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Review
These knowledgeable authors speak eloquently for families, parents, prospective parents, and health care professionals across many disciplines who share in the experiences of life with, and without, a hoped-for 'perfect baby.' A thread of continuity runs across the gestational journeys of real parents grappling with bad and sad news, complex interwoven lives, and the hard work of seeking to bring joy into brief, yet eternal, moments together with their babies. The book will mean so much to those who have already endured these trials as well as those who are met daily with such news.
(Brian S. Carter, M.D., Monroe Carell Jr. Children's Hospital at Vanderbilt 2011)This book is an insightful resource for those who have been there and for those who will someday live through such an experience.
(Kathy Benson Exhale: A Literary Magazine 2011)A Gift of Time is a gift. With their beautiful writing, the authors honor the families who contributed to this book, comfort the families who will, sadly, need to make use of this book, and deepen and enrich every reader’s human experience... We owe them our gratitude.
(Dia Boyle MercatorNet.com 2011)A compelling read...the book will, naturally, be most of use to families who are facing these heartbreaking situations right now and need guidance and fellowship. But for all of us who value the lives of children with special needs, especially those who society most devalues, it offers an incredibly hopeful message.
(About.com )The authors have achieved their goals in writing this book; they bring comfort to the families going through this traumatic time, and make the health care providers who read it determined to 'do better.'
(Advances in Neonatal Care )This informative and heartbreaking book provides information to parents and families in the critical are of continuation of pregnancy in light of a terminal diagnosis...Quotes from patients and families offer a view to help encourage, inspire, and help others feel they are not alone....The health care team can learn much from this text.
(Deborah Roberts Pediatric Nursing )Product Description
A Gift of Time is a gentle and practical guide for parents who decide to continue their pregnancy knowing that their baby's life will be brief.
When prenatal testing reveals that an unborn child is expected to die before or shortly after birth, some parents will choose to proceed with the pregnancy and to welcome their child into the world. With compassion and support, A Gift of Time walks them step-by-step through this challenging and emotional experience—from the infant's life-limiting prenatal diagnosis and the decision to have the baby to coping with the pregnancy and making plans for the baby’s birth and death.
A Gift of Time also offers inspiration and reassurance through the memories of numerous parents who have loved a child who did not survive. Their moving experiences are stories of grief—and of hope. Their anguish over the prenatal diagnosis turns to joy and love during the birth of their child and to gratitude and peace when reflecting on their baby’s short life.
Full of practical suggestions for parents and for caregivers, A Gift of Time also features the innovative concept of perinatal hospice and palliative care. Caring and thoughtful, the book helps parents embrace the extraordinary time they will have with their child.
(2011)
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Most Helpful Customer Reviews
3 of 3 people found the following review helpful:
5.0 out of 5 stars
A Gift from Those Who've Gone Before,
By
This review is from: A Gift of Time: Continuing Your Pregnancy When Your Baby's Life Is Expected to Be Brief (Paperback)
18 years ago, when we found out half way through my first pregnacy that our baby was unlikely to survive, there was nothing like this book. As far as I know, it's the only book specifically for parents in this situation. Compiled from dozens of questionnaires and interviews, it shares the experiences of parents who have already travelled that journey - journeys of grief, but also of joy, as they adjust to a different pregnancy from what they were expecting, love and treasure this unexpected child and make the most of the time that they still have with him/her.Co-author, Amy Kuebelbeck, who lost her own son, Gabriel, in this way is an advocate of the perinatal hospice movement. Knowing of her, and that she is American, I had previously believed that this was something available only in the States. She explains, however, that this movement does not involve buildings or even dedicated teams, but an 'approach' or 'state of mind'. So, although some of the systems and services mentioned in the book aren't available outwith the USA, it remains thoroughly relevant for parents and medical/nursing staff in the UK. It's not a book to read cover to cover. I have, in order to write this review, but that's not what the co-authors intend. Rather it is to be used as a resource for dipping into and a 'companion' on the journey. For this purpose, the 'Contents' are listed very helpfully, in great detail, over three pages. For anyone determined to read it cover to cover in a short time (e.g. a member of the caring professions) I'd recommend studiously avoiding all the personal quotations the first time round, and just reading the paragraphs written by the authors. You can go back and read the quotations later, and more slowly. In the Preface, the authors themselves suggest beginning with the sections on 'Birth Planning', 'Meeting Your Baby' or the chapter on 'Reflections', saying: "Some of the voices of anguish that you will meet in the early chapters will reappear as voices of joy and overwhelming love in describing the birth of their baby, and they appear again, near the end of the book, reflecting on their journeys with voices of gratitude and peace." This book is long-awaited. We had the benefit of an open-minded, supportive consultant obsterician, and a hugely supportive network of church, friends and family, but not everyone does. This book will help those parents feel less alone, and give them confidence to ask for the help they need. For those not yet sure whether to continue with the pregnancy or not, this book will help them think through their decisions. Family, friends and pastors will gain insight and ideas as they reach out to provide support. Medical and nursing staff and others in the care professions will be encouraged as they see joy and treasure being found amongst grief and heartache, and will garner extra ideas of how they can play their part. Thankyou to the authors Amy and Debbie, to all the mothers and fathers whose words are used and to all the precious babies whose lives this book celebrates. "Those who sow in tears will reap with songs of joy."
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Most Helpful Customer Reviews on Amazon.com (beta) Amazon.com:
5.0 out of 5 stars (7 customer reviews) 3 of 4 people found the following review helpful:
5.0 out of 5 stars
A Gift Of Time,
By HRossiter - Published on Amazon.com
This review is from: A Gift of Time: Continuing Your Pregnancy When Your Baby's Life Is Expected to Be Brief (Paperback)
I could not put "A Gift Of Time" down. I read the whole book with tears in my eyes. This book is beautiful and well written. The Quotes from the parents will help support families when they are experiencing the loss of a child.
5.0 out of 5 stars
Excellent resource,
By Tammara D. Ruiz "Nurse Tammy" - Published on Amazon.com
This review is from: A Gift of Time: Continuing Your Pregnancy When Your Baby's Life Is Expected to Be Brief (Hardcover)
I am a Nurse who coordinates a program that gives support and planning guidance to families experienceing pregnancies with these types of circumstances. I believe this book to be helpful in many practical ways. I have no idea how the authors kept track of so many parent quotes, but they wove them throughout the book wonderfully.For someone looking to purchase a book on this topic for themselves, a friend, or a hospital, it may be helpful for you to know that this book is written from a secular perspective, not a religious one. There are a few hints of faith ideas from some family quotes, but it is subtle and respectful. I really like some faith based books, but they arent for everyone; this book would be appropriate for a very wide range of faith and cultural backgrounds. Every OB and Perinatology / Maternal-Fetal Medicine office needs a copy of this book.
5.0 out of 5 stars
Helped me tremendously,
By coffeegal - Published on Amazon.com
This review is from: A Gift of Time: Continuing Your Pregnancy When Your Baby's Life Is Expected to Be Brief (Paperback)
I lost my 2nd son Christian to Bilateral Renal Agenesis/Potter's Syndrome in April of 2011. We learned of his fatal diagnosis when I was 23 weeks pregnant. This book came out literally weeks before, and it was invaluable to me and my husband. It was good to hear stories from people who had gone through carrying a pregnancy despite a fatal prenatal diagnosis. At a time when we felt so alone, this book offered insight and experience from those who had walked in our shoes. My feelings, fears and hopes were all validated in reading the different stories. It made me feel a little less alone in honoring Christian's short life. We are so thankful for this book.
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