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From Chance to Choice: Genetics and Justice
 
 
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From Chance to Choice: Genetics and Justice [Paperback]

Allen Buchanan , Dan W. Brock , Norman Daniels , Daniel Wikler
4.0 out of 5 stars  See all reviews (1 customer review)
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From Chance to Choice: Genetics and Justice + Case against Perfection: Ethics in the Age of Genetic Engineering + Enhancing Evolution: The Ethical Case for Making Better People (New in Paper) (Science Essentials)
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Product details

  • Paperback: 414 pages
  • Publisher: Cambridge University Press; New Ed edition (12 Nov 2001)
  • Language English
  • ISBN-10: 0521669774
  • ISBN-13: 978-0521669771
  • Product Dimensions: 23.1 x 15.1 x 2.4 cm
  • Average Customer Review: 4.0 out of 5 stars  See all reviews (1 customer review)
  • Amazon Bestsellers Rank: 301,201 in Books (See Top 100 in Books)
  • See Complete Table of Contents

Product Description

Review

'… it should be read by anyone who wants to think well as a citizen about choices that we must increasingly make about our future and the future of our descendants'. The New Republic

'Anyone grappling with the extraordinarily difficult problems raised by genetic and reproductive technologies must take this book as a central text.' R. C. Lewontin, Harvard University and author of Biology as Ideology: The Doctrine of DNA

'… A benchmark treatise … a succinct and concise statement of the questions that will confront society as genetic techniques and interventions become commonplace in the years ahead.' The New England Journal of Medicine

'… Notable both for the breadth of the questions posed and the depth of the potential responses … a much needed and well reasoned ethical compass for future journeys into genetics and genomics.' Francis S. Collins, National Human Genome Research Institute, National Institutes of Health, Washington, D.C.

'If you are interested in the ethical issues surrounding the current and possible future applications of human genetics, then you will want to read this book. It is lengthy and dense, being closely argued, but it is clearly written and does not suffer from the usual problems of multi-author books. the authorial team has clearly taken great pains to argue a consistent view in stylistically consistent prose.' Human Genetics

'This book is filled with clear, nuanced and enlightening arguments. Even where one finds oneself disagreeing with the authors, one profits from their analysis and discussion … readers will be well rewarded.' The Philosophical Quarterly

'… a fascinating book that provides a systematic and in-depth analysis of the moral questions that would be raised by the use of direct genetic interventions on a large scale, including the role of the state and of the market, and of the question how social justice can be achieved in such circumstances. The book is well argued and well written; it is accessible for interested readers from a wide variety of backgrounds and professions, including geneticists, lawyers, bioethicists, politicians and journalists. Indeed it may help every reflectve citizen concerned about the implications of genetics and genomics for society to think about the dilemmas we are likely to face in the future.' Kargar

'There can be little doubt … that this book will play an important part in setting the stage for the debates that will shape the new conceptual tools we now need. this is our best guide to the uncertain future that beckons as the genetic veil of ignorance is lifted.' Practical Philosophy

'The authors of this book, all renowned bioethicists, make a remarkable attempt to help professionals grow in moral wisdom. … as an updated systematic survey of genetics-related moral questions, this will remain for years a very useful point of reference for professionals in philosophy, bioethics, law and political science.' The Heythrop Journal

Product Description

This book, written by four internationally renowned bioethicists and first published in 2000, was the first systematic treatment of the fundamental ethical issues underlying the application of genetic technologies to human beings. Probing the implications of the remarkable advances in genetics, the authors ask how should these affect our understanding of distributive justice, equality of opportunity, the rights and obligations as parents, the meaning of disability, and the role of the concept of human nature in ethical theory and practice. The book offers a historical context to contemporary debate over the use of these technologies by examining the eugenics movement of the late nineteenth and early twentieth centuries. The questions raised in this book will be of interest to any reflective reader concerned about science and society and the rapid development of biotechnology, as well as to professionals in such areas as philosophy, bioethics, medical ethics, health management, law, and political science.

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Most Helpful Customer Reviews
Format:Paperback
I was very interested in the way the ethics of genetic interventions interact with our sense of justice. This book provides a caleidoscope of the various complex issues surrounding the controversy on genetic interventions, with a heavy emphasis on the preservation of a realistic sense of fairness.

The arguments are reasonable and unbiased. The issues are covered in greath depth and breadth. But this is far from a comprehensive introduction to the subject. The target audience is mainly academia, so the writing style may well put you off (demanding and sometimes esoteric language, whole sections answering arguments by authors you may have never read and often drawn-out discussions on details that you might consider irrelevant).

