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Fighting Fatigue: Managing the Symptoms of CFS/ME [Paperback]

Sue Pemberton , Catherine Berry
4.2 out of 5 stars  See all reviews (24 customer reviews)
RRP: £15.99
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Book Description

31 May 2009
Chronic fatigue syndrome, or myalgic encephalitis, (CFS/ME) affects approximately 180,000 people in the UK. In addition to persistent and abnormal tiredness, sufferers commonly experience muscle pain, headaches, sleep disturbance and loss of concentration as well as a huge range of other symptoms. At its worst it can be completely disabling and yet it is still poorly understood and often regarded as purely psychological. This makes it doubly difficult for sufferers and their carers to cope with. This practical manual comes from a nationally recognized centre for the condition and is jointly written by health professionals and their patients. They give straightforward and specific expert advice, accompanied by real life stories, on managing different aspects of everyday life that can affect energy and they show how to put this advice into practice. They understand the way fatigue affects concentration and therefore break their guidance into easy-to-follow steps that can be worked through at the reader's own pace. Unlike other available books, this does not cover causes, symptoms or the controversy around whether the condition is 'real'. It is purely about how to get better. It is for patients who have been diagnosed with CFS/ME and for their carers. It is also highly relevant to health professionals wanting to provide their patients with self-help strategies that are compatible with the current evidence base. Anyone suffering ongoing, abnormal fatigue will likewise find it a 'must read'.

Frequently Bought Together

Fighting Fatigue: Managing the Symptoms of CFS/ME + Beating Chronic Fatigue: Your step-by-step guide to complete recovery + Living With M.E.: The Chronic, Post-viral Fatigue Syndrome
Price For All Three: £26.27

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Product details

  • Paperback: 200 pages
  • Publisher: Hammersmith Press Limited (31 May 2009)
  • Language: English
  • ISBN-10: 1905140282
  • ISBN-13: 978-1905140282
  • Product Dimensions: 17.2 x 22.2 cm
  • Average Customer Review: 4.2 out of 5 stars  See all reviews (24 customer reviews)
  • Amazon Bestsellers Rank: 255,504 in Books (See Top 100 in Books)
  • See Complete Table of Contents

Product Description

About the Author

Sue Pemberton is a qualified occupational therapist who was involved in setting up the Leeds based CFS/ME service in 1990, one of the first NHS clinics specifically for the condition. She wrote the original therapy programme and has worked clinically with the service throughout its history. Sue is currently the Clinical Champion for the condition for the North, East and West Yorkshire area and contributes to collaborative work nationally in this field. She is the only Consultant Occupational Therapist working in CFS/ME in the country, speaking regularly at national conferences on the condition and contributing to the national training of health professionals. Catherine Berry suffered with CFS/ME for 9 years. Over that time she followed many different treatment options in the hope that they would improve her health. She researched the condition on the internet and read several books which claim to offer advice which will improve the health of sufferers. Nothing seemed to offer practical solutions to the problem. She attended the Leeds and West Yorkshire CFS/ME Service in 2006 and while completing the programme her health significantly improved. She is keen for the information to be available to all those sufferers who are not able to attend the Service personally. Janine Spencer has been the Clinical Team Manager for the Leeds based CFS/ME service since 2005. She is responsible for the management and leadership of the team and service. Janine is also the Clinical Network Co-ordinator for the North East and West Yorkshire area and contributes to collaborative work nationally in this role.

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Front Cover | Copyright | Table of Contents | Excerpt | Index | Back Cover
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Customer Reviews

Most Helpful Customer Reviews
33 of 35 people found the following review helpful
5.0 out of 5 stars Vital Self Help Strategies 29 Sep 2009
Are you wondering whether this book is for you or not? If you are, it may help to ask yourself these simple questions:
1. Do I have a chronic illness with symptoms (any symptoms, not just fatigue) which are exacerbated by exertion? IF SO...
2. Do I feel ready to make lifestyle changes to ease those symptoms (and possibly improve my overall condition)? IF SO...
3. Should I buy this book?
If your answers to the first two questions are yes, this indicates that your answer to the third should probably be yes as well! Whilst this book focuses on the fatigue that some patients experience with Chronic Fatigue Syndrome (or ME), the techniques described work for all the other symptoms of ME and also for those experienced with many other chronic illnesses. The book is essentially a guide to using self-help strategies to minimise symptoms, maximise ability and encourage overall improvement; it does not explore CFS/ME (or chronic fatigue) as a whole and it does not discuss any treatment options aside from those management tools which patients can apply themselves. Patients seeking to find information on medical symptom relief, for example, will have to look elsewhere, but for those who are ready to commit to a self-help regime for managing their condition as a whole the book is invaluable. It provides an excellent tool kit of techniques and approaches, covering the management of daily activity and energy, rest, sleep, diet, stress and relaxation, thoughts and feelings, memory and concentration, dealing with others, physical activity and exercise, relapse and setbacks and carers.

For the book to be of use, you will need to be prepared to make an honest appraisal of your current management and to try to adhere as closely as possible to the advice given.
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16 of 17 people found the following review helpful
4.0 out of 5 stars A sensible and easy read for any ME sufferer. 30 Mar 2011
Format:Paperback|Verified Purchase
Length: 4:46 Mins
I have suffered from ME/CFS since 2001 and am currently bed-ridden. I have read a fair few ME books and find this by far the most sensible. It doesn't go into the reasons why we suffer from this horrid illness but it does give good guidelines on how to manage it.
It's easy to read and is broken down into reasonable sized chunks for foggy brains.

