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Product Description
Product Description
When first published, this guide was the only book to offer up-to-date information and advice for families. Now in an updated edition, "Children with Tourette Syndrome" offers even more. There's new information on the latest research and medical developments in the field, and sections on education, legal rights, family life, daily care, and emotional issues are thoroughly revised. Written by leading experts in the field and experienced parents, this guide provides an excellent blend of professional expertise and empathetic advice. Families with newly diagnosed children find answers to their most pressing questions about this often perplexing neurological disorder, as well as coping strategies and emotional support. This second edition includes new information about the effects of Tourette syndrome at different stages of development from childhood into adulthood. There's more on coexisting conditions such as obsessive-compulsive disorder, Asperger syndrome, and learning disabilities. The book also provides an overview of the biochemistry of TS, what to expect from a medical workup, as well as a discussion of more than 30 different drugs used to treat TS and related conditions. There are strategies for coping with many of the challenging characteristics of TS such as impulsivity, obsessive thoughts, attention and sleep problems, and difficulties with sensory integration. A new chapter on Habit Reversal Training (HRT) explains how this behavior intervention can help some people control tics. Parents find the latest on special education rights, and expanded information on how to design an appropriate education plan for their child. For families raising a child with TS, this comprehensive handbook gives them hope and relieves their sense of isolation. It's also essential reading for professionals and teachers who need to understand this complex disorder.
About the Author
Tracy Haerle, Editor
--This text refers to an out of print or unavailable edition of this title.
Inside This Book
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First Sentence
Tourette syndrome (TS) is a baffling disorder. Read the first page
Front Cover | Copyright | Table of Contents | Excerpt | Index | Back Cover
Tourette syndrome (TS) is a baffling disorder. Read the first page
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Front Cover | Copyright | Table of Contents | Excerpt | Index | Back Cover
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Customer Reviews
Most Helpful Customer Reviews
11 of 11 people found the following review helpful
Format:Paperback
A compilation of articles by parents, doctors and educators, this book is a solid introduction for families who have one or more children with Tourettes Syndrome. At the end of each chapter is a collection of comments by parents on how they have learned to cope with TS, and their disappointments and triumphs.
9 of 9 people found the following review helpful
Format:Paperback
I have enjoyed this book thoroughly. It is full of useful information that covers pretty well most topics that affect a family with Tourettes. It is written in an easy to read format that is well laid out and doesn't overload the reader with technical jargon that is hard to understand. It helped me to feel more informed and therefore more in control of what is happening to our family.
Most Helpful Customer Reviews on Amazon.com (beta)
Amazon.com:
11 reviews
37 of 37 people found the following review helpful
Very informative, enormously helpful, with great advice
13 Jun 2001
Format:Paperback
My 8-year-old son has ADHD, OCD and tic disorders (though not full-blown Tourette Syndrome). This book was an enormous help for me in understanding the tic disorder and also the ADHD and OCD which often co-occur with TS and tic disorders. It is written in a very easy to read, friendly, compassionate way. There is a lot of clear advice here. TS is complex and often misunderstood. The book helps you cope with and understand many of the related problems. It teaches acceptance, dealing with friends, relatives, schools, etc. It is a very thorough book. After reading it, I felt less helpless and more empowered to deal with these issues. The book talks about the importance of acknowledging your child's frustrations and feelings, which will help him to learn to share them more directly with you. For example, saying, "I know you're trying really hard, and it's frustrating when the other students can't seem to understand that you can't stop doing certain things." This book helps you to also empower your child, and to embrace what is special about him. It says, "If you believe in your child as an individual whose Tourette syndrome is only one aspect of her total being, your child will also be more likely to see herself as someone with abilities, rather than disabilities." I strongly recommend this book. It will help.
25 of 26 people found the following review helpful
Jam Packed Guide for Parents and Professionals
25 Mar 2002
Format:Paperback
This is a compact little guide is packed with useful information both for parents and professionals. It is not cluttered with long narratives of people's "personal stories". While there is definitely a place for that approach, I needed a quick primer that would easily acquaint me with the full range of difficulties faced by a child with Tourette Syndrome as well as those faced by her parents. As a clinican, I needed to arm myself in a hurry with an understanding of the essential issues relevant to this population in order to manage a school crisis. It gave me everything I needed to effectively advocate for my young client and her parents.
It is a quick read, informative and clear. The book humanizes TS and provides basic information about etiology, development, and treatment, medication, symptom management, and guidlines on how to interact with school staff. Suggestions for designing an effective educational plans,advocacy strategies, and a basic description of legal rights are also included.
I recommend this book without hesitation.
17 of 17 people found the following review helpful
Excellent Resource For Parents
31 Mar 2005
Format:Paperback
My son has Tourettes. This was the first book that I bought when he was diagnosed and I found it to be invaluable. It is a great resource for the parents of the newly diagnosed or even those who have been dealing with it for some time. The book lets you know what to expect and how to cope. A must have for anyone dealing with a special needs child with this disorder.
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