It's a shame if you've read the synopsis, as things only become clear as the story develops. I read this book at two sittings - it would have been one had I not been interrupted!
A book about disability which is wonderfully enabling. A book about death which is life-enhancing. And enormously funny. Occasionally scarey. Often very touching.
Whatever you do, remember to read the dictionary at the end - but don't read it till you've read the book or it won't make any sense.
Age range 11+++ I think that adults will enjoy this 'children's' book - well, I did.