I've attended an ME clinic in my area and this book covers the same sort of day to day ME management.

My only problem with it is that, because I suffer from severe ME, it's a little too above my level of health. eg. it suggests breaking up all activity and rest into 15 minute periods. Well, I'm lucky if I can do 5 mins of activity.

Still, I would recommend it as being one of the best ME books about as I can see how it's advice can work.
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2 of 2 people found the following review helpful
1.0 out of 5 stars heal - don't "manage"! 28 Jun 2014
To me, it's shocking that almost no mainstream doctors and so few "experts", much less writers of books like this, are aware that M.E./CFS symptoms are all - yes ALL - symptoms of low thyroid (hypothyroid), often adrenal fatigue (linked with sometimes hidden copper toxicity), and sometimes also B12 deficiency. Shocking.

There are no lab tests for many causes of low thyroid, so at least 80% of us are mis-diagnosed, because your doctor will only treat lab tests, not you. More than 50% of us have low thyroid yet mainstream medicine claims only 5% of us are hypothyroid.

Of course I don't expect you to believe me, see for yourself with a very simple home self-test: the FREE basal (at rest) temperature self-test is THE gold standard for low thyroid problems and - with your symptoms - means more than any lab test (although most conventional doctors, including endos, won't agree but then they're not trained to understand thyroid problems - thyroiduk[dot]org[dot]uk offers a list of the very few thyroid sympathetic doctors in this country).

"Fibromyalgia" and "ME/CFS" are just names, not diagnoses. A real diagnosis means there is a cure (something that has been brushed away since medicine has so few cures - just synthetic drugs that oppose symptoms, all of which have "side" effects, meaning damage they don't want you to think about). Physicians have little or no way to heal or cure chronic health problems, or to provide adequate pain management. This failure means they are becoming obsolete.

The basal temperature home self-test will pick up conditions that current lab tests don't, such as thyroid resistance. Most digital thermometers are not accurate so find a good basal digital thermometer, the kind used by women to identify their fertile days.
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4 of 4 people found the following review helpful
5.0 out of 5 stars Excellent! 27 July 2013
Format:Paperback|Verified Purchase
I was recently diagnosed with (moderate) CFS/ME but have been suffering with it for years. From the moment I picked this book up, I have found it an excellent resource and support. It's practical, easy to read, and gives you a really good techniques to help you manage the condition. It's written by medical staff and patients who have direct experience of the condition, and you can tell.

It's written for people who have already been diagnosed with the condition, and is targeted as a practical resource to help you manage your symptoms, so it doesn't focus on what may be the cause of CFS/ME (which is still not fully known), and it doesn't promise to 'cure' you. However, if you want practical, easy to read techniques to manage your energy, lifestyle and symptoms to get better control over your life and improve the quality of your life, this is an excellent book! I wholeheartedly recommend it!
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Most Recent Customer Reviews
5.0 out of 5 stars Practical resource
This is a great pratical guide to coping with chronic fatigue symptoms, a must read for anyone determined to find a way to live with the condition
Published 1 month ago by Amazon Customer
4.0 out of 5 stars Very Helpful.
I have severe CFS and haven't found many books to be helpful as they are too wordy for my concentration. Read more
Published 3 months ago by me
5.0 out of 5 stars Excellent book
A must-buy for anyone (like myself) recovering from CFS/ME. It has become my bible, so much so that I bought both a hardcopy and Kindle version. Read more
Published 4 months ago by Suzoke
5.0 out of 5 stars A must-have book!
As an occupational therapist and a sufferer of CFS/ME this book is brilliant resources for all who are looking to manage life with this illness a step (or two) better. Read more
Published 4 months ago by Sharon Thorndike
3.0 out of 5 stars Must have for any one with fibromyalgia
Easy to read informative Good to keep and refer back to.Gives good advice on coping strategies , So show it's not just you,but others have similar issues Very good
Published 8 months ago by JACKIE CORTIN
5.0 out of 5 stars Excellent guide book
This was recommended to me by NHS Consultant. Its used as a handbook for NHS treatment of CFS/ME. Working through it. Hope it gets me well!!
Published 16 months ago by W. Sawyer
4.0 out of 5 stars Practical step by step guide
If you have fibromyalgia, chronic fatigue or even cancer, and you need to know how to live optimally within the boundaries of your fatigue, this is the book for you. Read more
Published 19 months ago by Ruth
5.0 out of 5 stars brilliant
this book is a total must have for anyone diagnosed with chronic fatigue. it tells u everything you want to know or ask
Published 21 months ago by andrea hopkins
5.0 out of 5 stars A must buy
This is a great book for all ME sufferers. I was recommended it by my specialist at the hospital and it is great for giving patients a 'work book' to go through with the aim of... Read more
Published on 2 Sep 2012 by Gabi
2.0 out of 5 stars Over optimistic?
To be honest I was disappointed. Promising reviews led me to believe this might hold some previously undiscovered insights. Read more
Published on 8 Mar 2012 by Customer123
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