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Ehlers-Danlos Syndrome: Your Eyes and EDS

Ehlers-Danlos Syndrome: Your Eyes and EDS [Kindle Edition]

Diana Driscoll O.D.
4.3 out of 5 stars  See all reviews (3 customer reviews)

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Product Description

Product Description

Ehlers-Danlos Syndrome Patients (EDS) patients often manifest numerous ocular symptoms. It is important to understand which symptoms may be indicative of an urgent condition and which are merely annoying. Additionally, it can be difficult to know when a symptom is EDS related or is an indication of a non-EDS condition.

This summary should help guide both patient and doctor with many pieces of the ocular puzzle, guiding both toward conservative, but not unnecessary, treatment and testing.

Product details

  • Format: Kindle Edition
  • File Size: 503 KB
  • Print Length: 40 pages
  • Publisher: Warnick Publishing (24 July 2013)
  • Sold by: Amazon Media EU S.à r.l.
  • Language: English
  • Text-to-Speech: Enabled
  • X-Ray:
  • Word Wise: Not Enabled
  • Average Customer Review: 4.3 out of 5 stars  See all reviews (3 customer reviews)
  • Amazon Bestsellers Rank: #263,740 Paid in Kindle Store (See Top 100 Paid in Kindle Store)
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Customer Reviews

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Most Helpful Customer Reviews
3.0 out of 5 stars Very short 25 April 2014
By vee
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This is more like a brochure than a book. However it is informative although not easy to understand if you have no medical training
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5.0 out of 5 stars Very informative 7 Dec 2013
By TaniaLT
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This book(let) is easy to understand and all the medical terms are explained meaning it is very accessible to the lay person.
Dr Driscoll is not only knowledgeable about eye conditions related to EDS but as a patient herself you know that she understands from a personal perspective as well.
I'm reading it as I wait at the eye clinic so I can show my eye doctor!
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5.0 out of 5 stars Good visual examples 10 Sep 2013
By Barbara
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It's one thing reading about a topic but as they say "a picture says a thousand words", this book has many good visual examples and carefully thought out explanations, that help the non-professional reader to understand what to look for, what's going on and more importantly, why. Thank you Dr Diana, for another pearl of wisdom.
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Most Helpful Customer Reviews on (beta) 4.1 out of 5 stars  8 reviews
8 of 8 people found the following review helpful
5.0 out of 5 stars Must have for those with Ehlers Danlos Syndrome & Connective Tissue Diseases 4 Sep 2013
By Sunshiney - Published on
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Dr. Driscoll has done a fantastic job of condensing the most common eye issues those of us with Ehlers Danlos Syndrome and other connective tissue diseases need to be aware of. She has written this in a balanced way that allows a lay person like myself to gain a better understanding of the eye, how it works, and what risks we need to be aware of. At the same time, it is not overly catered to the lay person. It is written in a way that will appeal to professionals like optometrists and ophthalmologists alike.

As a bonus, after purchasing the e-book, Dr. Driscoll invites you to email her to request a `check list' that you can bring with you to your eye care professional. This list highlights the most common eye related issues your eye care professional may need to be screening for. This list was tremendously helpful during my recent appointment with an ophthalmologist and certainly brought to his attention EDS eye related conditions that he had not been previously aware of. Given his young age, I wonder how many other EDS patients he will now be able to further help in his career after reading Dr. Driscoll's `checklist'?

The only other EDS/ eye resource I am aware of is a pamphlet available from a popular EDS support network. Although the basics in that pamphlet are certainly helpful, this e-book dives in much, much deeper, giving both patient and doctor the needed insight into the very real eye issues that can and do exist in EDS/ connective tissue disease patients.

AND....unbelievably, the proceeds from this book are going to research. So it's a win win all the way around!

Thanks Dr. Driscoll!
2 of 2 people found the following review helpful
5.0 out of 5 stars very informative! 30 Sep 2013
By Kathleen Meadows - Published on
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Dr. Diana Driscoll is a life saver, her continuing research has made my life better! I hurt less and am able to function on a normal level everyday thanks to Dr. Diana and her Driscoll theory. If you are suffering from a connective tissue syndrome this is a must read!
2 of 2 people found the following review helpful
5.0 out of 5 stars Great Insight! 27 Sep 2013
By J. Stinespring - Published on
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With all of the symptoms of EDS, we are typically asked which are the top 3 issues that we face at each doctor's appt. Lack of sleep, fatigue (blood pressure irregularities), and brain fog usually top the list, and all that are typically dealt with at any said appointment. The eye symptoms are often over-looked by me, the patient, as well, as the physician, who is typically not an opthamalogist. Thank you for bringing my attention to our eyes and the attention we need to give them as patients, as well as our role as informants to our physicians. Thanks for your dedication to EDS research and all of the resources and hope you bring to our lives.
5.0 out of 5 stars Very well written and informative 21 Jun 2014
By PChang - Published on
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The book is the most comprehensive source of eye conditions and EDS Its wells illustrated and easy to understand. Well referenced
5.0 out of 5 stars grest information 7 Oct 2013
By Great information - Published on
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Just what I needed after bad news at the Optometrist regarding distorted vision. Now I feel prepared for meeting my Opthamologist
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