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The Diving-Bell and the Butterfly [Paperback]

Jean-Dominique Bauby
4.5 out of 5 stars  See all reviews (106 customer reviews)

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Book Description

2 April 1998

The diary of Jean-Dominique Bauby who, with his left eyelid (the only surviving muscle after a massive stroke) dictated a remarkable book about his experiences locked inside his body. A masterpiece and a bestseller in France.

On 8 December 1995, Jean-Dominique Bauby suffered a massive stroke and slipped into a coma. When he regained consciousness three weeks later, the only muscle left functioning was in his left eyelid although his mind remained as active and alert as it had ever been. He spent most of 1996 writing this book, letter by letter, blinking as an alphabet was repeatedly read out to him. The Diving-Bell and the Butterfly was published in France on Thursday 6th March 1997. It was immediately hailed as a masterpiece. And then, three days later, he died.

The Diving-Bell and the Butterfly, which records Bauby’s lonely existence, is probably the most remarkable book about the triumph of the human spirit, the ability to invent a life for oneself in the most appalling of circumstances, that you will ever read



Product details

  • Paperback: 144 pages
  • Publisher: Fourth Estate; New edition edition (2 April 1998)
  • Language: English
  • ISBN-10: 1857027949
  • ISBN-13: 978-1857027945
  • Product Dimensions: 17.6 x 11.2 x 1.4 cm
  • Average Customer Review: 4.5 out of 5 stars  See all reviews (106 customer reviews)
  • Amazon Bestsellers Rank: 234,979 in Books (See Top 100 in Books)

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Product Description

Amazon Review

On December 8, 1995, Jean-Dominique Bauby's life was forever altered when a part of his body he'd never heard of--his brain stem--was rendered inactive. The Diving Bell and the Butterfly, his exquisitely painful memoir, is neither a triumphant account of recovery nor a journey into the abyss of self-pity. Instead, it is a tender testament to the power of language and love. At 43, Bauby was defined by success, wit and charisma. But in the course of a few bewildering minutes, the editor-in-chief of French Elle became a victim of the rare locked-in syndrome. The only way he could express his frustration, however, was by blinking his left eye. The rest of his body could no longer respond. Bauby was determined to escape the paralysis of his diving bell and free the butterflies of his imagination. And with the help of ESA, "a hit parade in which each letter is placed according to the frequency of its use in the French language," Bauby did so. Visitors, and eventually his editor, would read each letter aloud and he would blink at the right one. Slowly--painstakingly-- words, sentences, paragraphs and even this graceful book emerged.

Bauby relays the horrors and small graces of his struggle, which range from awaking one day to discover his right eye being sewn shut to realising the significance of Father's Day, a holiday previously absent from his family's "emotional calendar": "Today we spent the whole of the symbolic day together, affirming that even a rough sketch, a shadow, a tiny fragment of a dad is still a dad." The author makes it clear that being locked in doesn't kick open the doors of perception, but The Diving Bell and the Butterfly is nonetheless a celebration of life. Jean Dominique-Bauby died of a heart attack on March 9, 1997, two days after his book was published in France.

Review

‘The most remarkable memoir of our time.’ Cynthia Ozick

‘Read this book and fall back in love with life.’ Edmund White

‘A staggering piece of work. It represents an almost inconceivable act of generosity, the gift of the mind and the spirit for which writing was designed.’ A. L. Kennedy

‘One of the great books of the century.’ Financial Times

‘Everyone in the country should own at least one copy.’ Guardian

‘We listen, because what he has to say goes to the core of what it means to be human.’ Robert McCrum, Observer

‘The most extraordinary book of the year.’ Daily Telegraph

'Life-enhancing and devastating in equal measure – everyone should read it.' Gloss magazine

--This text refers to an alternate Paperback edition.

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Customer Reviews

Most Helpful Customer Reviews
57 of 57 people found the following review helpful
By Marlyly
Format:Paperback
I find it hard to write about this novel, for what can I say that can justify the feelings & emotions this book invokes in the reader. A novel written by a man whose only form of communication is to blink his left eye when a visitor recites the correct letter, where Bauby must have spent hours agonising over every word, sentence and paragraph whilst many writers will write chapters in half the time, similarly, as a reader I find that I also spend more time pondering over each sentence, giving myself time to digest what has just been said - this is truly a novel where every word counts, because the writer didn`t have the leisure of wasting pages with words that have no worth. This may be a short novel, but it takes time to read, not only because you'll want to re-read whole paragraphs at a time, but because, on countless occasions, you'll read something that will make you pause for a while, put the book down, and simply sit and think. Bauby's own contemplation rubs off on the reader, where he cannot fill in all the details, the reader appeals to their imagination and allows their mind to fill in the blanks of horror and fear.

Bauby's style deserves a mention. Whether through skill, detachment, selflessness, or purely based on the difficulty of communication, Bauby adopts a style that is not only honest, but subtle, to the point, without pity, and riddled with dark humour. If this was an overly dramatic novel full of misery and self pity then I would not be wasting my time writing a review. One thing that really struck me while reading this book was Bauby's sense of acceptance of it all. He describes his life, his routine, the inconsiderate behaviour of members of the hospital staff, his dreams, his family, his friends with such an acceptance and down to earth honesty that you can't help but to respect his character, which make his moments of weakness and grief all the more powerful and touching - because this is a man who does not feel sorry for himself even though he has more right to than most.

