- Paperback: 188 pages
- Publisher: Jessica Kingsley Publishers (1 May 2000)
- Language English
- ISBN-10: 1853028746
- ISBN-13: 978-1853028748
- Product Dimensions: 23 x 15.6 x 1.2 cm
- Average Customer Review: 5.0 out of 5 stars See all reviews (1 customer review)
- Amazon Bestsellers Rank: 567,154 in Books (See Top 100 in Books)
- See Complete Table of Contents
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Review
'Jane Gregory's honest account of her experience as the mother of Chrissy, her daughter who has complex needs including epilepsy, learning difficulties and challenging behaviour, should be on the reading list for every professional in the field. What is so impressive about this account is its author's ability to follow threads that have connected Chrissy to the rest of her world, and so provide a complete picture. The book not only examines the long journey to a diagnosis and appropriate provision for grandparents, and professionals. While [the book] covers in great detail the difficulties, trials and tribulations that Jane has experienced, it seeks always to balance this with the positives - the joy experienced in the small steps of progress; the relief felt when a professional spends time trying to understand. One of the key messages is that progress is best made when professionals listen to parents, and together they work as a team.' --National Society of Epilepsy
'Social workers, psychologists and doctors do need to hear from the frontline about the anger and frustration which parents feel. The book catalogues the faults and failures of services. Frustration and disappointment abound. Doctors fail to give diagnoses, social workers disappoint, teachers and psychologists do their best.' 'Jane Gregory takes us through life so far with her daughter: the slow, chilly realisation that she was not developing normally, the refusals by health professionals to take her concerns seriously and the stress of coping with violent, obsessive behaviour whilst caring for two young siblings. Jane shares these experiences and the effect they had on her family candidly in a book full of energy and compassion. Her struggles to find solutions to manage Chrissy's behaviour and health is full of practical suggestions and information.' --Community Care
'Jane Gregory gives a moving personal account of bringing up a child with an undiagnosed disability. Chrissy, Jane's eldest child, exhibits complex and challenging behaviour, including screaming fits, self-mutilation and violent outbursts. This is an easy-to-read and informative book, giving an insight to readers, into what it is like to bring up a child with complex and challenging behaviour.' --Share an Idea
'Social workers, psychologists and doctors do need to hear from the frontline about the anger and frustration which parents feel. The book catalogues the faults and failures of services. Frustration and disappointment abound. Doctors fail to give diagnoses, social workers disappoint, teachers and psychologists do their best.' 'Jane Gregory takes us through life so far with her daughter: the slow, chilly realisation that she was not developing normally, the refusals by health professionals to take her concerns seriously and the stress of coping with violent, obsessive behaviour whilst caring for two young siblings. Jane shares these experiences and the effect they had on her family candidly in a book full of energy and compassion. Her struggles to find solutions to manage Chrissy's behaviour and health is full of practical suggestions and information.' --Community Care
'Jane Gregory gives a moving personal account of bringing up a child with an undiagnosed disability. Chrissy, Jane's eldest child, exhibits complex and challenging behaviour, including screaming fits, self-mutilation and violent outbursts. This is an easy-to-read and informative book, giving an insight to readers, into what it is like to bring up a child with complex and challenging behaviour.' --Share an Idea
Product Description
Chrissy is Jane Gregory's oldest child, an attractive girl with a tremendous sense of fun. She also exhibits behaviour which other people find challenging - screaming fits, stripping off her clothes, violent outbursts and self-mutilation. It was apparent from an early age that Chrissy had a learning disability, and subsequently that she suffered from cyclical mental illness. At the age of 22, researchers at Great Ormond Street found the cause of her condition to be genetic. In "Bringing Up a Challenging Child at Home", Jane Gregory describes her life with Chrissy candidly and pragmatically. She relates her struggles to cope with Chrissy's difficult behaviour, the effects on the rest of the family, and her attempts to understand the reasons behind it. Offering practical advice for other parents, she explains how she got the right support and effective treatment. Her story provides professionals as well as parents with a unique insight into what it is like to bring up a complex and challenging child.
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First Sentence
A tidal wave of love hit me the moment I saw Chrissy. Read the first page
Front Cover | Copyright | Table of Contents | Excerpt
A tidal wave of love hit me the moment I saw Chrissy. Read the first page
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Most Helpful Customer Reviews
1 of 1 people found the following review helpful
Format:Paperback|Amazon Verified Purchase
The author Jane Gregory, talks honestly and openly about bringing up her daughter Chrissy who has a learning disability and who exhibits behaviour that is very challenging - screaming bouts, self mutilation, stripping off her clothes and violent outbursts.
Usually when a child reaches a certain age the parents will have done the rounds of hospital appointments with the experts, have a diagnosis and know what they're dealing with. Chrissy's mother never had that peace of mind. Doctors shared their expertise with each other but never with Chrissy's mother and as a result she has had to do her own research and is a self taught expert.
Twenty years ago books about raising such a difficult child would be written by experts. Today parents are writing their own.
Having a daughter with severe learning difficulties has led me to read many many books on this subject but I have to say that Jane Gregory's journey with her daughter and continuous search for the correct diagnosis is the most compelling one I have read.
This book will be of great interest to both parents and professionals and I would highly recommend it.
Usually when a child reaches a certain age the parents will have done the rounds of hospital appointments with the experts, have a diagnosis and know what they're dealing with. Chrissy's mother never had that peace of mind. Doctors shared their expertise with each other but never with Chrissy's mother and as a result she has had to do her own research and is a self taught expert.
Twenty years ago books about raising such a difficult child would be written by experts. Today parents are writing their own.
Having a daughter with severe learning difficulties has led me to read many many books on this subject but I have to say that Jane Gregory's journey with her daughter and continuous search for the correct diagnosis is the most compelling one I have read.
This book will be of great interest to both parents and professionals and I would highly recommend it.
Most Helpful Customer Reviews on Amazon.com (beta)
Amazon.com:
1 review
She Walked The Walk and She Can Talk The Talk
13 Feb 2012
Format:Paperback
The author Jane Gregory, talks honestly and openly about bringing up her daughter Chrissy who has a learning disability and who exhibits behaviour that is very challenging - screaming bouts, self mutilation, stripping off her clothes and violent outbursts.
Usually when a child reaches a certain age the parents will have done the rounds of hospital appointments with the experts, have a diagnosis and know what they're dealing with. Chrissy's mother never had that peace of mind. Doctors shared their expertise with each other but never with Chrissy's mother and as a result she has had to do her own research and (in my opinion) is a self taught expert.
Twenty years ago books about raising such a difficult child would be writtn by experts. Today parents are writing their own.
Having a daughter with severe learning difficulties has led me to read many many books on this subject but I have to say that Jane Gregory's journey with her daughter and continuous search for the correct diagnosis is the most compelling one I have read.
This book will be of great interest to both parents and professionals and I highly recommend it.
Usually when a child reaches a certain age the parents will have done the rounds of hospital appointments with the experts, have a diagnosis and know what they're dealing with. Chrissy's mother never had that peace of mind. Doctors shared their expertise with each other but never with Chrissy's mother and as a result she has had to do her own research and (in my opinion) is a self taught expert.
Twenty years ago books about raising such a difficult child would be writtn by experts. Today parents are writing their own.
Having a daughter with severe learning difficulties has led me to read many many books on this subject but I have to say that Jane Gregory's journey with her daughter and continuous search for the correct diagnosis is the most compelling one I have read.
This book will be of great interest to both parents and professionals and I highly recommend it.
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