As someone who suffered for 8 years, 24/7 with IC, I wish my urologist had this book as a resource to offer 10 years ago. Men get Interstitial Cystitis (IC),more often then realized, instead misdiagnosed with prostititis. When my brother got bladder cancer, only then my urologist decided to look inside my bladder. Conclusion: You don't have cancer. Your bladder is a mess, you have IC, and I don't know what to tell you to do! Learning about IC and its obvious symptoms, I asked him why he didn't consider IC when his treatment for prostititis was ineffective... his response ...because men don't usually get it! I didn't say the obvious..I'm a man, I have the symptoms, and you know that men get it, even though perhaps less often then women.
I facilitate a family physician support group...they cringe re having patients with IC, because of the patient's pain/despair, and feel guilty not knowing how to help. In the horrific history of this disease, some women used to have their bladders removed, but even that drastic mistake didn't produce recovery from the chronic pain and other symptoms. Some women after seeking help from different physicians and not getting it, when finally told by a physician that it was in their head, took their lives. There's not room to add to the experiences of IC patients in not getting help from most physicians... not because the physicians didn't care, but they just didn't understand. Described as a disease of unknown cause and unknown cure, pioneers such as Amrit Willis and others, including Wendy Cohan, who overcame their own IC, have proven it can be cured. After 8 years of daily and nightly torture with IC, I got my cure by having 3 nerve blocks, recommended to me by a woman friend, not a physician. Subsequently I mentioned to a woman friend, who is a pain doctor, about my cure. She said, that's interesting, we don't think of epidurals for IC. I said nothing, hoping she would think about it!
In this book reference is made to "Solving the IC Puzzle" by Amrit Willis having a wealth of information which is helpful for many, which it is, but this new book by Wendy Cohan is at least 10 years more up to date, clearer, and easier to read. Chances are, if you're even reading about this specialized topic, you have IC or are related by family or friends to the topic so you know how awful the disease is in destroying quality of life. If you don't know, Google it! This book is a godsend...a gift for relieving suffering and restoring quality of life. Besides reading it, and gifting the book to others suffering from IC & chronic pelvic pain, the likely most effective use for it would be to inform or gift family physicians, and especially urologists with the book. It's not a disease most people who have it wish to talk about to others. Thank you recovered IC nurse Wendy Cohan!