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Karina Has Down Syndrome: One Family's Account of the Early Years with a Child who has Special Needs [Kindle Edition]

Cheryl Rogers , Gun Dolva
4.5 out of 5 stars  See all reviews (2 customer reviews)

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Book Description

'We mourn the death of the child we had assumed I had given birth to, yet dearly love the baby we have. We want our child, but don't want her to have Down Syndrome...' Since their initial shock at their daughter's disability, Karina's parents have experienced the challenges and joys of raising a child with special needs. Gun Dolva and Rodney Potter have taken advantage of available services and programmes, and their own imaginations, to devise stimulating activities to assist her to develop to her full potential. They aim to provide her with every opportunity to fully participate in the community. This is the account of Karina's first six years, as told to Cheryl Rogers. Karina Has Down Syndrome is a valuable resource for the families of Down Syndrome children, teachers and disability service workers.

Product Description


This is the story of how two parents coped with the birth of their daughter who was born with Down's Syndrome. It recounts very objectively their feelings, fears and hopes as they tried to come to terms with their situation. This is a very inspiring story, told in a mixture of diary extracts and personal feelings. It also contains a very useful glossary and a list of resource addresses and reading materials. -- Rostrum The reviewer gave this book to the mother of a one year old girl with Downs Syndrome for a parent's perspective. She described the book as the best she had read and found it amusing and relatively light-hearted, while true to life. She was impressed at how the book examined their experiences without being melodramatic or depressing and was heartened by the fact that Karina's parents did not set themselves up as experts, just parents recounting their story. Overall she found it positive and thoroughly enjoyable, and on a practical note, took on board some of the exercises done with Karina. A recommended good read. -- Irish Social Worker This book is one family's account of the early years with a child who has special needs. It is intended as a resource book for the families of children with Down Syndrome, teachers and disability service workers. -- Frontline of Learning Disability Reading this book provides an excellent insight into some of the difficulties faced in balancing the needs of a young child with down's syndrome with that of other members of the family. It also discusses some solutions which this family found helpful. It is not a textbook to be used by therapists to understand the full implications of a diagnosis of down's syndrome but, the insight gained might assist in planning interventions appropriate to an individual family. The book is an honest account of disappointments and difficulties as well as pleasures, although the overall tone is extremely positive. The diary excerpts demonstrate the practical ways Karina's parents use to help her and the underpinning theory. I found this book a pleasure to read. It's lack of jargon and easy to read format was a refreshing change for a book that was of professional interest. -- OTPLD Newsletter This is a delightful little book written by a journalist and Karina's mother, who is herself a university lecturer. Karina's mother vividly, but not over-emotionally, records the family's first six years of Karina's life. In her mother's words: "We mourn the death of the child that we had assumed i had given birth to, yet dearly love the baby we have. We want our child, but don't want her to have Down Syndrome". I very much enjoyed reading this book, and recommend it as an additional resource regarding the early management of a child with Down Syndrome -- NAPOT

About the Author

Cheryl Rogers graduated from the University of Western Australia in 1979 with a Bachelor of Science degree. Since training as a journalist with Western Australian Newspapers Ltd, she has worked on a number of weekly magazines, and currently lives in the Swan Valley, Western Australia. Gun Dolva met Cheryl while studying Zoology at the University of Western Australia. She now works as a sessional academic/tutor at Edith Cowan University. Gun is Karina's mother, and lives with her family in Darlington, Western Australia.

Product details

  • Format: Kindle Edition
  • File Size: 995 KB
  • Print Length: 116 pages
  • Publisher: Jessica Kingsley; 1 edition (23 Jun. 2009)
  • Sold by: Amazon Media EU S.à r.l.
  • Language: English
  • ASIN: B003XW04DK
  • Text-to-Speech: Enabled
  • X-Ray:
  • Word Wise: Not Enabled
  • Average Customer Review: 4.5 out of 5 stars  See all reviews (2 customer reviews)
  • Amazon Bestsellers Rank: #1,052,802 Paid in Kindle Store (See Top 100 Paid in Kindle Store)
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Customer Reviews

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Most Helpful Customer Reviews
As well as a day-to-day diary of Karina's progress in her early years, it will be all too familiar for many parents to read how, once Karina is on the move, they have to become hardened to questioning looks from people. Dealing with a typical toddler is hard enough, but a screaming four- or five-year old is a lot harder. Parents of a child with ADHD will certainly know what this can be like.
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5.0 out of 5 stars Review 3 Oct. 2011
By Vicki
Product arrived on time and as advertised. Good service providing cheap reading material that i needed for a new job. Would use again in the future.
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Most Helpful Customer Reviews on (beta) 4.0 out of 5 stars  3 reviews
6 of 6 people found the following review helpful
By Christine - Published on
This book helped me to realize that there are many parents out there who are faced with life changing news everyday. Through reading the experiences in this book, it showed me the different emotions wrapped up in families with disabilities. I am studying to be a special education teacher, and I know that this book will be a reference for me when relating to the parents of my students. If you are a special educator, or anyone whose life has been touched by a child with a disability, you MUST purchase this book!
2.0 out of 5 stars A Huge Disappointment 10 Sept. 2011
By Lisa Morguess - Published on
Format:Paperback|Verified Purchase
This book was a huge disappointment. I am still trying to figure out why it cost me $25+. I was expecting a pretty substantial hardcover memoir for that, but in reality it's a very thin paperback, just over 100 pages, that I finished in a couple of hours (I guess I should have paid more attention to the product description on Amazon).

I was initially intrigued by the book because an excerpt I read online indicated that Karina, the child with Down syndrome who is the subject of the book, was born at home two weeks before her due date. Since this was exactly how my own son's (who has Down syndrome; hence my interest in this subject matter) life began , I felt destined to read this book. While there are parts of the account that are moving, and I could certainly relate to some of the mother's expressed anguish, for the most part the book reads like a report or article - it all seems pretty detached although it is the mother's personal account. The book covers Karina's first six years - in just over 100 pages! - and it was only after I started reading that I realized she was born in 1990, so I had to keep reminding myself that so much has changed in the last almost 20 years for children born with Down syndrome.

Not impressed.
5.0 out of 5 stars Karina Has Down Syndrome 16 Jun. 2009
By DawnLowenstein - Published on
Format:Paperback|Verified Purchase
I rate this book a 5-star review! This goes to show how a family who has a Down Syndrome child is determined to help Karina develop to her fullest potential in spite of her challenge with Down Syndrome.
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