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Illness as Metaphor and AIDS and Its Metaphors (Penguin Modern Classics) Paperback – 3 Jul 2009

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Product details

  • Paperback: 192 pages
  • Publisher: Penguin Classics (3 July 2009)
  • Language: English
  • ISBN-10: 0141187123
  • ISBN-13: 978-0141187129
  • Product Dimensions: 12.9 x 1.1 x 19.8 cm
  • Average Customer Review: 5.0 out of 5 stars  See all reviews (3 customer reviews)
  • Amazon Bestsellers Rank: 24,399 in Books (See Top 100 in Books)

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"Susan Sontag's "Illness as Metaphor "was the first to point out the accusatory side of the metaphors of empowerment that seek to enlist the patient's will to resist disease. It is largely as a result of her work that the how-to health books avoid the blame-ridden term 'cancer personality' and speak more soothingly of 'disease-producing lifestyles' . . . "AIDS and Its Metaphors "extends her critique of cancer metaphors to the metaphors of dread surrounding the AIDS virus. Taken together, the two essays are an exemplary demonstration of the power of the intellect in the face of the lethal metaphors of fear."--Michael Ignatieff, "The New Republic"

About the Author

Susan Sontag was born in Manhattan in 1933 and studied at the universities of Chicago, Harvard and Oxford. Her non-fiction works include Against Interpretation, On Photography, Illness as Metaphor, AIDS and its Metaphors and Regarding the Pain of Others. She is also the author of four novels, a collection of stories and several plays. Her books are translated into thirty-two languages. In 2001 she was awarded the Jerusalem Prize for the body of her work, and in 2003 she received the Prince of Asturias Prize for Literature and the Peace Prize of the German Book Trade. She died in December 2004. Penguin will publish Sontag on Film in October 2016.

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Two diseases have been spectacularly, and similarly, encumbered by the trappings of metaphor: tuberculosis and cancer. Read the first page
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Format: Paperback
An overused word but in this case very apt. Susan Sontag has a way of approaching the familar and making you view it from an entirely fresh angle. Academic, yet never wilfully obscure, she gets straight to the heart of the subject and interrogates it so throughly you'll think you never really knew it before. Illness as Metaphor, explores the history of illness, how illness is spoken about,how the ill are treated and placed within society. She draws parrallels between the approaches to incurable illnesses in previous centuries and the present- startling similar inspite of modern medicine. Of fundamental importance to anyone suffering illness, caring for the sick or just interested in attitudes to illness is the notion of blame and personality traits that these uncured diseases accrue. The mythology that attaches to illness is especially cruel in the light of how it dissolves and coallates around a new condition as soon as the cause/cure is discovered. Sontag is a truly original thinker and this book, whilst deeply intellectually inspiring, was also for me a personal liberation from an illness that I have often been encouraged to feel is 'my own fault'. Life changing.
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Format: Paperback
Sontag's key point is that illness isn't a metaphor, it is illness, but try telling that to writers and even to doctors. In the course of her argument, as she draws out what they said in novels and private letters and medical treatises, you have the feeling that you are holding in your hand a cluster of well polished cultural gems, each facet carefully cut to catch the light. She has collected snippets from writers in a way that now would be heavily propped up by Google searches, that in her case in the 1970s must have meant her asking all her friends for every reference they could think of to cancer and TB and the wider history of disease. This was written when cancer still meant for many a death sentence, when it was common place that the cure was worse than the illness, when attitudes and personality were clung to as a possible way of cheating death, and the inclination was to blame the patient and their `cancer personality'.

Cancer and TB struck individuals selectively and mysteriously, so individuals could seem responsible for their illness. `Why did I get cancer?' the victim asks.

Sontag deconstructs the various accounts of a `cancer personality' and the TB personality, with a kind of mordant, low key humour. `As cancer is now imagined to be the wages of repression, so TB was once explained as the ravages of frustration. ...Keats exclaimed `My dear Brown, I should have had her when I was in health, and I should have remained well.'