Still, if you are patient enough to meticulously follow the author's logic, you will be rewarded with a new, enriched perspective, far from both the senseless rejection of fearful conservatives and the unconditional acceptance proposed by the so-called libertarians.

I can definitely see this book as required reading in an ethics course and it is certain that it will be cited in all future discussions on the subject (except if its arguments are deliberately ignored).

In conclusion, buy this book if you are seriously interested in the subject, otherwise you will never finish it.
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Amazon.com:  4 reviews
21 of 26 people found the following review helpful
Interpreting Chance to Choice for the Average Joe? 3 July 2000
By Tom Redick - Published on Amazon.com
Format:Hardcover
I would like to suggest that this book is a landmark in the intellectual history of the human race on a par with Rousseau's Social Contract and Darwin's Origin of the Species. This book is a great achievement for the authors (a "dream team" of practicing bioethicists). I had just enough training in ethics (B.A. Michigan 1982) to understand the book and I enjoyed it immensely.

I wonder, however, whether this book would probably be inaccessible to many readers who should read it. I expect we will need a really thorough set of "Cliff Notes" (or "Genomic Ethics for Dummies"), since this book seems designed to be read by the modern ethical philosopher, moreso than the educated members of the public. Perhaps the reviewers on Amazon.com could provide such a service for the world. I was fortunate to have an advance peek at the book through a conference held in San Diego in January, so I have had some time to reflect on the book's implications.

This book made me intrigued about the prospect for some people using the genome to have better babies (see the book on Designer Babies by Dr. Gosden for the "how to" on in vitro fertilization). Under secular ethical principles, as outlined in this book, do parents have an ethical obligation to use genomic information to have a "healthier" child? If so, what are the ethical boundaries of that obligation? NPR had a report some time ago about some achondroplastic dwarf parents who wanted to choose a child with their genetic "defect" --- is that sometime ethically prohibited by the principles in this book? The parental choice issues raised by this book strike me as the issue ripe for controversy. These are the fundamental questions that this book raises for every member of the human race who plans to procreate (or already has procreated).

My kids will be entering the first generation where prospects for improving admission to the aristocracy (e.g. to an Ivy League school) arguably could begin at the moment of conception (if in vitro, aided by genomic data to screen embryoes). I find that interesting and a little bit alarming.

Chance to Choice also addresses myriad ethical issues (those relating to "distributive justice" in the mode of John Rawls' Theory of Justice) that will spin off from the genome project. They suggest that genetic discrimination (the "genetic ghetto") may arise if we are not careful about how this information is used.

For anyone planning to make a living from the genome, some understanding of this book is essential to their success in business (I am an attorney involved in biotech issues and I think that this book point to (but does not map out) the boundaries of what companies can do with the genome).

My EMail is tredick@chapinlaw.com if anyone interested in discussing this book's implications further. I think that people will be talking about this one until the talking, bipedal genetically enhanced, vegetarian activist cows come home sometime in the next hundred years (just kidding... ;).

I plan to buy some extra copies on Amazon.com to give away or mark up with highlighters (those parts I need to read many times to really understand). It really is a great and timely book.

Tom

10 of 14 people found the following review helpful
Ethics, Eugenics and the human genome 12 July 2000
By "adaptelsi" - Published on Amazon.com
Format:Hardcover
This book addresses all of the neccessary details of the social ramafications involved with our knowledge of the human genome. In this book, the heart wrenching accounts of America's eugenic movement are powerful enough to move anyone to become actively involved in the issues at hand. A real eye opener, one which makes it painstakingly clear that we are not prepared to deal with the information that we have aquired about ourselves and eachother.
An excellent account of how eugenics has gone from being seen as an evil to being acceptable 5 Dec 2009
By Fiona Place - Published on Amazon.com
Format:Paperback|Amazon Verified Purchase
This book is dense and intellectually rigorous. It allows the reader to understand the history of eugenics - how the concept has been shaped and used by many different people and many different agendas over the last two hundred years. My only concern is that it lacks an understanding of the implications of genetic screening and enhancement in the real lived world - that while it may argue there a few ethical and "justice" hurdles in the way of using the knowledge gained from the study of genetics - it does not account for how such changes would impact the lives of real people. It is worth reading however because it demonstrates how easily we have come to accept the ideas put forward by geneticists as to the benefits of genetic screening and illustrates the assumptions many geneticists make about the lives of people disability. That is that many (not all) but many are better off not lived. And that the emphasis should be on prevention rather than cure.
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