Losing Clive to Younger Onset Dementia: One Family's Story
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Product Description
Clive Beaumont was diagnosed with Younger Onset Dementia at age 45, when his children were aged just 3 and 4. He had become less and less able to do his job properly and had been made redundant from the Army the year before.Clive's wife, Helen, tells of how she and the rest of the family made it through the next six years until Clive died: the challenge of continually adapting to his progressive deterioration; having to address the legal implications of the illness; applying for benefit payments; finding nursing homes; and juggling her responsibilities as a wife, a mother and an employee. She also describes the successful founding and development of The Clive Project, a registered charity set up by Helen and others in a bid to establish support services for people with Younger Onset Dementia. Younger Onset Dementia is comparatively rare, but not that rare. This story is for the family and friends of people with the condition, for the people themselves, and for the professionals working with them
About the Author
Helen Beaumont is a founder member of The Clive Project, a registered charity based in Oxfordshire and named after her husband. She lives in Oxfordshire with her two children.
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Format:Paperback
Losing Clive to Younger Onset Dementia: Helen Beaumont
` I didn't expect things to last forever, but I did hope for longer than we had' ( p.43)
Helen Beaumont's vivid account of her husband Clive's dementia, diagnosed when his children were pre-school, and he was 45, is very readable - so much so I read it in one day, starting while my husband was out with his enabler and finishing later while he slept. Family members of younger people with dementia will find this book reflects many of their experiences and emotions as they deal with the ever-shifting nature of the disease as it progresses. Although my husband has been suffering for at least eight years with dementia I nonetheless learnt more about aspects of the disease and its effects on his behaviour. I hope that professionals will read this account and learn what it is like to live with dementia as a sufferer or a family member.
I wish I had had a book like this long before my husband had his diagnosis, as it so accurately reflects the confusion, depression and loss for sufferer and partner which characterise the early stages of dementia. So much of this was so familiar to me - but you think it's only happening to your marriage at the time. Helen conveys this isolation particularly well as you don't realise how insidious the effects of the disease are in your relationship. Sadly, eleven years on the words of the consultant who diagnosed Nick were almost exactly those with which Helen was told of Clive's dementia - ` I'm sorry' - end of story, without so much as a phone number to ring for advice let alone any hope of therapy or treatment.
Helen clearly kept detailed diaries and she begins each chapter with a fitting contemporary extract: the freshness and rawness of her memory is startling. Concluding each chapter she adds a reflective `With Hindsight' section, reviewing the family's experiences long after events. This often goes to show that dementia continues to be a disease we are meant to suffer in silence rather than expecting better services and fairer treatment.
Helen brought up her two young children and adapted her life around their needs and those of her husband with resourcefulness, intelligence, and most of all with love. Her love and respect for Clive, not only as the man she fell in love with but also as the person he became, shine through the pages of this book, as do his unique energy and spirit.
Helen's attitude is exemplary - enjoy what you can of each day with this new person your husband has become and try not to be too irritated as he lurks far too close when you're in the kitchen. My husband saw a Christmas tree for the first time again the other day - what a joy!
Victoria Jones 08.12.08.
` I didn't expect things to last forever, but I did hope for longer than we had' ( p.43)
Helen Beaumont's vivid account of her husband Clive's dementia, diagnosed when his children were pre-school, and he was 45, is very readable - so much so I read it in one day, starting while my husband was out with his enabler and finishing later while he slept. Family members of younger people with dementia will find this book reflects many of their experiences and emotions as they deal with the ever-shifting nature of the disease as it progresses. Although my husband has been suffering for at least eight years with dementia I nonetheless learnt more about aspects of the disease and its effects on his behaviour. I hope that professionals will read this account and learn what it is like to live with dementia as a sufferer or a family member.
I wish I had had a book like this long before my husband had his diagnosis, as it so accurately reflects the confusion, depression and loss for sufferer and partner which characterise the early stages of dementia. So much of this was so familiar to me - but you think it's only happening to your marriage at the time. Helen conveys this isolation particularly well as you don't realise how insidious the effects of the disease are in your relationship. Sadly, eleven years on the words of the consultant who diagnosed Nick were almost exactly those with which Helen was told of Clive's dementia - ` I'm sorry' - end of story, without so much as a phone number to ring for advice let alone any hope of therapy or treatment.
Helen clearly kept detailed diaries and she begins each chapter with a fitting contemporary extract: the freshness and rawness of her memory is startling. Concluding each chapter she adds a reflective `With Hindsight' section, reviewing the family's experiences long after events. This often goes to show that dementia continues to be a disease we are meant to suffer in silence rather than expecting better services and fairer treatment.
Helen brought up her two young children and adapted her life around their needs and those of her husband with resourcefulness, intelligence, and most of all with love. Her love and respect for Clive, not only as the man she fell in love with but also as the person he became, shine through the pages of this book, as do his unique energy and spirit.
Helen's attitude is exemplary - enjoy what you can of each day with this new person your husband has become and try not to be too irritated as he lurks far too close when you're in the kitchen. My husband saw a Christmas tree for the first time again the other day - what a joy!
Victoria Jones 08.12.08.
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