- Paperback: 109 pages
- Language English
- ISBN-10: 0979476933
- ISBN-13: 978-0979476938
- Product Dimensions: 20.6 x 6.9 x 1.3 cm
- Amazon Bestsellers Rank: 524,906 in Books (See Top 100 in Books)
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18 reviews
45 of 48 people found the following review helpful
Incredibly practical and wise.
17 Aug 2007
Format:Paperback
This crisp, clear book gives excellent practical approaches to living with, and hopefully recovering from, our weird disease. I wish it was there when I first got sick. First, I would have known better that I was not alone, or nuts. And I would have had really good strategies to deal. If this woman could climb a mountain, maybe I'll be swimming a mile a day again, as I used to do. She tells you not only what worked for her, but what didn't. I could have skipped a few bad turns myself. I agree with her that getting sleep is critical and I used her strategy to do that. She doesn't sugar coat her experiences which I feel is helpful. So when she describes her recovery, that is just the best. I highly recommend this book for helpful and hopeful information.
32 of 33 people found the following review helpful
Best for those newly diagnosed and able to rest
1 July 2008
Format:Paperback|Amazon Verified Purchase
This book is excellent for helping a person with CFS feel less alone with this confounding disease; Kilcoyne definitely "gets it". The chapter about finding "your own version of CFS" is right on. However, she really did have all the makings of success: a loving advocate in her (employeed) husband so she was able to Be A Patient and a good support network including an open-minded doctor who worked with her. In reality, many of us are financially unable to drop everything and attend to our health in the early days of CFS when healing is optimal, and are frustratingly unable to find a doctor who will work with us rather than write us off. Still, her idea of keeping a Daily Record (and what factors to include ) is a great one which I believe may help me even after 14 years. Bottom line: a bit naive but not without merit.
30 of 31 people found the following review helpful
A clear 8-step protocol.
14 Sep 2008
Format:Paperback|Amazon Verified Purchase
After 8 years of 'doctor-shopping' and trying way too many things that didn't work, I was a little hesitant to buy yet another book. But I'm not sorry I added it to my next Amazon order!
I recognized an awful lot in the author's story. Which in general is to be expected, but to me the specifics really stood out (could have been my medical record, minus the pregnancy.)
The book is the author's story, mixed in with an 8 step protocol (and a good explanation of why to follow it) with which she made a full recovery. Something to really look forward to!
This are the steps, obviously explained in detail in the book:
1. Understand your version of CFS.
-- Keep a daily short log of activities/rest periods, sleep, symptoms, meds
2. Find a doctor who will work with you.
3. Break the cycle of fatigue
-- Strict rule: Sleep at least 10 hours a night! And apparently after a few months of keeping a log you will notice a pattern, and know what is `too much' - that way you can avoid the `major crash after'.
4. Build a support network
5. Be sick! Be a patient!
-- aka: ignore what others think of you and don't feel guilty for taking care of yourself.
6. Fuel your wellness
-- General health info, with the addition of vitamin/supplement recommendations
7. Maintain an optimal blood pressure.
-- Mine, like the authors, turned out to be constantly low (105/65) -> fixable!
8. Manage your stages of recovery.
I wish there was one extra part explaining a little more about 'finding the pattern' for step 3. (Just an example of hers would be good).
I guess I'll figure it out in a few months, or let someone more awake look at it.
I've been following the steps for only a week now, but I hope to report results in a few months (will be in the comments).
Four stars for now, for a clear and easy-to-read book.
Might change to five - I certainly hope so.
I recognized an awful lot in the author's story. Which in general is to be expected, but to me the specifics really stood out (could have been my medical record, minus the pregnancy.)
The book is the author's story, mixed in with an 8 step protocol (and a good explanation of why to follow it) with which she made a full recovery. Something to really look forward to!
This are the steps, obviously explained in detail in the book:
1. Understand your version of CFS.
-- Keep a daily short log of activities/rest periods, sleep, symptoms, meds
2. Find a doctor who will work with you.
3. Break the cycle of fatigue
-- Strict rule: Sleep at least 10 hours a night! And apparently after a few months of keeping a log you will notice a pattern, and know what is `too much' - that way you can avoid the `major crash after'.
4. Build a support network
5. Be sick! Be a patient!
-- aka: ignore what others think of you and don't feel guilty for taking care of yourself.
6. Fuel your wellness
-- General health info, with the addition of vitamin/supplement recommendations
7. Maintain an optimal blood pressure.
-- Mine, like the authors, turned out to be constantly low (105/65) -> fixable!
8. Manage your stages of recovery.
I wish there was one extra part explaining a little more about 'finding the pattern' for step 3. (Just an example of hers would be good).
I guess I'll figure it out in a few months, or let someone more awake look at it.
I've been following the steps for only a week now, but I hope to report results in a few months (will be in the comments).
Four stars for now, for a clear and easy-to-read book.
Might change to five - I certainly hope so.
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