- Paperback: 180 pages
- Publisher: Grosvenor House Publishing Ltd (13 May 2011)
- Language English
- ISBN-10: 1908105097
- ISBN-13: 978-1908105097
- Product Dimensions: 22.9 x 15.2 x 1 cm
- Average Customer Review: 5.0 out of 5 stars See all reviews (3 customer reviews)
- Amazon Bestsellers Rank: 746,305 in Books (See Top 100 in Books)
Curse in Verse and Much More Worse
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Product Description
Product Description
Using poetry and prose, this book aims at describing Huntington's disease through the eyes of a carer based on her own experiences, and those of many hundreds of carers and sufferers.
With over seventy poems, and their supplementary stories grouped within eight themes from science to society, it touches on the practical side of caring and darker side of human nature.
Being the complex beast that it is, the book not only covers an insight into Huntington's but into the plight of people suffering from all kinds of mental and physical disability, and of those caring for them.
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Customer Reviews
Most Helpful Customer Reviews
2 of 2 people found the following review helpful
Format:Paperback
I thoroughly recommend this book if you want to really grasp the impact of a ruthless genetic brain disorder on individuals and families, and how people deal with the challenges it poses. The book is so well written with informative explanations and discussions heading up thoughtful, insightful, sometimes cutting, sometimes witty poetry.
This doesn't have to be read cover to cover in one go, but be careful if pushed for time- you might find you can't put it down. It can be dipped in to- I am doing that and I find after taking on board one short poem, I have so much to absorb from it and think about. It's deep and provocative, but the style is light, and very digestable, and enjoyable. It's definately not doom and gloom, it is most uplifting and sometimes hilarious--- I love 'The Dyno Rod'... so true, so funny.
It is about living with Huntington's disease, but it is about dealing with whatever life throws at you, even if actually, you have no personal connection to HD. If you do, this could be a great aid to get you through. Some tricky topics are faced--- Trish is not afraid to consider sticky issues such as animal experimentation; difficulties for individuals surrounding being gay; being HIV positive; problems with insurance... OK, enough from me. My favourite at the moment is 'The Magic of Music'... how friends find that from a deteriorating prematurely old frame, music draws out their old mate. Enjoy the read.
This doesn't have to be read cover to cover in one go, but be careful if pushed for time- you might find you can't put it down. It can be dipped in to- I am doing that and I find after taking on board one short poem, I have so much to absorb from it and think about. It's deep and provocative, but the style is light, and very digestable, and enjoyable. It's definately not doom and gloom, it is most uplifting and sometimes hilarious--- I love 'The Dyno Rod'... so true, so funny.
It is about living with Huntington's disease, but it is about dealing with whatever life throws at you, even if actually, you have no personal connection to HD. If you do, this could be a great aid to get you through. Some tricky topics are faced--- Trish is not afraid to consider sticky issues such as animal experimentation; difficulties for individuals surrounding being gay; being HIV positive; problems with insurance... OK, enough from me. My favourite at the moment is 'The Magic of Music'... how friends find that from a deteriorating prematurely old frame, music draws out their old mate. Enjoy the read.
1 of 1 people found the following review helpful
Format:Kindle Edition
This is a wonderful book. It is amazing, emotional, insightful, thoughtful all at the same time. It gives a perspective into Huntington's Disease that no one else has been able to achieve. If you are a carer, read this book. If you are HD+, read this book. If you know someone that has Huntington's Disease, read this book. You will read, learn, cry and be amazed all at the same time.
Essential reading, and the bench mark of its genre.
Essential reading, and the bench mark of its genre.
1 of 1 people found the following review helpful
Format:Paperback
Trish has put her whole heart and soul into this work which so vividly and compassionately describes in verse and prose the various stages, problems, heartaches and desperate hopes that are 'part and parcel' of this terrible disease.
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