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Asperger Syndrome and Adults... Is Anyone Listening?: Essays and Poems by Spouses, Partners and Parents of Adults with Asperger Syndrome [Kindle Edition]

Karen E. Rodman , Anthony Attwood
4.4 out of 5 stars  See all reviews (7 customer reviews)

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Book Description

'This short book, a collection of essays and poems, looks at the loneliness, frustration and sadness experienced, not by the person with the syndrome, but by their partners, parents and other family members: it is they who have to cope with the absence of communication, affection and empathy expected from a reciprocal loving relationship.'

- Irish Journal of Medical Science

The difficulties faced by people with Asperger's Syndrome (AS) cannot be underestimated, but the emotional problems experienced by those who support them - partners, family and friends - are often over-looked. Focusing on what is referred to as the Cassandra phenomenon, where the neurotypical partner often needs more emotional guidance than the AS partner, this volume gathers together letters, thoughts and poems to give voice to the loneliness, frustration and love felt by many individuals who are close to one or more people with AS. Assembled by FAAAS Inc. (Families of Adults Afflicted with Asperger's Syndrome), a well-known support group specifically for family members, friends and loved ones of people with AS, this collection will provide the emotional support, insight and understanding needed to deal with the emotions that AS evokes within close relationships.


Product Description

About the Author

Karen E. Rodman has lived with a husband who was diagnosed in 1996 with Asperger's Syndrome and Tourette's Syndrome at age 69. Karen enjoys travel, her friends, photography, and facilitating "Polly's Place", a cancer support group. She is the founder and president of FAAAS Inc. (www.faaas.org), the first website and organisation in the world that recognizes the need of support and validation for family members who are affected by the behaviours of adults with AS. FAAAS Inc. (Families of Adults Afflicted with Asperger's Syndrome) aims to offer support to the family members of adult individuals afflicted with AS. FAAAS Inc., a non-profit organization, also aims to educate the public to the existence of Asperger's Syndrome in the adult population and to bring awareness of this neurological disorder and its ramifications on the "whole" family to the medical communities who are directly or indirectly involved. Another key aspect to the work of FAAAS Inc. is to give the families a measure of reassurance so they can validate their concerns and frustrations as concrete issues rather than simple "family problems".

Product details

  • Format: Kindle Edition
  • File Size: 680 KB
  • Print Length: 188 pages
  • Page Numbers Source ISBN: 1843107511
  • Publisher: Jessica Kingsley Publishers (15 Sept. 2003)
  • Sold by: Amazon Media EU S.à r.l.
  • Language: English
  • ASIN: B003724P9A
  • Text-to-Speech: Enabled
  • X-Ray:
  • Word Wise: Enabled
  • Average Customer Review: 4.4 out of 5 stars  See all reviews (7 customer reviews)
  • Amazon Bestsellers Rank: #511,070 Paid in Kindle Store (See Top 100 Paid in Kindle Store)
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Customer Reviews

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Most Helpful Customer Reviews
16 of 17 people found the following review helpful
5.0 out of 5 stars Asperger's Syndrome Books 24 May 2004
By Lisa
Format:Paperback
An excellent book, which gives these families a chance to speak - and be heard. It makes you realise that you are not on your own and that others have felt the same frustrations and had the same difficulties that you experience. Well worth reading
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5 of 5 people found the following review helpful
5.0 out of 5 stars Saving my sanity 24 May 2006
Format:Paperback
Living with a spouse with AS causes multiple problems in the 'normal' (Neurotypical - NT) spouse, not least of which is the thought that I am going mad. This has now been recognized and validated as CAD - Cassandra Phenomenon. To have a book which documents the difficulties and provides support is beyond price. Thank you Karen Rodman and the other contributors.
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5 of 5 people found the following review helpful
5.0 out of 5 stars well worth the money 11 Oct. 2011
Format:Paperback|Verified Purchase
I have long suspected that Asperger's may run in my family -- and this book confirmed my suspicions. I felt a lot less alone after reading others experiencing the same pain, loneliness and frustration of living with the syndrome. I would highly recommend this book.
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16 of 19 people found the following review helpful
5.0 out of 5 stars Eureka! Truly a Godsend! 14 May 2005
By BeatleBangs1964 TOP 1000 REVIEWER
Format:Paperback
This is a much needed book for and about adults on the autism/Asperger's (a/A) spectrum. It is a Godsend! For adult aspies and those directly involved with them, make this book your best friend. It provides a serious, honest and in-depth look at what Asperger's Syndrome is; how it affects behavior and relationships.
An important issue that is addressed is that a/A behavior that is so often condemned is condoned when done by the neurotypical (NT). population. For example, tapping on things is a form of self-stimming that many NT people engage in. Swinging one's foot back and forth while seated is another form of self-stimming common among the NT population. Making dreadful exaggerated exhalation noises to indicate thought is yet another NT form of self-stimming. Jumping up and down and screaming with excitement is a common staple at sporting events. That is a form of overt self-stimming. Having an aversion for loud noises and rough fabric is not limited to the a/A population. People on the a/A spectrum are quickly condemned for bluntness, but many people with NT brains can be equally, if not more abrasive, judgmental and tactless. Just look at how so many people on the a/A spectrum are so harshly judged by NT counterparts!
The important issues to keep in mind is that double standards DO exist; what is tolerated among the NT population is frowned upon when committed by people on the a/A spectrum. One possible explanation for this is the manner and degree to which the behavior is done. The sensory responses by people on the spectrum are often accompanied by behavior that often appears bizarre to the NT population. However, many people with Asperger's CAN cover; compensate and learn cognitively to navigate in the NT world and mask strong sensory responses.
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