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From the Back Cover
The definitive guide to living with endometriosis
Some eighty-nine million women worldwide have endometriosis--or "endo," as it is commonly called. For decades, women with the disease have suffered in silence, and faced a nightmare of misinformation, myths, and unsuccessful treatments. Today, thanks to new awareness and research, hope and relief are available.
Endometriosis is a chronic, often painful hormonal and immune disease that affects girls as young as eight and women in their reproductive years and beyond. The name itself comes from endometrium, the tissue lining inside the uterus. With endo, tissue similar to this lining is found elsewhere, usually in the abdomen, where it causes pain, inflammation, internal bleeding, scarring, infertility, and a host of other medical problems.
Now research pioneered by the Endometriosis Association has established that endo is a "tip of the iceberg" disease. Endometriosis: The Complete Reference for Taking Charge of Your Health provides groundbreaking information on the disease and its relation to several other health problems, including certain cancers, autoimmune problems, environmental illness, and fibromyalgia. Based on the latest research gathered and conducted by Mary Lou Ballweg and the Endometriosis Association, this guide includes information on:
- Surgery and other treatment options
- The role of diet and nutrition in healing
- The connection between endometriosis and cancer
- Infertility and endometriosis
- Teens with the disease
- Surprising new information on menopause and endometriosis
Besides invaluable and cutting-edge advice on treatment this guide also features real women's stories that explore the aspects of living with this disease. This book equips you with the tools you need not only to live with endometriosis but to live well.
Mary Lou Ballweg is founder, president, and executive director of the Endometriosis Association. She is quoted regularly by many major newspapers and magazines.
The Endometriosis Association was founded in 1980 to offer those with endometriosis support and information, educate the public and medical community about the disease, and promote endo research. Headquartered in Milwaukee, Wisconsin, this international organization has members and groups worldwide.
Endometriosis is an enigma-a very complex disease affecting multiple systems in the body. Read the first page
Concordance
Front Cover | Copyright | Table of Contents | Excerpt | Index | Back Cover
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Customer Reviews
The comic strips keep the book readable, but shed a lot of light on the condition.
I had bought the book to be able to read up on the therapy methods, both conventional and alternative. I was looking for pros and cons of each potential method in an easy format.
Unfortunately, I could not see the wood for trees, and gave up on the book as a result.
Warning: if you are a sufferer, do not pick this book up during a time when you feel weak, it might just drown you in self pity
This Complete Reference compassionately discusses the pain, the symptoms, the medical diagnosis and treatments, immunotherapy and nutrition and how they help decrease symptoms, how endo can affect fertility, connections it may have to cancer, how it impacts menopause, how it affects teenagers...It also has motivating chapters on how we can stay strong and continue to be productive through our endo, but with reassuring messages that if the pain and procedures do affect our energy and mental health, what we can do to manage this stress. It also talks about new research and finally, how important it is to share our experience with other women.
I've had endo for probably over 10 years now. I've had 4 laparoscopies (need another one soon), and I've tried every procedure available. Women need to KNOW that there IS NO CURE. Pregnancy does NOT CURE endo. Some undereducated doctors that do not specialize in this disease mistakenly persuade hundreds of thousands of women to have a child when they may not be ready in hopes of curing their disease. Also, some of the procedures MAY cause temporarily symptom relief, but they WILL NOT CURE you of endo. I've been treated in a clinical trial by the best endo team in the world in Maryland, and with research, one day we may have a cure. At this time, we only know it is a stubborn and sometimes debilitating disease. But it does NOT define us. Surround yourself with supportive friends and family. If your doctor doesn't take the time you need to answer your many questions satisfactorily, find another. Respect your right to the best-possible healthcare. Do not be afraid of participating in clinical studies: You can help progress our understanding of the disease and possibly find a cure. They saved me tens of thousands of dollars on much-needed endo treatment for several years, and they supported my mental and emotional health as well.
I would also like to add to a previous reviewer's comments ("Extremely Helpful Endo Reference Guide") and say that a total hysterectomy with removal of the ovaries is NOT necessarily a cure, either - despite the fact many women desperately seeking relief undergo this drastic measure. Women who have their ovaries removed go through tremendous suffering, only to find out their endo is still there, and they are still in pain.
After a laparotomy with one ovary removed, I woke to find myself suffering even more than before the surgery. Finally, years later, I was able to get a copy of the surgery report and found out that despite what I was told, the surgeon did NOT remove ALL the endo - only the active endo. Well, needless to say, I am about to go through yet another surgery with yet another doctor to remove the rest of the endo that is still causing me trouble. The best treatment is TOTAL removal of ALL endo. Read your surgery report. It is likely different and more detailed than what you've been told.
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