Down Syndrome (The Facts)
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Product Description
Review
This is an excellent book, Its open and sensitive approach is aimed principally at parents, However the breadth and depth of coverage is such that is will be of interest to most professionals working in this field. All the important areas are covered, including some such as marriage and procreation which are not always considered. The issues are presented in a clear factual manner, emphasising at all times the characteristics that people with Down Sumdrome have in common with all people - their individuality, dignity, right to choice and potential to benefit from appropriate opportunity. (Journal of Paediatrics and Child Health )
Product Description
row will we cope? Why did it happen to us? How will we tell our other children? What help is available to us? Will our child be able to work, to marry, or have children? These are just a few questions frequently asked by parents that are discussed in this positive, practical, and comprehensive guide. Dr. Mark Selikowitz, a consultant paediatrician, has drawn on his extensive experience of children with Down syndrome to write this sympathetic and authoritative book, and to dispel the many false notions about the syndrome. Most children are now brought up at home and this book gives their parents the information they need to make choices about treatment, education, and general welfare. In this new edition, he looks at the many new developments that have taken place over the past few years in educational, social, and employment opportunities for people with Down syndrome as well as changes in community attitudes. A particularly encouraging development is the greater attention paid to the wishes of people with Down syndrome, and this book offers advice and reassurance to these people as well as providing an essential guide to their parents and the many health workers who have contact with Down syndrome children and adults.
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First Sentence
Most parents react with shock and dismay on hearing that their newborn baby has Down syndrome. Read the first page
Front Cover | Copyright | Table of Contents | Excerpt | Index | Back Cover
Most parents react with shock and dismay on hearing that their newborn baby has Down syndrome. Read the first page
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Front Cover | Copyright | Table of Contents | Excerpt | Index | Back Cover
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Most Helpful Customer Reviews
18 of 18 people found the following review helpful:
3.0 out of 5 stars
JJ's Mum thinks...,
By A Customer
This review is from: Down Syndrome: The Facts (Paperback)
We have an 8 month old daughter affected by Down's & wanted some further information regarding the syndrome even though she is progressing fantastically well. This is the initial book for new parents recommended by Downs Syndrome Scotland, but I feel that this 2nd edition from 1997 is overdue for updating. It is written sympathetically, yet somehow fails to be overly optimistic in certain parts. For example knowledgable professionals would not now quote that it may take up to 10 years before most children affected by Downs will acheive the fine motor skill of drawing a recognisable human figure. The chapter re adolesence is the most outdated, suggesting that sexual comprehension is at age 5 or 6 in adolesents, plus a pet or babysitting may substitute a child of their own! Dispite these criticisms I have not yet found a significantly improved first book for parents. The initial chapters with the facts appear satisfactory and the chapter on early intervention is helpful. My advice would be by all means read it, but I found the more accurate & up to date information was supplied via the Downs Syndrome leaflet publications. It's high time we had an up to date, UK publication for new parents. Let us all know if it exists!
5.0 out of 5 stars
Perfect for Me,
By
This review is from: Down Syndrome (The Facts) (Paperback)
This was the first book we lay our hands on when our son was born. How much info you want and can cope with is very personal but I found this book perfect for me. It's well structured so you can dip in and out and find the information you need at the time without getting overwhelmed. I found the balance between positive and realistic just right, at a time when we needed a bit of a pep talk!
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Most Helpful Customer Reviews on Amazon.com (beta) Amazon.com:
3.3 out of 5 stars (3 customer reviews) 10 of 11 people found the following review helpful:
4.0 out of 5 stars
A very good overview,
By Kim Byrne - Published on Amazon.com
This review is from: Down Syndrome: The Facts (Paperback)
I read this book shortly after my son was born with Down Syndrome. It was not as "mushy" as the Stray-Gunderson book. It has wonderful information on the joys of raising a child with down syndrome, while giving very specific information on potential health problems and what to be sure your pediatrician is aware of. I liked the fact that he recomends that the parent is the child's biggest advocate, and that we prepare ourselves for that role.
7 of 7 people found the following review helpful:
5.0 out of 5 stars
Positive and informative,
By Thomas Paul - Published on Amazon.com
This review is from: Down Syndrome: The Facts (Paperback)
Written by an Australian pediatrician, this book is both positive and informative. The book presents a great deal of material but does it in an clear and accessible style . The author is extremely optimistic about the future of people with Down syndrome and this optimism shows in his writing. The material covered includes early childhood development, school, adolescence, and adulthood. Laws in the US, UK, and Australia are covered.
11 of 15 people found the following review helpful:
1.0 out of 5 stars
Buy a different book!!,
By Rose "The Bat Lady" - Published on Amazon.com
This review is from: Down Syndrome: The Facts (Paperback)
I read this book yesterday at the library and found the author to be spineless, inhumane and downright mean. This person should have never written this book!!The beginning of the book explains the many emotions parents, siblings, grandparents etc. may experience when faced with a Down syndrome diagnoses, but the advise given is from the heart of a man who couldn't go into the nursery to see or touch his baby for three days simply because she has DS. An extra chromosome 21 does not render a person unlovable or contagious. The author does assure the reader that love will blossom but it could take some time. There's nothing wrong with that advice but a serious attitude adjustment is in order. I understand not everyone's reactions are the same but a loving heart is a loving heart even if it may be paralyzed for a bit by shock or other emotions. This author's poor daughter needed to be hugged and kissed and cuddled by her dad. His actions shouldn't have been guided by his emotions. He should have seen to the baby's needs and let his emotions catch up with his obligation to care for his baby. I dealt with my emotions when my son was diagnosed with DS. In my eyes he's the cutest most wonderful baby on the planet as were my other children when they were the babe in my arms. The book goes on to explain that siblings may have negative feelings toward the sibling with DS. The author suggests that you let the siblings know that they will not be responsible for the care of the sibling with DS after the parents are no longer able to. GRRRR!! Siblings should want to support each other whether they have DS or not. For the brother or sister with DS it may be visiting at an assisted living facility or opening up an extra bedroom. My younger brother was born with DS and we always knew he needed more care and attention than the rest of us. We gave it willing. We were just dealt a different hand than other families. The author wants parents to help their children deal with taunts about their sibling with DS by allowing the child to take it out on the parents. What?!!! Subtract DS from the equation and see how to deal with taunting and teasing. It's the same situation when DS is added back in. The book includes the same clinical information about DS as any other book so it's no goldmine of knowledge. The author explains the prenatal tests available to detect DS. There is a warning about the possibility of a miscarriage but concludes that parents are going to have to decide for themselves if they would terminate the pregnancy if DS is detected. I would have loved to read that the author found such joy in raising a daughter with DS that he encourages parents to see past societies shallowness and love their baby but the author never does. I know I'm a better person because I had the privilege of being touched by DS. I'm the mother and the sister of wonderful people, two of them have an extra chromosome. I wish I could impress upon every man, woman and child that DS is not a curse. This book doesn't do anything to bring that wish to fruition. |
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