I thoroughly recommend this book if you want to really grasp the impact of a ruthless genetic brain disorder on individuals and families, and how people deal with the challenges it poses. The book is so well written with informative explanations and discussions heading up thoughtful, insightful, sometimes cutting, sometimes witty poetry.
This doesn't have to be read cover to cover in one go, but be careful if pushed for time- you might find you can't put it down. It can be dipped in to- I am doing that and I find after taking on board one short poem, I have so much to absorb from it and think about. It's deep and provocative, but the style is light, and very digestable, and enjoyable. It's definately not doom and gloom, it is most uplifting and sometimes hilarious--- I love 'The Dyno Rod'... so true, so funny.
It is about living with Huntington's disease, but it is about dealing with whatever life throws at you, even if actually, you have no personal connection to HD. If you do, this could be a great aid to get you through. Some tricky topics are faced--- Trish is not afraid to consider sticky issues such as animal experimentation; difficulties for individuals surrounding being gay; being HIV positive; problems with insurance... OK, enough from me. My favourite at the moment is 'The Magic of Music'... how friends find that from a deteriorating prematurely old frame, music draws out their old mate. Enjoy the read.