even-handed, detailed presentation of these disparate cultures and divergent views--not with cool, dispassionate fairness but rather with a warm, involved interest that sees and embraces both sides of each issue . . . Superb, informal cultural anthropology -- eye-opening, readable, utterly engaging." --Carole Horn, The Washington Post Book World
"Every once in a rare while a nonfiction book comes along that is so good I want to somehow make it required reading ... The Spirit Catches You and You Fall Down explores issues of culture, immigration, medicine, and the war in Vietnam with such skill that it's nearly impossible to put down ... I finished [it] saddened but enlightened." --Linnea Lannon, Detroit Free Press
"This is a book that should be deeply disturbing to anyone who has given so much as a moment's thought to the state of American medicine. But it is much more ... People are presented as [Fadiman] saw them, in their humility and their frailty--and their nobility." --Sherwin B. Nuland, The New Republic
"Anne Fadiman's phenomenal first book, The Spirit Catches You and You Fall Down, brings to life the enduring power of parental love in an impoverished refugee family struggling to protect their seriously ill infant daughter and ancient spiritual traditions from the tyranny of welfare bureaucrats and intolerant medical technocrats." --Al Santoli, The Washington Times
"A unique anthropological study of American society." --Louise Steinman, Los Angeles Times
"When the Lees hedged their bets in 1982 in Merced by taking Lia to the hospital after one of her seizures, everybody lost. Fadiman's account of why Lia failed to benefit over the years from Western medicine is a compelling story told in achingly beautiful prose." --Steve Weinberg, Chicago Tribune
"A deeply humane anthropological document written with the grace of a lyric and the suspense of a thriller." --Abby Frucht, Newsday
"Fadiman's meticulously researched nonfiction book exudes passion and humanity without casting a disparaging eye at either the immigrant parents, who don't speak English, or the frustrated doctors who can't decipher the baby's symptoms ... The Spirit Catches You and You Fall Down conveys one family's story in a balanced, compelling way." --Jae-Ha Kim, The Cleveland Plain Dealer
"Fadiman's sensitive reporting explores a vast cultural gap." --People Magazine
"Compellingly written, from the heart and from the trenches. I couldn't wait to finish it, then reread it and ponder it again. It is a powerful case study of a medical tragedy." --David H. Mark, Journal of the American Medical Association
"The Spirit Catches You and You Fall Down is Fadiman's haunting account, written over a nine-year-period, of one very sick girl in Merced, California ... What happens to Lia Lee is both enlightening and deeply disturbing." --Kristin Van Ogtrop, Vogue
"Fadiman gives us a narrative as compelling as any thriller, a work populated by the large cast of characters who fall in love with Lia. This is a work of passionate advocacy, urging our medical establishment to consider how their immigrant patients conceptualize health and disease. This astonishing book helps us better understand our own culture even as we learn about another--and changes our deepest beliefs about the mysterious relationship between body and soul." -Elle
"The other day, I picked up a book I had no intention of buying. Eight hours later, having lifted my head only long enough to pay for the book and drive home, I closed Anne Fadiman's The Spirit Catches You and You Fall Down and started calling friends ... This is an important book." --Wanda A. Adams, The Honolulu Advertiser
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The parents come from a deeply spiritual society. They believe that seizures occur when one's soul is freed from the body by an evil spirit, and only resolve when the soul returns.
Epilepsy (their phrase for which is translated as The Spirit Catches You and You Fall Down) marks their daughter out as special in their eyes, and that of their community. It makes her a potential shaman, as shamans have the power to cross over between the physical and spiritual world, and therefore confers status on the child, and by reflection, the family.
On the other hand, the emergency paediatric services have had to deal with a family they see as "backward", "stone-age", and, being non-English-speaking, hopelessly incompliant with one therapeutic manoeuvre after another.
What is interesting is that both sides are entirely convinced that they know what is best for the child. For example, to call her soul back (the treatment of choice for status epilepticus) involves a lengthy ceremony conducted by a shaman involving loud ritual chants and drumming and the sacrifice of live chickens. Understandably, the medics are reluctant to allow this in their PICU.
The parents feel alienated and hurt by the doctors, who keep promising to make the child well. They come to feel that "too much medicine" is what makes the child ill. They can't being back their daughter's soul without the ceremonies which they are prohibited from having.
The doctors feel frustrated and angry at the parents, whom they see as backward, uncaring and endlessly non-compliant. Why don't they just give the anticonvulsants instead of their herbal decoctions?
Overall this book is a fascinating study of the collision of two irreconcilible cultural belief systems. The child is caught in the middle. There is no happy ending. Eventually the child is forcibly removed from the parents and placed in foster care, where her drug therapy can be enforced. The parents don't understand this and begin to fear that the police will come to steal their other children as well.
What I took from this book (I am a doctor) is a greater understanding of belief systems, and the realisation that our own belief in Western medicine is a culturally-sanctioned belief system. In that sense, it is not so different from a religion, with its secrets revealed only to the initiates, its high priests, and its arcane rituals.
The book is heartbreaking, although there is very little bias, and both sides are presented as striving to do what they feel is best for the child.
Well worth a read for anyone with an interest in medicine or ethnology.
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