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Ramsay's Disease - Myalgic Encephalomyelitis (ME) and the Unfortunate Creation of 'CFS' [Kindle Edition]

Leslie O. Simpson PhD , Nancy Blake BA CQSW
4.8 out of 5 stars  See all reviews (4 customer reviews)

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Product Description

Product Description

The contribution of haemorrheology to the understanding of and potentially effective treatment for the symptoms of ME (in its many aliases!) continues to be ignored by the medical profession, therefore unavailable to people who have ME. Oddly-shaped red blood cells (clearly visible in micrographs) can't deliver oxygen through the microcirculation, causing dysfunction in muscles, cognitive areas of the brain, and the endocrine system. Fish oil, genuine EPO, Vitamin B12 as hydroxocobalamin, and pentoxyfilline have each been found to address this issue in a significant proportion of people with ME, very much improving their well-being.
In the meantime, the name-game rages, as psychiatry fights to maintain its current hold on the definitions and treatment recommendations for very sick and potentially disabled people. Complete rest right at the start gives the best outcomes; ME is defined by the fact that physical/mental exertion makes it worse. Yet, under the wide psychiatric umbrella of 'somatoform disorders' sufferers are assured that their illness is caused by paying too much attention to normal sensations, and that changing their 'false illness beliefs' and applying Graded Exercise Therapy will make them better. Politicians and the media enthusiastically and irresponsibly wave the flag for this point of view, while people with ME suffer the consequences.
Dr. Simpson describes his years of research and the history of the re-naming, while Nancy Blake, who ascribes her virtual recovery from ME to ruthless laziness and taking the supplements Dr. Simpson recommends, puts a strong case for a reversal of current policies to do with ME and disability. Which, she asks, will save the most money - letting people who have ME rest for six months, thereby setting the scene for (albeit protracted) recovery, or forcing them to exercise themselves into permanent disability?

Product details

  • Format: Kindle Edition
  • File Size: 520 KB
  • Print Length: 300 pages
  • Sold by: Amazon Media EU S.à r.l.
  • Language: English
  • ASIN: B00875TLB4
  • Text-to-Speech: Enabled
  • X-Ray:
  • Word Wise: Not Enabled
  • Average Customer Review: 4.8 out of 5 stars  See all reviews (4 customer reviews)
  • Amazon Bestsellers Rank: #355,007 Paid in Kindle Store (See Top 100 Paid in Kindle Store)
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More About the Author

Social worker for 25 years
Principal Officer Health for 3 years, planning mental health care.
UKCP Accredited Neurolinguistic Psychotherapist for 20 years.
Recovering from ME/CFS since 1986

As an expert in mental health issues, I know without any doubt that ME/CFS is not a mental health issue. It is a serious,disabling, multisystem illness, and current treatment recommendations are the opposite of helpful.

I am undertaking a Ph.D. on the conflicting ideas about ME/CFS, particularly investigating how the psychiatric concept gains influence despite medical evidence and the testimony of patients.

My 'Beginner's Guide' is based on the premise that Ramsay's definition, and treatment recommendation for complete rest from the onset is essential advice for anyone diagnosed with ME/CFS.

Everything I wrote in 'A Beginner's Guide' seems to be supported by subsequent research and patient reports. At the same time, the idea that CBT and Graded Exercise Therapy are appropriate treatments seems to be gaining influence, notably in Denmark and the U.S. For patients, this is a desperate situation.

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4.8 out of 5 stars
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Most Helpful Customer Reviews
8 of 8 people found the following review helpful
5.0 out of 5 stars Exposes the War on ME Science 15 Dec. 2012
Format:Kindle Edition
This is an important book in that it combines promising treatment information with, even more importantly, warnings about the "treatment" that makes ME much worse.

My strength is not the science, so I can not vouch for it. But what I read here accords, at least in the broad outlines, with much of the best science and clinical advice. For example, anemia has been shown in ME and there is much theoretical and clinical support for B12, fish oil and other supplements recommended.