It was terribly appropriate to have TB if you were an artist - it meant you were eaten up by passion. It was of course important to quit your routine life - and go elsewhere. It was a `new reason for exile' - to Italy, the South pacific, mountains, deserts.
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Clear and informed analysis- delighted to reread it. It should inform all cancer websites.
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Most Helpful Customer Reviews on Amazon.com (beta)

Amazon.com: HASH(0xaae9724c) out of 5 stars 23 reviews
76 of 79 people found the following review helpful
HASH(0x919b2684) out of 5 stars This book changed my life 26 July 2004
By Carey - Published on Amazon.com
Format: Paperback Verified Purchase
This is a quote from the book that I would consider its thesis statement:

'Theories that diseases are caused by mental states and can be cured by will power are always an index of how much is not understood about a disease.

Moreover, there is a peculiarly modern predilection for psychological explanations of disease...Psychologizing seems to provide control...over which people have no control. Psychological understanding undermines the 'reality' of a disease.'

Sontag traces, historically, the ways different diseases and the people who contracted them have been viewed. She spends time discussing tuberculars--waif-like, pale, romantic--and cancer patients--repressed, the 'cancer personality,' shame--then goes on to debunk these notions by stating that once the cause, cure, innoculation is found, the 'myth' or popular psychology of the disease no longer holds.

In this edition, in the final chapter about AIDS and its metaphors Sontag writes that she'd written the first part of the book (all but the AIDS chapter) while a cancer patient and in response to reactions she saw in fellow patients. She saw guilt and shame; and she saw these as impediments to people's treatments. For she knew she had an illness and she set about to cure it medically, in the best possible way, while others passively accepted the 'metaphor' handed to them and, thus, did less to help themselves best. She felt frustrated or saddened by their psychologizing and self-blame and wished to write to others that their physical illness is a physical illness and the best route to recovery is to think only of how to find the best medical treatment.

And she wrote this by demonstrating the history of myths that surrounded illnesses and the way these myths evaporated as soon as its true mechanism (the virus, or otherwise) was found.

Some holes in her argument can be found in the field of Health Psychology, which has proved that optimism generates faster post-operative recovery or a heartier immune system, among other 'psychological' correlates of disease to illness. Still we speak of a "type A" personality and a possibility of a heart attack, etc., which I believe is not entirely unfounded -- stress creates a drop in immune response and other health deficiencies.

However, I am a patient and a former psychotherapist. I was reared in psychology as others are toward priesthood. I grew up sent to therapists for any ills and was raised with the thought I be nothing but a therapist when an adult -- which I did become. Then I became diabled, from physical injury. My own disability is largely pain-related; the pain is severe and in locations that make it impossible to function. Much of my injury does not show up on contemporary tests -- EMG's, CAT scans, MRI's, bone scans, sonograms.

So I turn to psychology. I know I've got a physical injury. But if it can not be cured (and I go back to my original quote: that which is least understood, we psychologize), perhaps I am, in part, a cause of it. This had been a comforting notion to me: if I can do this to myeslf, I can also undo it. For me, psychologizing helped put me in the driver's seat.

Sontag at first put me in the driver's seat in a new, determined, knowing way. I know my injury is not something that is "in my head." At first, Sontag's argument was a weight off my shoulders, an eye-opener. I underlined the passage above: yes, that's right; they don't know what's wrong with me so they blame me. A doctor once said to me: "When I can't find anything wrong with someone I assume there is nothing wrong with her."

Sontag set me in motion. She went into motion, knowing cancer wasn't a word to whisper (remember when we whispered that 'c' word?), but something to pursue with a vengeance. Her book was liberating. I know I don't want to be sick, unable to do the things I want to, regardless of how neatly one can analyze my personality and show otherwise. This is physical.

Then reality. I've got sometihng and it isn't curable and it is debilitating. I am in doctors' offices all the time; fighting beaurocracy all the time. I wanted my psychologizing back. My security blanket had been removed with this "epiphany" of sorts. If it's not in my head, and I can't cure myself, and doctos can't cure me, I'm incurable. Her philosophy, then, became saddening.

I began to analyze her: perhaps she recovered so well because of her strong personality, her [psychological] strength. It's a chicken/egg question.

Sontag writes things that are clear and other things that can be argued. Overall, her essays have changed societal thought -- from Against Interpretation to On Photography to Illness as Metaphor and various others; she is brilliant and a powerfully good writer. Anyone who can make us look at something in a new way, make us think something through in a new way, is easily well-worth reading.

