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Product Description
Product Description
Tenth year anniversary edition with an update by the author "A relentless, meticulous, and highly persuasive exposé by a journalist who spent nine years investigating the medical research establishment's failure to take seriously chronic fatigue syndrome... In a chronology that runs from 1984 to 1994, Johnson crams in fact after telling fact, building up a dismaying picture of a rigid and haughty biomedical research establishment unwilling or unable to respond to the challenge of a multifaceted disease for which a causative agent has yet to be found... A compelling, well-documented account..."Kirkus Reviews
About the Author
Hillary Johnson has been a staff writer at Congressional Quarterly, Women's Wear Daily, Life, and was a contributing editor at Rolling Stone. She has written for the Wall Street Journal, the Christian Science Monitor, Town & Country, Vogue, and Vanity Fair, among other publications. In 1987, her series about myalgic encephalomyelitis, a.k.a., "CFS", for Rolling Stone was nominated for a National Magazine Award.
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Customer Reviews
Most Helpful Customer Reviews
10 of 11 people found the following review helpful
Format:Hardcover
Don't read anything else until you have read this book. While it was a slow go for someone WITH CFIDS, persistance paid..and it paid big!
Anyone who wants to know the inside track on CFIDS or many other diseases, the government's waste and incompetence, the cost of ego over the health of the individual, the dollars of insurers being more important than those who are suffering and the ignorance in both the private and political sectors despite the sheer mountains of evidence of this horrible & disabling disease...well, it's all here! The book accounts the last 10 years of struggle for the diseased and the few doctors who try to get this disease the respect and attention it deserves. The book is frightening in its revisiting of the disbelief of the polio and multiple sclerosis sufferers of the past, who also fought to have their illnesses taken seriously. CFIDS is the new plague and everyone who wants to know where their tax dollars go for any disease should read this book.
It is eye opening!! Government, the Medical Profession, Insurance companies and the public go on trial in this book. In spite of the persistence of disbelief, those who say it's "all mental" and "just depression" Ms. Johnson triumphs and shows us that our medical community still have a long way to go. A must read for everyone.
Anyone who wants to know the inside track on CFIDS or many other diseases, the government's waste and incompetence, the cost of ego over the health of the individual, the dollars of insurers being more important than those who are suffering and the ignorance in both the private and political sectors despite the sheer mountains of evidence of this horrible & disabling disease...well, it's all here! The book accounts the last 10 years of struggle for the diseased and the few doctors who try to get this disease the respect and attention it deserves. The book is frightening in its revisiting of the disbelief of the polio and multiple sclerosis sufferers of the past, who also fought to have their illnesses taken seriously. CFIDS is the new plague and everyone who wants to know where their tax dollars go for any disease should read this book.
It is eye opening!! Government, the Medical Profession, Insurance companies and the public go on trial in this book. In spite of the persistence of disbelief, those who say it's "all mental" and "just depression" Ms. Johnson triumphs and shows us that our medical community still have a long way to go. A must read for everyone.
3 of 3 people found the following review helpful
Format:Paperback
This is by far my favorite book of all time!
Thank you, Hillary Johnson, for taking on the monumental task of documenting the egregious crimes against us ME/NEID (Myalgic Encephalomyelitis/ NeuroEndocrine Immune Disease) (aka "CFS"/CFIDS) sufferers by Stephen Strauss and others at NIH and CDC. I was on the edge of my seat even on my fourth reading of this true crime thriller! Your heart will be pumping with adrenaline and outrage as you race through yet another "Oh My God!" moment where another damning piece of evidence is laid bare. As a trial lawyer myself, I've never seen such a riveting and clear case made out of such complicated facts.
Alot of progress has been made since the book came out- basically CDC and others finally admitting much of what Johnson said in the book. I still wonder about some of the things for which Johnson made a great case, but have essentially been forgotten. For example, it seems clear to me that the human retrovirus discovered by Dr. Elaine Defritas is a cause of ME, but it hasn't been discussed in the literature in more than a decade. Ampligen is finally nearing approval; I wonder if it is the wonder drug portrayed in the book. And I continue to see reports in the media of more ME patients dying of previously extraordinarily rare cancers such as Burkitt's Lymphoma, but this continues to be ignored by the scientific journals.
All people with ME and their families would benefit enormously from reading Osler's Web. Osler's Web made me feel the catharsis that a disbelieved rape victim must feel when a skilled prosecuter, in open court, makes it clear beyond a shadow of a doubt that the defendant did in fact rape her; that she is not a liar, but instead a victim of a terrible crime.
Thank you, Hillary Johnson, for taking on the monumental task of documenting the egregious crimes against us ME/NEID (Myalgic Encephalomyelitis/ NeuroEndocrine Immune Disease) (aka "CFS"/CFIDS) sufferers by Stephen Strauss and others at NIH and CDC. I was on the edge of my seat even on my fourth reading of this true crime thriller! Your heart will be pumping with adrenaline and outrage as you race through yet another "Oh My God!" moment where another damning piece of evidence is laid bare. As a trial lawyer myself, I've never seen such a riveting and clear case made out of such complicated facts.
Alot of progress has been made since the book came out- basically CDC and others finally admitting much of what Johnson said in the book. I still wonder about some of the things for which Johnson made a great case, but have essentially been forgotten. For example, it seems clear to me that the human retrovirus discovered by Dr. Elaine Defritas is a cause of ME, but it hasn't been discussed in the literature in more than a decade. Ampligen is finally nearing approval; I wonder if it is the wonder drug portrayed in the book. And I continue to see reports in the media of more ME patients dying of previously extraordinarily rare cancers such as Burkitt's Lymphoma, but this continues to be ignored by the scientific journals.
All people with ME and their families would benefit enormously from reading Osler's Web. Osler's Web made me feel the catharsis that a disbelieved rape victim must feel when a skilled prosecuter, in open court, makes it clear beyond a shadow of a doubt that the defendant did in fact rape her; that she is not a liar, but instead a victim of a terrible crime.
14 of 16 people found the following review helpful
Format:Paperback
Hillary Johnson does a masterful job of documenting the illness and its history at a level understandable by the lay public, yet it is detailed enough to satisfy the medical audience. This book is a meticulously researched and exposes some of the worst science has to offer and the best in patients and medical researchers. As an epidemiologist, I knew little about CFIDS before reading this book. After reading it, I am truly amazed (yet again) at how politics can corrupt and intrude into the scientific process. I highly recommend this book!
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Most Recent Customer Reviews
oslers web
If extensive research is your thing you are in for a treat, subject matter is (dry) at times but the read is well worth it, very interesting book.
Published 18 months ago by Mrs. K. E. Freeman
Should be mandatory reading!
This masterful book should be mandatory reading for every doctor and patient. The National CFIDS Foundation, Inc. recommends it to this day. Read more
Published on 11 Jun 1999
Osler's Web A Good Portrayal
I found Osler's Web to be a good, well-written portrayal of the
disease. I'm a YPWC - Young person with CFIDS, and to lend the
book to people to help them understand my... Read more
disease. I'm a YPWC - Young person with CFIDS, and to lend the
book to people to help them understand my... Read more
Published on 27 Sep 1996
Things you suspected but couldn't possibly have known
Osler's Web tells us things that maybe we suspected (governmental agencies playing politics with our health and our lives) -- and includes details we would never have heard about... Read more
Published on 17 July 1996
A fast-paced "mystery-like" medical history...amazing!!
On the edge of your seat by the second page, this book was a delightful surprise. Anyone who is interested in Chronic Fatigue, the world's health or the rotten things our... Read more
Published on 25 Jun 1996
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