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A Multidisciplinary Approach to Managing Ehlers-Danlos (Type III) - Hypermobility Syndrome: Working with the Chronic Complex Patient [Kindle Edition]

Isobel Knight , Rodney Grahame
4.8 out of 5 stars  See all reviews (17 customer reviews)

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Book Description

The complex effects of Ehlers-Danlos Syndrome (Type 3, Hypermobility), or EDSIII, on a patient's physical and mental wellbeing are extremely challenging for everyone involved, requiring a multidisciplinary care team and enormous dedication from the patient.

This book presents an overview of what it means to be a chronic complex patient, examining the wide range of physiological and psychological implications associated with EDSIII and other conditions such as endometriosis and fibromyalgia. It explores the exercise and rehabilitation work involved in managing the condition effectively, considering a diverse range of medical treatments and complementary approaches including physiotherapy, Bowen Technique and Feldenkrais Method(R). There are contributions and insights throughout from experts in the fields of physiotherapy, rheumatology and health psychology, all of whom have extensive experience of working with complex chronic patients. The author links her own symptoms and experiences to those of other EDSIII patients and discusses how she has been able to reach a point where she can successfully manage the condition.

This book will be essential reading for professionals working with EDSIII and other complex conditions including medical professionals, physiotherapists, occupational therapists, psychologists, counsellors and complementary therapists, and will be of interest to patients with EDSIII wanting to learn more about effective management of the condition.


Product Description

Review

Isobel has once again written an incredibly readable account of her never ending journey dealing with (HMS) and the effect it has on her body and those of fellow sufferers. -- Pilates with Julia blog and Pilates Tree Magazine, Julia Crossman This second book by Isobel Knight on Ehlers-Danlos Syndrome (Type III) is targeted at medical professionals and offers a unique combination of the latest research on the subject plus her own experiences as a sufferer of one the hypermobility syndromes (Type III). Despite the target audience being medical professionals the book will no doubt be read by the vast numbers of people suffering from a hypermobility syndrome who hunger for information. One of the downfalls of having a multi-systemic condition is that often professionals from differing disciplines do not communicate with each other - this book pulls together all of the information available which makes it a must read for all who work with people with Ehlers-Danlos Type III. -- Donna Wicks, Senior Medical Liaison Officer, The Hypermobility Syndrome Association This unique book is recommended for health professionals wishing to gain a lived experience perspective of JHS/EDS III. The author has invested considerable time and energy researching, reflecting and understanding the complexities of this condition. The result is a culmination of an autoethnography with clinical explanations. -- Carol J. Clark, MCSP, MSc, PhD, Lecturer in Physiotherapy, Bournemouth University A fantastic read for anyone living with Ehlers-Danlos Syndrome, especially the Hypermobility type. Isobel's personal account of day-to-day life with the condition provides detailed descriptions and insights on how to cope, backed up by good medical information, I highly recommend. -- Lara Bloom, Development Manager, EDS UK

About the Author

Isobel Knight is a writer, researcher and periodic lecturer on Ehlers-Danlos (Type III) Hypermobility Syndrome. Isobel is also a practising Bowen Therapist and lives in South London.

Product details

  • Format: Kindle Edition
  • File Size: 2361 KB
  • Print Length: 364 pages
  • Publisher: Singing Dragon; 1 edition (28 Mar. 2013)
  • Sold by: Amazon Media EU S.à r.l.
  • Language: English
  • ASIN: B00C9M8KZO
  • Text-to-Speech: Enabled
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  • Word Wise: Enabled
  • Average Customer Review: 4.8 out of 5 stars  See all reviews (17 customer reviews)
  • Amazon Bestsellers Rank: #202,322 Paid in Kindle Store (See Top 100 Paid in Kindle Store)
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More About the Author

Isobel Knight was born in Oxford and was educated at Rye St Antony School in Oxford. She left Oxfordshire to attend King Alfred's College, then affiliated to the University of Southampton to do an Undergraduate degree in Primary Teaching and Religious Studies which she gained with a 2:1 in 1997. Isobel did not pursue a teaching career, although she had taught ballet classes for many years by this point. Isobel moved to London in 1997 to work in organisations such as the Imperial Society of the Teachers of Dancing (ISTD) and the Council for Dance Education and Training (CDET), in administrative capacity. She then went to work in the voluntary sector in two different (paid) roles as a Volunteer Manager, where she fully utilised her excellent organisational, training and people skills. In 2002, Isobel trained as a Bowen Therapist, following very positive results with the treatment in helping with back pain. Bowen Therapy is a holistic form of gentle soft-tissue therapy, originally founded in Australia, and Isobel has two busy clinics in central London.

Isobel's writing career seriously begun in 2009 with the publication Skin Collection, a poetry anthology based on the themes of self-harm, depression and other mental health issues. Prior to that, Isobel has always enjoyed writing, be it amusing letters, short play sketches, newsletters, or essays at school. In particularly, Isobel has excelled at autobiographical work and has two very established and live Blogs. Isobel has had work published in several journals including the British Medical Journal. Isobel has a particular interest in health journalism and particularly in the conditions of chronic pain, and Joint Hypermobility Syndrome. Isobel's interest in hypermobility begun in her teenage years when a ballet teacher pointed out to her that she had 'swayback knees.' Isobel wrote to the Dancing Times magazine to find out more about it and her letter was published in 1992.

