This is not a book that offers solutions, although there are some useful tips along the way. It is a selection of notes, observations and poetry about a journey. It does achieve what the author intends, which is to reassure those who have ME and to validate their experiences. The writing is clear and easy to read, the chapters are short, usefully mapping the concentration span of sufferers.
Personally I think the book has another function. It should be required reading for families and friends of those affected. It is not self-pitying, though self-pity is more than justified. It sets out clearly what it is like to live with this illness from day to day and should foster real understanding. (My impression was it must be like living under triple gravity while being tormented by devils with pitchforks.) In particular it should be required reading for ATOS. I was disgusted by their grossly reductionist, inflexible and inhumane approach to Gina's work capability assessment.
It is also a book about hard-earned wisdom. When life becomes limited in scope or duration by illness, it brings the realisation that pleasure is relative. How many of us take time to be grateful for generally functioning minds and bodies?