The novel itself is an easy (language wise, not content), short read that is highly reminiscent of children's books with it's large type and short chapters. Every sentence is to the point in such a way that you cannot simply skim paragraphs but have to devour them carefully, sentence by sentence. Bauby is a clever, witty man and much of his humour can easily be unnoticed by skim reading. Many of the sadder moments are laced with jokes, and though at first it may seem like Bauby is protecting the reader by making his situation seem not so bad, after a while you begin to suspect that it's not for anyone else's benefit but his own, because without this humour, he'd have to accept just how dire his situation is. It's a way for him to cope, and prevents the novel from becoming an incredibly dark read. One of these moments is when he talks about how, before the stroke he wanted to write a novel based on `The Count Monte-Cristo' and thought it was a funny coincidence how he has turned out like the main character of the novel (paralysed). Now, he is planning to write a vast saga where the main character is a runner, with the chapter ending with, `You never know. It might work'. Though it may seem like a dismissive, half hearted comment, when you look back and see how hard he must have laboured to write this chapter to get to this point, you realise that, through the joke, he's actually being serious.

There's no doubt this is a touching novel. The last lines speak for themselves. As I mentioned at the start, this is a hard novel to talk about content wise, and in a way I feel that to try and analyse what Bauby has said is to dilute it, to take away from it's essence. Really, it's a novel that speaks for itself if you let it.

A Critic once said, `Read this book and fall back in love with life'. If I were you, I' take his advice.
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35 of 35 people found the following review helpful
By A Customer
Format:Paperback
I know you're not supposed to focus on the author and their situation rather than the actual book, but in this case it's hard not to. I have read this book several times and each time it has the effect of making me profoundly glad to be alive. Bauby is keenly aware of his exclusion from the things in life which we take for granted every day - a hot bath with a cup of tea and a good book, for example - and makes the reader realise exactly how much we do take for granted, things that we should be so, so grateful for if ever we were, like him, unable to ever experience them again. As well, it is an excellent book in itself: movng and beautifully written, and showing clearly the humour and the courage of the writer in the hardest and most horrible of situations. It is also a testament to the strength of the mind and consciousness: trapped within his head, Bauby revisits every aspect of his past and conjures up tastes, sounds, smells and sensations. The book is enjoyable and easy to read; I would definitely recommend it to anyone.
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54 of 55 people found the following review helpful
5.0 out of 5 stars A remarkable insight and a very moving book 21 Nov 2006
Format:Paperback
The Diving-Bell and the Butterfly is a truly extraordinary book and gives us a unique insight into a thankfully rare condition known as locked in syndrome. In 1995 Jean Dominique Bauby, Editor in Chief of Elle Magazine, suffered a massive stroke which rendered him completely paralysed and speechless. Communicating by blinking his left eyelid he painstakingly dictated this book and died two days after its publication. The ability of Bauby to keep his composure in the face of such a terrifying experience seems to be attributable to a futile belief in his ultimate recovery and a side effect of this syndrome where sufferers do not appear to experience terror, rather tranquillity tapered by sadness. Few sufferers have expressed a wish to die thus demonstrating the strength of the human spirit and the triumph of hope over adversity. There are moments of deep sadness and one of the most poignant passages describes father's day on the beach when Bauby longs to reach out and hug his young son. However, at times the book is a celebration of his former charmed life and the richness of his narrative is remarkable as he recalls his past in vivid detail. Very thought provoking and well worth the read
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Most Recent Customer Reviews
4.0 out of 5 stars The Diving-Bell and the Butterfly
This book deserves a 4 out of 5 rating; it should be read by anybody working with disabled persons who have lock in syndrome. Read more
Published 23 days ago by Des
5.0 out of 5 stars excellent
wanted to re-read this book and was just as good! Inspiring. beautiful and the actual copy I recieved was better than the image displayed here.. as it was plain.
Published 1 month ago by Pen Name
5.0 out of 5 stars love it
A generally good product exactly what i expected, i knew what i was looking for and got exactly that
it was in excellent condition. A truly moving book.
Published 2 months ago by Shem
5.0 out of 5 stars The Diving-Bell and the Butterfly
Well written and extremely moving story, it's a 'must read' as far as I am concerned. Anyone who is afraid of having a stroke needs to read this book!
Published 4 months ago by GB
3.0 out of 5 stars Didn't like it
didn't like it and thought it was rubbish still that's me I suppose, thin book but couldn't be bothered up to you though
Published 4 months ago by Mr. R. L. Davies
4.0 out of 5 stars I have read the book and seen the film!
Okay well if you do not like massive books or too much reading this is for you! After seeing the film I wanted to read the book to see what it is like and what a man who can only... Read more
Published 5 months ago by Mr. D. Carran
5.0 out of 5 stars The Diving-Bell and the Butterfly
The condition of the second hand book received lived up to its description. A book with an insight into the indomitable spirit of the human being, underlying the frailty of the... Read more
Published 7 months ago by brigida
5.0 out of 5 stars Amazing, inspiring
I was told about this book by a friend, I didnt know anything about it but thought the story sounded amazing. I read in 2 days, the book is quite short, but very inspiring. Read more
Published 7 months ago by Elp1983
4.0 out of 5 stars Book: The Diving Bell and the Butterfly
Touching and very succinct.. gave a little inset into 'locked in syndrome'. Perhaps a little too short! Would have really enjoyed more!
Published 8 months ago by Siobhan Monaghan
3.0 out of 5 stars Living life with locked in Syndrome
Even though this is a tragic true story and the time it took to produce this book one character at a time is extraordinary, it leaves me slightly disappointed in the fact that I... Read more
Published 10 months ago by booklover
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