Far, far too few works meant to help patients explain that the supposed treatments of CBT and graded exercise, make the disease worse. I am speaking here of the type of CBT pushed by a small cabal of insurance lobbyists, trained as psychiatrists and posing as scientists. This CBT aims to convince the ME patient that she does not have a physical disease and the only way to get better is to exercise more and more and more. Since the hallmark of ME is post-exertional morbidity, ie that exercise makes the disease WORSE, this is the exact opposite of what must be done to help ME patients. Thank you to the authors for exposing this fraud.
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5 of 5 people found the following review helpful
5.0 out of 5 stars A really useful book 6 Feb. 2013
Format:Kindle Edition
I found the book helpful and encouraging for those whose illness is ME. Like the authors, I cannot understand why haemorheology is ignored as an area of research. As someone who has this disease, I plan to try and have my red blood cells checked even if I have to pay for this test privately! I'm hoping Dr Simpson's supplement suggestions will help me improve the quality of my life as I already try to do most of the other recommended strategies. Here goes!
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5 of 5 people found the following review helpful
By Suella
Format:Kindle Edition|Verified Purchase
This book is very well worth purchasing. It has given me new and vital information which explains my fatigue symptom. The suggested inclusion of specific nutrients in my diet for this symptom seems to be working for me as well. I've downloaded this and am very glad I did.

The author, Leslie Simpson is dedicated to sharing his research as is his co-author Nancy Blake who gives clear and useful information about dealing with other symptoms and conditions of ME. Her book, a sample of which is available on Kindle is coming out in print very soon and I've pre-ordered it.

This information deserves to be much better known. I plan to share it with CFS and ME specialists around the world.
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4.0 out of 5 stars Ramsay's Disease is a good read 13 Dec. 2014
By JMF
Format:Kindle Edition|Verified Purchase
a little hard going in parts but so worth the read. I am sure if people had Ramsay's disease as a diagnosis rather than CFS they would be taken more seriously. Chronic fatigue is a generalisation and covers many diseases. By reading this book, it makes it far clearer.
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Most Helpful Customer Reviews on Amazon.com (beta)
Amazon.com: 5.0 out of 5 stars  2 reviews
7 of 7 people found the following review helpful
5.0 out of 5 stars Excellent coverage of the history and some politics of ME 3 Dec. 2012
By Dr.GUI, MSDN, retired - Published on Amazon.com
Format:Kindle Edition
I view Simpson work on the deformed blood cells to be very significant and it was very nice to be able to read the full history. I was disappointed that there was no discussion of how low NADH levels cascaded into tight blood vessels and capillaries. This would explain his observations. NADH is produced by E.coli with ME patients having very low levels as reported at Australian conferences.

Supplements with Mutaflor (E.coli Nissle 1917) is done by both Myhill and DeMelier. Some patients report that they cease to have niacin flushes with Mutaflor. (Niacin flush appear to indicate low E.coli levels).

Regardless, this is an excellent history.
4 of 4 people found the following review helpful
5.0 out of 5 stars Exposes the War on ME ("CFS") Science 15 Dec. 2012
By Justin Reilly, esq. - Published on Amazon.com
Format:Kindle Edition
This is an important book in that it combines promising treatment information with, even more importantly, warnings about the "treatment" that makes ME much worse.

My strength is not the science, so I can not vouch for it. But what I read here accords, at least in the broad outlines, with much of the best science and clinical advice. For example, anemia has been shown in ME and there is much theoretical and clinical support for B12, fish oil and other supplements recommended.

Far, far too few works meant to help patients explain that the supposed treatments of CBT and graded exercise, make the disease worse. I am speaking here of the type of CBT pushed by a small cabal of insurance lobbyists, trained as psychiatrists and posing as scientists. This CBT aims to convince the ME patient that she does not have a physical disease and the only way to get better is to exercise more and more and more. Since the hallmark of ME is post-exertional morbidity, ie that exercise makes the disease WORSE, this is the exact opposite of what must be done to help ME patients. Thank you to the authors for exposing this fraud.
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