Isobel did not make connections to how being hypermobile had impacted on her life until she injured herself when re-starting ballet classes in 2008. Isobel had done ballet classes until unrelenting back pain stopped her in 1999 at aged 25. Following a nine year injury gap, Isobel re-started classes, still in pain, and then partially tore her right calf. The injury proved to be a massive turning point in her life and in the week of her injury she decided to pursue a life-long interest in the body, ballet and medicine in the form of an MSc in Dance Science at Trinity Laban. Isobel was also awarded a Graduate Bursary from Trinity Laban, which assisted with her course fees. Isobel's attendance at Trinity Laban started sooner than the MSc, with physiotherapy sessions Isobel was diagnosed with the Hypermobility Syndrome, which was fully endorsed by a Consultant Rheumatologist. Isobel completed her MSc (with Merit) in 2009, her MSc thesis being about HMS in the adolescent dance population. When Isobel had started physiotherapy, she had started to document her recovery from injury via an online Blog. Isobel then realised that there was a gap in the market in terms of a patient-generated book on the topic of Hypermobility Syndrome and was delighted that such a leading Publishing house, Jessica Kingsley Publishing, took on the book. Isobel hopes to continue writing about Hypermobility Syndrome, bringing an awareness to the medical and dance community and improving other people's quality of life. A second book will come out in early 2013 and Isobel is now guest lecturing for other well-known establishments such as the Royal Academy of Dance.

Isobel believes that owing to a condition with a collection of related syndromes such as chronic pain, fibromyalgia and endometriosis, she has, until recently, been significantly held back in life. Her ongoing movement re-education and recovery in physiotherapy are finally changing her body and her life. Isobel feels she has so much to give and to do. Her reputation as a Bowen Therapist is growing all the time, and she has been approached to consider writing a book on Bowen in the future.

Isobel lives in South London, and her interests include classical ballet classes which she does twice weekly at Danceworks in central London. Isobel has strong musical interests, particularly for classical and baroque music and plays both the piano and alto or treble recorder. She has performed in recorder recitals for both weddings and recitals for charity. Isobel enjoys the company of others, and particularly enjoys dinning out with a few good glasses of wine. Isobel has a serious and professional approach, but also a very warm and caring demeanour with a very good sense of humour and a delightful sense of fun.


Customer Reviews

4.8 out of 5 stars
4.8 out of 5 stars
Most Helpful Customer Reviews
2 of 2 people found the following review helpful
Format:Paperback|Verified Purchase
Having read her first book and now this one I would highly recommend reading her first book if you are new to the material. This follows on nicely from the first book, going into detail about the multi systemic nature of the condition. I found myself agreeing with and relating to a lot of the symptoms described within the book. I think that it was a good balance of personal and scientific information that particularly made it accessible and relatable without being so technical that it becomes unreadable. It also helped me to realise that the smallest of movements can make a significant difference, quality rather than quantity. Doing the movement correctly is more important than achieving x number of reps. Very well done on a fantastic job Izzy, it is definitely in my list of top books about EDS3.
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3 of 3 people found the following review helpful
5.0 out of 5 stars At Last! 22 Aug. 2013
By Deb
Format:Paperback|Verified Purchase
Having taken years to get diagnosed with EDS I was left feeling bewildered and lost. I stumbled across this book by accident (check out her face book page) and have passed it onto my consultant to peruse. if you are thinking of buying it..don't delay..do it. Slam it in your shopping basket now. You will learn an awful lot!
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3 of 3 people found the following review helpful
Format:Paperback
my girlfriend has EDS type 3, had a long journey just getting the diagnosis after several doctors said it was all in her head (despite both shoulders being subluxed and hips dislocating when walking) this is a vital tool which has helped inform her family and her bowan therapist
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8 of 9 people found the following review helpful
2.0 out of 5 stars Not what I expected 21 Sept. 2013
Format:Paperback|Verified Purchase
This is the second book Isobel has written and I have both. The first seems to be more of an over view of hyper-mobility in general, with content from some of the leading specialists. However this book is not the same at all, it is essentially Isobel's life story with the odd helpful tip included. It's not worth spending on, there will be other books that are not only more informative, but also better written, more interesting and more helpful! I'd avoid this if your looking for anything other than an autobiography.
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2 of 2 people found the following review helpful
5.0 out of 5 stars Definitely worth buying 13 Oct. 2013
By Katie
Format:Kindle Edition|Verified Purchase
I have been recently diagnosed with hypermobility syndrome, I had so many questions and this book answered them all, it's definitely worth buying and is a good reference point to go back and read again. It's everything and more that is advertised.
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Format:Paperback|Verified Purchase
This book is a fantastic sequel to Isobel's first (green) book, 'A Guide To Living With Hypermobility Syndrome' which I also highly recommend. It is thanks to these books that I knew where to turn for diagnosis and learnt more about how to manage my pain and other issues from reading these books than any advice I received from medical professionals in my home town who just don't seem to understand me. This book delves into the widespread issues EDSers can face such as gastro, gynae, PoTS, psychological aspects etc, and is suitable for both the patient, their loved ones and medical professionals alike. With input from some of the most highly regarded medical professionals in the field you can be sure of its accuracy and relevance.
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1 of 1 people found the following review helpful
5.0 out of 5 stars A very helpful book 20 April 2013
Format:Paperback|Verified Purchase
A valuable book for JHS/EDS sufferers
Answers so many questions that the patient is afraid of asking doctors who still do not understand that this condition is very real
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Format:Kindle Edition|Verified Purchase
This is a thoughtful, thorough and intelligent review of JHS/EDSHypermobility type from the perspective of a fellow sufferer. Isobel Knight does a great job in this book not only for those who share a diagnosis (like myself), but also for friends, family and for medical professionals who encounter this confusing and frustrating condition. I thoroughly recommend this book and also Isobel Knight's previous book which I have also read and recommend for the newly diagnosed or those going through the diagnosis process - which can be pretty long and complicated.
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