Anyone who is ill, particularly chronically, undiagnosed or misunderstood should read this book. Agree with it or not, but read it. Read others that say the opposite, read about your own illness, but read this book: I would call it mandatory.
50 of 58 people found the following review helpful
HASH(0x91ea6588) out of 5 stars Sontag's metaphors: A must read for any essay enthusiast 16 Jan. 1999
By joshua.rhein@diasorin.com - Published on Amazon.com
Format: Paperback
Even if we hadn't evolved the ability to think sensibly about the world around us, disease would have continued to be a major factor in Homo sapien debilitation and mortality. Conversely, if conscious beings had been born to a world free of disease, they would have still tried to find out how their universe functioned, and they probably would have employed the metaphor as an aid for conceptualizing notions not well understood. But for whatever reason, human beings did attain the ability to think critically about their surroundings, which happened to be a world filled with diseases. It should come as no surprise than that illness and disease, concepts sometimes etiologically and often morally incomprehensible, are often the subject for metaphors; an inevitable consequence of human insight intermingling with mysterious biological forces. In the view of the cultural critic Susan Sontag, however, metaphorizing illness and- perhaps more importantly- using illness as a metaphor can have damaging consequences for those afflicted.
In her pair of related essays, Illness as a Metaphor and AIDS and its Metaphors, Susan Sontag reveals many of the metaphors surrounding such influential diseases as tuberculosis, cancer, syphilis, and AIDS. While she does acknowledge the necessity of the metaphor for human understanding, throughout her assays she argues that there "aren't some metaphors we might well abstain from or try to retire". Although this important point should by no means be taken lightly, the true worth in her essays is the skill in which she uncovers these metaphors and explains (she is, after all, against interpretation) the stigmatizing affects of the myths they create.
Sontag does not limit the scope to which she describes the metaphors. On one level, illness moves from being metaphorized (e.g. "invasion" in the case of cancer and AIDS, "pollution" in case of syphilis and AIDS) to being used as a metaphor (e.g. "...a cancer on society"). At another level, disease metaphors can be viewed as either being directed at the individual (e.g. "the sensitive and creative character of the tubercular") or at the larger society (e.g. AIDS as punishment for sexual deviance). By examining illness metaphors from several viewpoints, Susan Sontag forces the reader to confront their own stereotypes of diseases and the people they infect. Indeed, her cultural theory powerfully compliments strictly historical or clinical analyses on human disease.
While scientific or clinical approaches to disease focus exclusively on the individual, historical and epidemiological perspectives tend to overplay the importance of population dynamics. And none of these approaches alone can strip disease free of the stigmas that surround them. In Plagues and Peoples for instance, William H. McNeill's main premise is that human history has been largely influenced through time by the "introduction" of new diseases from "outsiders". However useful this view is to describing human history, it inherently reflects and perpetuates some common metaphors surrounding disease. It is for this reason that Susan Sontag targets him in her essay. For singling out groups of people, what are referred to as "risk-groups" today, in the discussion of plagues often implies punishment for evil, and this can be as dangerous as focusing on individual illness' as "transforming experiences".
On the other hand, Sontag argues that scientific and medical descriptions can also contribute to disease metaphors. The clinical description of AIDS as occurring in stages and the view of cancers as geographical diseases of the body are metaphors widely applied today. The existence of other military-like immunological terms of describing disease such as "tumor escape", "killer T-cells", or "defensins", also could have added fuel to her argument. With these examples in mind, the question that must be asked is; can humans really approach disease without employing the use of metaphors? However impossible this may be, Illness as a metaphor and AIDS and its Metaphors is successful in exposing the prejudices inherent in many of our past and present metaphors, and helps us distinguish the good ones from the bad.
29 of 33 people found the following review helpful
HASH(0x9215766c) out of 5 stars Great stuff, with a caveat... 1 Sept. 2000
By A Customer - Published on Amazon.com
Format: Paperback
I've read only the original essay (Illness as Metaphor) so will
comment on that alone. The book is an excellent antidote to the
overemphasis on psychological causes for physical illness that is
current in society and, especially, in the "new age"
community. Well worth reading and digesting for that purpose.
said, I do think [the text] overstates the case somewhat. There is
a body of empirical evidence showing, for example, links between
mental state and immune function. This link would, in principle, be
expected to influence the incidence of both infective disease and
cancer. For example, only a fraction of those who are infected with
T.B. develop clinical disease, and stress may play a role in
activating latent disease in those who are chronically infected. In
polio, the situation is even more extreme, as only about one pecent of
those who are infected develop clinical disease. Thus, for many
infective diseases, there is a marked difference between rates of
infection and rates of "symptomaticity." It seems likely
that the mind and mental state is one (but certainly not the only!)
factor that influences whether an infection becomes clinical
Similarly, in cancer, as I understand it, all of us are
constantly experiencing mutations that have the potential to become
cancerous. But most of these mutations are eliminated, before they do
harm, by the operation of various "survaliance" systems
(including the immune system) in the body. Thus, the onset of cancer
may involve an escape from survaliance. To the extent that mental
state affects immune function, the mind could affect the appearance of
cancer. Of course, there are many factors--such as environmental
carcinogens, smoking, etc.--which in some fraction of the population
will cause rates of mutation that will overwhelm the bodies
survaliance functions, perhaps even when these systems are operating
In conclusion, I think Sontag is on to something important,
and makes excellent points that many people could learn from. But
these points should be viewed as part of the picture, and good food
for thought, rather than the whole truth.
Comments and corrections
welcome at publiccontact@hotmail.com
17 of 19 people found the following review helpful
HASH(0x91d0078c) out of 5 stars cancer phobia & AIDS as "payback" for sin 20 April 2002
By Cassandra - Published on Amazon.com
Format: Paperback
Cancer phobia, some people say, is worse than cancer. Well, not really... But true up to a point. Being afraid of a disease, be it cancer, AIDS, or whatever else, can be debilitating. And who of us doesn't know people that are scared to death of cancer, or of AIDS? And how can we all not be scared (maybe even terrified) of these diseases, when in our eyes they're not just diseases but are loaded with a whole lot of different meanings, mainly linked to death...

