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Defeat Chronic Fatigue Syndrome: You Don't Have to Live With It, an Eight Step Protocol [Paperback]

Martha E. Kilcoyne

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Most Helpful Customer Reviews on (beta) 4.4 out of 5 stars  21 reviews
37 of 38 people found the following review helpful
3.0 out of 5 stars Best for those newly diagnosed and able to rest 1 July 2008
By Kate Whittaker - Published on
Format:Paperback|Verified Purchase
This book is excellent for helping a person with CFS feel less alone with this confounding disease; Kilcoyne definitely "gets it". The chapter about finding "your own version of CFS" is right on. However, she really did have all the makings of success: a loving advocate in her (employeed) husband so she was able to Be A Patient and a good support network including an open-minded doctor who worked with her. In reality, many of us are financially unable to drop everything and attend to our health in the early days of CFS when healing is optimal, and are frustratingly unable to find a doctor who will work with us rather than write us off. Still, her idea of keeping a Daily Record (and what factors to include ) is a great one which I believe may help me even after 14 years. Bottom line: a bit naive but not without merit.
47 of 50 people found the following review helpful
5.0 out of 5 stars Incredibly practical and wise. 17 Aug 2007
By Naoise'sGirl - Published on
This crisp, clear book gives excellent practical approaches to living with, and hopefully recovering from, our weird disease. I wish it was there when I first got sick. First, I would have known better that I was not alone, or nuts. And I would have had really good strategies to deal. If this woman could climb a mountain, maybe I'll be swimming a mile a day again, as I used to do. She tells you not only what worked for her, but what didn't. I could have skipped a few bad turns myself. I agree with her that getting sleep is critical and I used her strategy to do that. She doesn't sugar coat her experiences which I feel is helpful. So when she describes her recovery, that is just the best. I highly recommend this book for helpful and hopeful information.
34 of 35 people found the following review helpful
4.0 out of 5 stars A clear 8-step protocol. 14 Sep 2008
By KateJones - Published on
Format:Paperback|Verified Purchase
After 8 years of 'doctor-shopping' and trying way too many things that didn't work, I was a little hesitant to buy yet another book. But I'm not sorry I added it to my next Amazon order!

I recognized an awful lot in the author's story. Which in general is to be expected, but to me the specifics really stood out (could have been my medical record, minus the pregnancy.)

The book is the author's story, mixed in with an 8 step protocol (and a good explanation of why to follow it) with which she made a full recovery. Something to really look forward to!

This are the steps, obviously explained in detail in the book:

1. Understand your version of CFS.
-- Keep a daily short log of activities/rest periods, sleep, symptoms, meds
2. Find a doctor who will work with you.
3. Break the cycle of fatigue
-- Strict rule: Sleep at least 10 hours a night! And apparently after a few months of keeping a log you will notice a pattern, and know what is `too much' - that way you can avoid the `major crash after'.
4. Build a support network
5. Be sick! Be a patient!
-- aka: ignore what others think of you and don't feel guilty for taking care of yourself.
6. Fuel your wellness
-- General health info, with the addition of vitamin/supplement recommendations
7. Maintain an optimal blood pressure.
-- Mine, like the authors, turned out to be constantly low (105/65) -> fixable!
8. Manage your stages of recovery.

I wish there was one extra part explaining a little more about 'finding the pattern' for step 3. (Just an example of hers would be good).
I guess I'll figure it out in a few months, or let someone more awake look at it.

I've been following the steps for only a week now, but I hope to report results in a few months (will be in the comments).
Four stars for now, for a clear and easy-to-read book.
Might change to five - I certainly hope so.
34 of 40 people found the following review helpful
5.0 out of 5 stars Be Well Again! 8 Aug 2007
By Snowdonia - Published on
This is the first book that I have read about CFIDS (I've read tons in hopes of finding the key to get better) that really lays out what you should do to start HEALING!

The seven step protocol in "Defeat Chronic Fatigue Syndrome- You Don't Have To Live With It" explains exactly what you should do to give your body the best chance at healing itself. One of the steps that I really liked stated that you should "allow yourself to be sick." This seems easy, but for someone with a disease that is looked down upon, if not outright disbelieved, allowing yourself to "be sick" is very difficult. But in order to GET WELL you MUST allow yourself to rest and sleep enough to give your immune system the ability to have the energy to heal itself. This is just one of the seven protocols laid out in the book, all steps are invaluable.

This book has been what I have been waiting for- a "how to" on how to get well. Don't wait to buy it, your life is waiting on you.
17 of 20 people found the following review helpful
5.0 out of 5 stars Don't give up - read this book! 22 Aug 2007
By E. Rice - Published on
Martha Kilcoyne puts into words what I have known in my "gut" for five years now. You have to be A patient and have patience.

Her small book(I carry it around in my purse)summarizes the HOW TO of getting better for CFS sufferers. She explains it isn't simple, or easy to make the lifestyle changes but worth it in the long run.

I have read other books on CFS that were much longer and not nearly as helpful. She just gets to the point faster.

There are no easy solutions but there is hope. Martha's book gives us back that hope.
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