Book Description
Your life is coasting along when suddenly you learn that your child has a genetic condition that will completely change their life.
How should you feel;what do you do;how do you tell them? What about your other children? How does a family manage to live with this knowledge?
This book recounts one families experience of living through this situation. It is honest, sometimes emotional, but practical and uplifting. A powerful story to inspire
From the Author
Every day in the UK countless families are told that they have a child or children who have an inherited genetic condition. The repercussions of this news are like the ripples in water, they spread and grow wider and wider. As a parent you think and feel many things; often you fear that you are not normal and that perhaps you are going mad. You suddenly face the challenge of explaining difficult medical facts to a child. Is it possible to help them come to terms with such news, and still be happy? How can you help them live fullfilled lives? What about siblings, how will they feel? How can you prevent your family falling apart. I do not have all the answers, but I can share our experience with you.
I have written this book as a parent who is living through this experience in the hope that in reading it you can appreciate that whilst it is not always easy, that you can still be happy, and most importantly that you can also beome stronger and learn some valuable lessons that will enrich your life.
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