Susan Sontag's essay on cancer (& her later essay on AIDS) deal with these diseases as metaphors of whatever is bad, evil, reprehensible, sinful about human experience. Especially with cancer, the metaphor is more poignant, since, cancer still has unknown causes, at least up to a point: of course cancer now is much better understood, but in '78, when Sontag wrote the first essay, cancer was mostly unknown territory. Obviously, when we're talking about unknown territory, unknown (& mysterious) causes, there's a lot of theoretizing & projecting: anyone can project their own ideas on this white wall of ignorance. And so people 'fight' cancer, 'win the battle' against cancer, 'have cancer personalities', 'cause' their cancer or whatever else. It was even worse with AIDS, especially in the '80s: then it was widely (& stupidely) believed that this new disease was the payback for the free sexuality of the '70s, & especially of the sexuality of homosexuals.

Susan Sontag's essays tackle these issues & show the metaphors & prejudices of illness as what they are. They are important, clearly-written essays, & if today some of these ideas appear obvious or widely known, remember that Sontag talked about these things many years ago, being one of the first people to address the issue.
8 of 8 people found the following review helpful
HASH(0x91877714) out of 5 stars THE DISEASE CALLED METAPHOR 1 Aug. 2005
By Worldreels - Published on Amazon.com
Format: Paperback
On top of the mutation, bug or dysfunctional cell that produces cancer, in ILLNESS AS METAPHOR, Sontag introduces the reader to an accompanied malady called metaphor. A metaphor, of course, is nothing but a comparison, a verbal picture attempting to make the abstract more concrete. But by depicting surprising similarities between two unlike things, by equating a disease like cancer or AIDS to a hopeless human condition, catching the metaphor may become as bad as the disease. Metaphor may even prevent the patients from healing themselves.

Sontag discusses how diseases like AIDS, syphilis, TB, leprosy and cancer can be stretched out as metaphors. The more mysterious the cause of the disease, the wider the application of that disease as metaphor. The author shows the fallacy in extending military terminology, military metaphors, to the fields of medical treatment. There are no magic bullets, bodies are not being invaded by alien cells and diseases need not become battles to the death. In other words, metaphors will never cure any ailments, words will never become an antidote to any illness. After one conquers the disease one must then eliminate the metaphor that surrounds that disease.
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